My tummy has been playing up this morning so fur the test time I have stayed in bed and put me first. I don’t want anything to get in the way of these last 2 treatments so relaxation today.
Treatment at 10.30 tomorrow then just 7 days until I can ring the bell on chemo xxx
2 Likes
Hi @bluesatsuma. You’re welcome to jump over anytime lol. You are similar to me i wasn’t too bad with the 3 EC but the first and second Doxetactel ( id say worse the 1st one )was like flu symptoms which hit me around 3 days after treatment and lasted 4 to 5 days. My last was over a week ago and ive been ok. My nurse told me it wouldn’t make a difference which order i had them as its accumulate like you said. Hope its not too bad for you. Ive also gained weight. Im a slimming world member and was at my target so a bit miffed ive put around 10lb on. Like you said its craving something that actually tastes nice and not the horrible bitter taste like a lot of things. I will try and loose it at some point but dont class it as a priority atm. Take care lovely x
1 Like
@louc sorry to hear you’re not well. Yes definitely concentrate on you. Do nothing and hopefully feel well enough for tomorrow’s treatment. Good luck with the bell ringing. Think it had a more positive affect on me than i thought it would. Let us know how you get on. X
Thank you @debi1 and hurray for getting through it. I am expecting some side effects to hit now steroids have finished. You seem to have come through it well so hoping i will too. Appreciate the support and the solidarity. Good luck for the last leg of this journey xxx
1 Like
Hi everyone! Sorry for the radio silence the last few weeks. Its all been a bit emotional here lol. I had my last chemo on Thursday and rang the bell 
Im so happy to have got to that stage, i really am, however the feelings i have afterwards i wasnt anticipating.
I feel a bit numb to be honest. Im obviously still dealing with the normal side effects from the chemo at the min (fatigue, aches etc) but i also feel a bit in limbo. My radiotherapy starts on the 11th of November, and the oncologist appointment was A LOT to take in. I ended up going on my own because my mum was poorly and my husband had to work. I took notes but honestly I dont think i took anything in lol. I’ll have 3 weeks of radiotherapy mon-fri and then the hormone therapy starts after that. I just feel a little bit lost and overwhelmed. Although i hated chemo and obviously dont want to have it again, the feeling of the security blanket of routine being taken away has just left me a bit out of sorts.
Sorry if that makes me sound like a brat lol. I dont mean to be like “me me me” but i thought you ladies would understand 
hope youre all well xx
4 Likes
Don’t always wait until Monday, they will be very busy. I was told they would rather hear from you over the weekend.
1 Like
@louc sorry you’re feeling rubbish but good luck tomorrow, you’re almost there
@zaran you have the right to be “me me me” This is a tough journey and a lot to take in! And think few of us felt a bit flat after chemo. I wasn’t prepared for that feeling tbh
So totally get it.
@bluesatsuma I was on TC (Docetaxel & Cyclophosamide which is the C of EC) and I did get an allergic reaction cycle 2 but the team were fab to mitigate it (and cycle 3 was ok ish, 4 even better) I did notice my heart rate getting higher with easy cycle & fatigue
But the rest of my side effects were manageable with meds and rest. I cold capped & my hair post chemo is still shedding 
but bald patches filling in (I lost a third of my hair)
I used Polybalm & nails all ok 
2 Likes
@zaran congratulations on getting to the end of chemo! I can understand what you are saying. I have 3 treatments left and think it will feel a bit unsettling not going into the unit and seeing the nurses although I am desperate to finish!
Hope the side effects of the last chemo ease and you start feeling a bit better soonx
1 Like
@idcand49 thanks my lovely, yeah its a strange feeling for sure!! But im definitely glad to be over and done with that part!!
@booklover1 the nurses have been absolutely amazing and i think thats exactly it, all the other docs ive spoken to, although theyre lovely they use a lot of jargon. The nurses are so down to earth and patient that I’ll be sad not to see them each week to reassure me lol. How long do you have between your treatments? Xx
1 Like
Congratulations on ringing the bell. After i rang it last week. All my family and friends were so happy and of course i was. But its like yay a few weeks of radiotherapy then you can get on with rhe rest of your life. And thats the scary part. After all the treatment and care that comes with it i think we’ll feel like we’re on our own. It is a scary time. C has took so much from us and it may not be that easy to get back to normal, whatever normal is. Sending love
4 Likes
You’re totally right!! Thats exactly it. Thank you all for being so understanding. I felt like such a donut for being weird about it, im very grateful for all of you. Not grateful that we’re in the same boat obviously but grateful none the less xx
3 Likes
this @debi1 totally this !
My friend was congratulating me having 2 weeks of radio left and was like “and you’re done now” “life starts”
Etc
It doesn’t for us though, does it?
I’m not the same person & sadly after active treatment things don’t end
And don’t get me started on the fear of reoccurrence
Think I’m feeling slightly glum esp when seeing all the pink this month & awareness events … I don’t feel like a warrior or thriver
Just fricking tired lol
4 Likes
Say it louder for the people in the back!! Youre so so right!! I keep getting told im brave and im a warrior and i dont know what to say really. This is the hand i was dealt and i just kinda got on with it because what else do you do!? Xx
3 Likes
Totally
This was without thought or choice
A needs must situation … x
1 Like
I feel the same, you are all expressing it much more articulately 
@zaran my treatments are every 3 weeks now which feels a bit strange. They used to be weekly. I think the nurses make me feel safe and looked after . I am wanting to ask they could come home with me for a bit but they will think I’m cracked. 
Thanks to all of you too for all your wise wordsx
3 Likes
Thanks @idcand49 that’s helpful info. I suffered tonight with severe aches and dozed on sofa from 5pm till 11pm. It’ll be hard to sleep tonight. I didnt cold cap but hair is 2/3 gone and i know more might still. But weirdly, what is left is growing too!
Glad you’ve finished chemo now. I’ve been reading the posts above, and i can see how everyone is saying well done, but it feels like there’s still so much to work through. Here’s to hoping that we all feel that life can return to normal very soon after this journey. Xxx
2 Likes
Wont be long for you, make sure you talk to the macmillan people if you’re feeling down after it finishes. I also wanted the nurses to come live with me after 
Xx
4 Likes
I had my planning and CT scan with the radiotherapy department last week. By some miracle my first radiotherapy treatment date is due to be December 2nd - I’m having 15 sessions and a boost (which will be integrated) and would mean the final session would be the Friday before Christmas - I’m trying not to get over excited as it’s dependent on my remaining chemo sessions running on time and I will now be even more gutted if there was a delay. Even though I still have 3 other treatments starting post chemo in addition to radiotherapy, it would just be so lovely for the active hospital based treatment to be completed before Xmas! I have everything crossed🤞
1 Like
That’s exactly the same as me, it’s nice to know the major treatment will hopefully completed by the end of the year 
xx
1 Like
@debi1 I’ve had a lower left twitching eyelid off and on since my last docetaxel last week. One of the better side effects I’ve had.
Feel like I’m just about out the other side of my last chemo. No one mentioned ringing a bell when I finished chemo. Don’t even know if they had a bell on my unit.
I got a letter today about a t/c on Thursday to discuss radiotherapy and an apt for my CT scan on Monday. I’m thinking I’ll probably start radiotherapy in a few weeks time, possibly finished everything by the end of November.
Is anyone else worried about other people’s expectations? I feel like people think I’m just going to jump to being my old self as soon as radiotherapy is finished.
2 Likes