Love this, thanks for sharing!
@pat I asked on the cold cap FB the other day if anyone got a big shed again around day 18 on Docetaxel and people said they didnāt and eventually saw growth. Obviously I donāt know how different it will be now youāve had to stop, but might be worth seeing what happens? Obviously go with whatever you feel is right for you though.
@charley Iām the same. Sick of the mouth thing, dodgy stomach, not sleeping properly and tiredness. Really hoping my antibiotics sort it all out soon.xx
@charley Im sorry you feel so rotten after your first Docetaxel. I felt exactly the same!! Tired, awful mouth - to the extent i thought I may have oral thrush - bloated tummy, etc. Overall i felt better then the EC, even though I felt dreadful, because I didnāt have the lightheadedness and dizziness. Tiredness was worse. But I got up on the 10th day and felt pretty much ok. 12th day today and I feel normal so hopefully you will be the same
Also cardboard tasting food had gone and taste back to normal
@wjs Thanks i think i shall hang on. Head itchy so maybe its going to shed but who knows
Oh thank you @pat for the encouragementā¦ yes true the woozy ness of the EC was dire but it didnāt last as long as this. Iām on day 7 today and still pretty much pootling around my bed / the sofaā¦
Will press on and hopefully feel a bit better in a few daysā¦
Ps How do you know itās not oral thrush ? I wouldnāt knowā¦
@charley - I didnāt really know but my tongue was all furred, sore and yuk plus the no taste etc. I decided to go to a pharmacist in the morning and when I got up my tongue was much clearer and less sore so i just left it!.
It took me 10 days to feel ok on EC as well so no different with this except tireder with the Docetaxel
Thanks for your replies ladies.
I spoke to a friend tonight who had BC at the back end of 2019 and chemo through Covid times. Sheās 4 years on from completing active treatment and feels happy and healthy-it was a great reminder that the dark days will pass, and life can resume.
I think youāve nailed it @donna_51 that what weāre all going through is much like grief. Iām certainly feeling grief for the care-free existence I had before the big C was slapped on my back and questioning how to come out the other side of this-but with the support of this group we will all get there!
@pat good luck. All those weeks you managed to use the cap will hopefully have helped. Mine is so thin now too, which is why I asked the group.x
As i said i still have enough to use just a band but if you lift the hair you can see my scalp easily. Not sure what it would look like from the back on a windy day I noticed today that my fringe is thinner too. I have bought a couple of hats but they slip upwards and Iām wondering if thatās because i still have hair!?
@charley Ive just remembered - my sister gave me these and i found they really helped with the horrible taste. I found some on ebay
@donna_51 wow what strong words that just hit home. Thankyou for sharing. Sat here with tears as I read it.
@charley sorry so rough. My tongue goes furry and horrid for a week and then goes very pink each treatment and Iām 4 in. Somehow it sorts itself out. The taste thing is a nuisance as I crave anything that just tastes normal so I eat it all! After number 2 I noticed a pattern on how I felt and then realised 1 rough week and 2 better weeks so I planned stuff in for the good weeks - I chunked my diary out - if I felt rough when I planned stuff I could cancel but I had things to look forward to that werenāt too distant and it felt good. Good luck.
@pat on the hair front I started to lose my day 18 - unbelievable as predicted. Slowly it gets worse. I shaved mine day 30 with encouragement from Donna & Alig - it was absolutely the right thing to do - when you turnover at night and you have hair all over your face from the pillow and you shower and you are so shocked at whatās in the shower tray. Looking back my hair was bad but I thought it was ok I shouldāve done it at day 25 when there was more there - it looks so much better - when I shaved mine it was quite old manish - it had patches of baldness mixed with patches of hair. Yes there were tears and yes I struggled with it for about a week as I adjusted - now it is what is! I loved my hair - it always used to look good. Be brave - have good friends with you - sending you lots of love and hugs - it is like shaving away your identity but you are still you - my sister told me . It is growing now albeit very fine and no idea what day Iām on now but Iām 60% through!
Happy Saturday all xx
Wellā¦., docetaxol isnāt nice either . Anybody suggest anything that actually tastes nice? Xx
@alig1961 I found iced drinks were better, plus stronger tastes, chutneys etc. On the plus side my taste went totally back to normal after about 10 days xx
Thanks Pat. Iāve discovered strawberry milkshake this afternoon. Iām only on day 4. This is torture. Xx
Iām on day 9!!
thank you.
A neighbour who is a chef brought over a curry last night which I did enjoy! Lamb bhuna.
Hereās a giggle for you. I was in so much pain earlier with my joints I got into my hot tub with my beanie hat on whilst sucking an ice lolly and wearing marigold gloves so as to protect my nail beds. Not a pleasant sight.
@pat thank you for giving us hope! Iām also on day 9 and I think half my tongue is actually starting to feel normal as is my stomach!
@charley i really fancy a curry now!
@alig1961 whatever works
I totally thought that my tongue/taste issues were there until I finished all the Docetaxel cycles so I was very surprised, and pleased, to find that everything has gone back to normal and allās right with the world
Next time it will be better as we know what to expect and that it will stop after about 10 days
I didnāt have the energy to put my cosy on.