@charlie22 I so know that murderous feeling. I had it earlier when i discovered that the wig i have ordered is going to take another 3 weeks to arrive which will be after my chemo has finished so now I think, is it worth getting one? It will take months for the bald bits to grow out, and I will have to cut off the long straggly bits (I havenāt shaved) or have uneven hair. I hate it and just cant decide what to do. Itās like Iām paralysed with indecision. The lovely lady offered to order anothr one, the style of which i love but the colour is a proper grey where as mine is grey bit still has a lot of dark in it so it would be a total change.
Hubby, who has been fabulous throughout all this, just doesnt get the hair angst, and said well it looks fine now. Thereās still loads at the back. It doesnāt even look like youāve lost any at the back. So what if itās thin underneath. Luckily for him he left shortly afterwards to watch Man United
@charlie22 I have the perfect thing for you to do when youāve finished (and teenagers might like it too!)ā¦ go along to this and smash the f@#k out of everything!!! Weāre allowed to be angryā¦ with anything !!!
My 7th is going ahead today, yay, but have the bone infusion stuff alongside the 3+ hours of pax and Iāve heard the side effects of that arenāt nice. This keeps on giving and givingā¦ wish me luck ladies xx
@donna_51 good luck for today. I currently sat in waiting room waiting for my bloods to be done. Number 5 tomorrow. Here we go again. At least I can join the ājust one moreā club after tomorrow. Even though I really want to be saying, just 20 more days of hell.
X
@pat. Hair is so important to us but also so individual. I made my mind up at the outset i didnt want a wig and would use caps /scarves.
I shaved my head about a month ago (number 3) and its the best thing. I wished id done it ages ago and i wasnt upset as i thought. What did upset me was looking in the mirror and seeing wispy stuff with scalp showing through before ( and constantly unblocking the shower plug!). Now i feel like i own this, it was my choice to shave, not cancer/chemoās choice to make me look thin and wispy.
Hard to know, but try to listen to your gut and what ls right for you.
I am hating starting to look like the sick person, that i dreaded at the start of diagnosis. Sallow, rashy, exhausted, with tingling hands and feet and extra weightā¦but ive just about hung on to my eyebrows and lashes, and ive found it true that a bit of make up and my fave perfume do lift me, even if going to only sit on the sofa!!
Like everyone hating this part and everyones positivity at my last treatmentā¦as you all say doesnt feel like a thing to celebrate just the marking of time for what comes next. But, we have all got here, so we are amazing and we will get through whatever comes next xxx
@alig1961 hope you get a better week. This time after the first Docetaxel I had a temp and infection. However although I felt shocking the last 2 days after I started the injections Iāve actually managed to work today. Iām not 100% but definitely better than I was. So hoping Iām over the worst and it wonāt be as bad as last time. Hope itās the same for you too.x
@wjs. Thank you for the message. Iām hoping that I donāt go into hospital again. Fingers crossed the dosage reduction prevents that. I also have to remember that when I was in hospital, yes I felt rubbish but I think it was more mental health than physical health. Glad youāre doing ok. X
Hope you have a better time of it @alig1961 and @wjs ā¦ Iām feeling ok but bloody steroids kept me up all night and I now have to take more so Iām exhaused and wired at the same time!! Some bone aching too which I presume is the bone infusion + now have to take calcium and vit D supplements too ā¦ I am a walking pharmacy which is depressing as I never took anything before all of this.
I too am now in the āone moreā clubā¦ which is a great feeling but for some reason yesterday I burst into tears about it with the bc nurse as I canāt quite imagine getting my life back in any real way. Whilst Iām in treatment I can feel as miserable as much as I like and sit at home and brood all day but when itās overā¦ well how do you get ābackā?? Nurse was lovely and said this is all normal feelings and it will take time, donāt rush it etcā¦ but sigh, even more emotions to deal with now ā¦arrgghhhā¦
@donna_51 it just seems to get more complicated the closer we get to the last one doesnāt it. People assume youāll be excited about it but actually itās still a hard slog to get there and afterwards with the side effects. Iām not too bad again today and will wfh as it keeps me occupied but Iām by no means ārightā. Going to ring the helpline for advice re my stomach. As soon as I start those injections itās a nightmare.
This is the course BCN run that Iām planning on doing at my local Maggies in the new year probably. Might be worth a look @donna_51 and anyone else to help us adjust to trying to get back to a new ānormalā.x
People do keep saying just one more then itās all finished, in jolly voices. Well yes but IT ISNāT FINISHED!!! Firstly because there is the 10 days of side effects to negotiate, then the surgery, then, most likely, radiotherapy. So for me at least the end of chemotherapy isnt the end. I know people are trying to be encouraging
However, we will all be pleased to see the back of chemo so that is something to look forward to whatever comes next.
Will we still be able to post on this group once our chemo has finished ?
Thanks for sharing @wjs. No in person courses near me but will do online, might wait til i know when my radiotherapy is thoā¦
Hope the end of the week is feeling better (i guess not for those just through treatment this weekā¦sending love and support snd strength to get through). Hope the sun is shining for you all xxx
@pat I think we can post on here forever if we want toā¦ but Iād suggest we move the conversation to a whatsapp group towards the end of the year if people want to join. I definitely donāt think our group support finishes when treatment finishes so Iām up for keeping in touch xxx
Hope the side effects are kind to you all this week!
Amazing for those of you who are getting down to one more to go, but I can understand why itās emotional. Iāve got 7 left-keep thinking how crazy my life is at the moment that every week I have to go to the hospital and spend 5 hours there with iced head, hands and toes and then wonder how I will cope when Iām not doing that every week.
Like you too @pat Iāve got surgery and radiotherapy still to come, so whilst the chemo will be ticked off itās still a lot to go throughā¦
So rang for advice this morning and back at the hospital for more checks I mean good that theyāre looking after me but Iām so fed up with this. Will let you know how I get on.
@donna_51 thatās a good idea. Would be really nice to be there for each other still for the rest of it.xx
I think it would be lovely if we could meet up face to face I. A central location when we get through it all or arrange a large zoom group. What do people think xx
@alig1961 definitely !! Iām happy to travel next year when I have some hair ā¦ I can treat myself to a jolly!! Letās set up a whatsapp group in December and then go from thereā¦ whooo
@wjsā¦ oh no, hope they see you quick and itās not too serious!!! Hereās sending you positive vibes. I had a slightly high temperature during my last round and didnāt phone as I didnāt want to have to go into hospital - a risk maybe and I kept checking my temp every hour but the thought of not being at home in my ācaveā fills me with horror. Not sure how you did it @alig1961 !!!
It was a nightmare and as Iāve said made me worse in the long run. However, I have a friend who picked up pneumonia so I wouldnāt take the risk. Xx
So they were going to send me home, took my temperature again and it had gone up So now got an overnight stay so they can keep an eye on me, which is probably for the best but
so now I think, is it worth getting one? It will take months for the bald bits to grow out, and I will have to cut off the long straggly bits (I havenāt shaved) or have uneven hair. I hate it and just cant decide what to do. Itās like Iām paralysed with indecision. The lovely lady offered to order anothr one, the style of which i love but the colour is a proper grey where as mine is grey bit still has a lot of dark in it so it would be a total change.
I mean good that theyāre looking after me but Iām so fed up with this. Will let you know how I get on.