Thanks…that’s reassuring and quite likely. I have low blood pressure. Will go to drs if it happens again x
Francine I have large enough boobs for them to warrant having to wear a bra during rads to keep them in the right place so I think that this may be your own hospitals protocol in terms of minimising skin problems.I did have a very sore breast and skin problems after 15 sessions but I would rather have dealt with that (they give you creams dressings etc) than go for another 2 weeks by far.
Amanda, don’t worry Im not going to disappear,I still need this support too ,despite coming to the end of treatment I still feel like I have more in common with people here than people who haven’t been through this!
Claire welcome to the thread.We take it in turns to be positive and strong and fall apart so don’t worry about meltdowns.Make sure you write down all your questions when you go to see surgeon like you say when you are there everything just goes out of your head.Good if you can take someone with you too,as you really can’t take it all in.I asked surgeon to write some things down for me as I knew I needed to digest it further at home.
Hope you feel better today Lorna.I get migraines and they can be pretty scary,I go blind for a while.Sounds like blood pressure plummet to me,I’ve had that too!!!I like collecting illnesses and conditions me!!!
On the concert front .I loved David Cassidy when I was growing up ,posters on the wall etc.Went to see him with 2 friends couple of years ago,never seen such a bad face lift ,we ended up closing our eyes ,listening to the music and trying to remember him when he was pretty.Think it’s better to grow old gracefully !!!
Hope you get some joy re your results today Amanda.
Hello all, I like Claire have been following your thread with interest over the last few days. Unfortunately, I was diagnosed yesterday with grade 2 ductal in my right breast with some lymph involvement (I have a swollen gland in my right arm pit which has also tested positive). Even though I had a feeling what the outcome would be, I still can’t believe it. I’m 35yrs old with no family history of breast cancer. I’ve been told that I’ll defo have chemo, however not sure as yet if it’ll be before or after surgery, and more likely a mastectomy rather than WLE. Not sure yet if it’s hormone receptive as still waiting for some of the results to come back. I’m lucky that I have a loving family and supportive husband, however I’m still so scared and shell shocked, it feels like a nightmare. I’ve been told that I’ll need a pep scan next, wiich scares me even more, they said this is standard for when they’ve found it in the lymph node and the consultant seemed confident that it should be localised to one area, however I’ve got it into my head that it’s everywhere, is it normal to think like this? Also, has anyone else had this type of scan? Sarah xx
Morning everyone. Fingers crossed everyone feels better/ok today x
Only 35 Sarah , a year younger than my wife. You did well to find it at your age. All the best to you and family as you’ll all go through a lot of emotions x
Welcome Sarah,3 Sarah’s now you will have to think of a nickname!!First few weeks are really horrible,do many things to get your head around,so many unknowns but as Jo says it does get better when you have a clear plan of action.
Just had long call with Occy health who persuaded me my return to work plan was aite ambitious and now have a very slow return over. 6 weeks recommended .Eek!!!Felt quite emotional having to go through all that had gone on over last 4 months with a stranger on the phone.
Morning all.
Sarah, welcome to the thread but sorry you have to be here. It’s a great place for advice and support and has been an absolute life line to me these last few weeks. I cannot improve on how Jo expresses the feelings you go through below - she could be accurately describing my experience in the days following diagnosis. Very wise words indeed. And thanks Jo, because I’ve not been offered any scans before chemo either and was wondering why. I start next week. Good to have your experience on that too.
I had a mini meltdown last night. Had to tell two friends that it’s possible I won’t be able to make their wedding and 50th parties in the coming months because of treatment. They are both quite far away from where I live so I just think it might not be feasible. I had a little weep just before bed at the unfairness of it all!
But I’m feeling more chipper today. Off up North to see my mum for last time before treatment starts and having afternoon tea with one of my oldest friends.
Amanda, hoping for good news/any news for you today.
Happy Friday all. xx
You’re right Jill too many Sarahs! Take it slow getting back to work x
Hi Delly, sorry missed your question earlier - lots of activity here this morning! I had a silicone reconstruction with strattish mesh. I’m only a B-cup and was concerned about compromising another part of my body to reconstruct although the surgeon did say that if my implant fails at any point then there is another option to go for. So far I am really happy with it and have had no issues at all. Early days I know! Hope you have a lovely weekend. x
Morning all, still not fabulous but getting there. Headache is a nightmare. Welcome to all the new ladies. I know you guys don’t really want to be here but the support here is fabulous. I am finding it scary how many 35/40 year olds are out there with BC.
Talking of concerts I was gutted as I got tickets to see Michael Jackson then he died never got to see him I was gutted. I am afraid I have seen boys bands, New kids on the block, Bros, Blue and take that . Hey Jill my mum loved David Cassidy but my grandad never let her go to a concert, she like the bay city rollers too xxxx
Hi Claire, I think this site is fantastic and it’s comforting to read that I’m not alone. I’ve just called and cancelled our holiday to Egypt, however we’ve decided to go away to Windsor this weekend as we need a couple of days away to regroup and to hopefully distract us slightly from our bad news. By the sounds of it we’ve both got very supportive husbands and family, it’s still so surreal though telling people. I keep thinking about kylie, as well as the others who have beaten it. I know it’s silly, and I know it was a tv show, but I also keep thinking of Samantha from sex and the city and how her character dealt with chemo and losing her hair. I’m off to see my GP in the minute, she’s also had breast cancer so hopefully she’ll have some words of wisdom for me!
Thank you everyone else for your messages, it’s nice to have somewhere to talk freely about my worries and fears, and regarding all the Sarah’s, I’ll happily answer to sissy! Xx
Hi Claire…welcome to the forum. Your diagnosis sounds like one of the better scenarios and treatable so that’s great! It’s a Rocky road so your emotions will be all over the place. Know it’s normal, allow yourself to cry when you want but laugh more organise lots of treats in between appointments, especially when you’re waiting for damn results! That’s the testing time I think. Sending love,Lorna x x
Lol Jill. Thanks it was scary. Think I’m collecting illnesses for fun too! I’m back to work Monday and feeling quite anxious but have to do it now for my sanity x
Oh bless you Sarah, such a scary time. I will never forget the feeling when first being told as I’m sure non of us will. I was so reassured when I came on here and realised how things have changed for a lot of people diagnosed. It’s not the death sentence it was and is very treatable thank God. You are now on the road to recovery so hold that thought. Sending love Lorna x x
Hi Ladies and Barry, gosh so much going on; it’s hard to keep up! Glad to see Delly, Sarah (Sissy!) and Claire over here now; not that you wanted to be in the ‘diagnosed club’ but for the camaraderie and support.
Thanks for the best wishes, unfortunately my luck continues to be lagging a long way behind me…a lovely and very sweet BCN phoned and the reason for delays with histology is to it being “complex” other words used were ‘busy’ and ‘different’. Apparently it is more than one tumour…at least three and is behaving more like lobular cancer than ductal! They took only one sentinel node (I wish they had taken a few more) and that is positive, a 3mm metastasis there. Also the margins one the on the confusing tumour are not clear!
I will be seeing the surgeon on Tuesday 6th and the plan is for an MRI in a couple of weeks (needs to be done 5 weeks post surgery) further surgery to get clear margins and node clearance. Given a further two weeks after that to get results and unknown availability for the surgery as yet, I recon it is going to be 7 – 8 weeks before I finally get much more of firm diagnosis. I think chemo just got a hell of lot more likely, too!
I am a bit numb at the moment….this sort of messy stage where I am left thinking about getting my affairs in order! Sorry to be pessimistic, but with all that has happened recently I can’t help feeling this way. I guess being at my Mum’s funeral hasn’t helped with the negativity!
Amanda x