Just diagnosed and wanting to talk to people who understand

Thanks Jill huge relief :slight_smile: xxxxxxxx

Thatā€™s great news Sarah, your relief must be immense!Ā 

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I dont have have my post op appointment until the 30th so there is more waiting yet. What I was wondering is what makes them decide to do a MRI (or similar) scan as that hasnā€™t been mentioned to me at all.

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Amanda x

Sounds like the wig is ok then Sarah, (well as ok as these things can be I guess).Amanda, I didnā€™t have an MRI ,I think they only do them if you are having chemo or if you have lobular cancer which can be hard to see on Mammogram.

Fead I had a routine mammogram in April this year. I got the all clear and could have left it fir another three years. In June / July I felt uncomfortable lying on my right side and had a thickening. After ultra sound and MRI I have two lesions grade three that are to big to operate on. The tissue in my breast was too dense for the mammogram to pick it up. So im on 6 m chemo five weeks rest and then my op. Rads and tablets. Had my first chemo today. A long road ahead.

Thanks Sarahd, I am glad it went well today :slight_smile: I think I am going for a bob length wig. I have longish hair so am going to get it cut and send it off to little princesses ( at least I will feel I am giving something back) I am going pixie cut as it wonā€™t be so bad when it falls out :slight_smile: xxx

Hi Amanda I know the waiting is unbearable! And how are you feeling? My boob was very dense and it didnā€™t show on mammogram but it was me that found the lump so they took a biopsy. Once I was diagnosed I went for a m.r.i to see if it was anywhere else in my boob and to check it wasnā€™t in the other. And it was at my first onc appointment they said about scans. Xxxx

Great news Sarah you must be relieved!!! Well done on second chemo hope you manage ok again! Youā€™re brave wearing your wig - thatā€™s good your mother in law didnā€™t realise!!! Take care xxx

Thanks shazza how are you? Ange thatā€™s what I did but had to shave it yesterday as it was falling out but did it with clippers to a grade 3, and itā€™s calmed down a lot now. :slight_smile: xxxx

My hubby has a grade 3. We will end up with matching hair dos xx

My hubby has a grade 3 too :slight_smile: xxxxxx

Iā€™m not too bad thanks Sarah. The last few days have been weird, I felt very low and panicky about everything. Also felt weak and achey and had a funny throat, got checked out at GP who said all looked well but took bloods. I couldnā€™t sleep last night just panicking about every little thing. Anyway feel loads calmer today and brighter, and bloods came back fine. Hoping for a good nights sleep tonight. Iā€™m day 8 today so Iā€™m hoping to be on the up soon! Onwards!!! Xxxx

Wow, itā€™s been a full on day for you Sarah. Glad to hear your good news.

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Iā€™m waiting for my first appointment with the onc and feeling rather anxious. I guess Iā€™ve just got so comfortable with my consultant/surgeon over the last couple of months that it feels weird being handed over to someone else. Iā€™m another one with dense breast tissue so my original plan for surgery of a WLE and SNB was replaced with a MX when satelite leisions were found at a later date. As a result, Iā€™ve seen a lot of my consultant in the last two months.

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Anyway, I guess Iā€™ll be on the wig hunt/hair chop road soon. Have people gone for NHS funded wigs or have you been looking at other options?

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Iā€™ve just looked up that Little Princess charity Ange. What a great idea. Not sure they would want my current hair though which is a combination of old highlights and lots of grey roots. Iā€™ve not been to the hairdresser since diagnosis, holding on to see if chemo was necessary and trying to avoid shelling out a fortune if it was(London prices!).

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Shazza itā€™s all normal the steroids take a while to come out of your system and can make you a bit up and down but looking at my diary day 8 I had a really good nights sleep so fingers crossed it will be the same for you :slight_smile: I bought my wig but I got asked today if I had had a wig referral so I may get an nhs one too. Mix it up a little bit. You will feel better seeing onc because you know you are planning to get rid and you will probably feel like ange once you know you have to have it you just want to get on with it :slight_smile: xxxxxx

If there is any fun to be had from all this then experimenting with wigs and mixing it up a bit is some consolation I guess Sarah. Maybe with the NHS voucherĀ you could get something totally opposite to your usual style unless you think that might scare your mother in law. :smileylol:

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Just trying to make a positive out of a bad situation! My friend had breast cancer and she bought a few wigs this was a while back and they were a lot cheaper back then you didnā€™t know how she was going to look every time you saw her and she really enjoyed experimenting as like most of us having a similar haircut for a number of years. She looked brilliant and gladly now she has her own hair back :slight_smile: and doing very well xxxx

Thanks for the encouragement Sarah! I certainly have my fingers crossed for tonight!! ?
Glad your pleased with wig it certainly sounds great. I picked mine up yesterday but havenā€™t looked at it since bringing home ? did it feel secure when you wore it? How you feeling after treatment 2? Xxxx

I was a bit like that too shazza:) it didnā€™t feel too secure and did move whilst having chemo but I think I will put a wig cap next time and maybe a couple of clips I know there are ways round it :slight_smile: Iā€™m feeling ok followed my diary from last time got a bit of a headache thatā€™s it :slight_smile: xxxxx

Gosh, I hope Iā€™m as positive if I end up having to have chemo! So how is wearing a wig? A friend (who has been cured of a cancer) said she couldnā€™t bear the feel of her wig and ended up not using, I think she said it was too hot or itchy or something!

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Iā€™ve had major meltdown todayā€¦just everything getting to me, funeral plans for my Mum, this damn ear infection which is causing more pain than the scars and then this sort of change in the family dynamicā€¦various members of the family seem to be winding each other up! Maybe I used to keep things on an even keel and now Iā€™m not doing it the cracks are stating to show! Itā€™s not anything big and maybe Iā€™m being too sensitive to it but it is really upsetting meā€¦has anyone else experienced anything like this?

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Amanda x

I lost my dad last September and there was so much to do. I was an only child so it was down to me to sort everything out so I had no family troubles but I have has friends that have had terrible trouble and you really donā€™t need this right now. You have lost your mum and it was a terrible shock on top of having this. I would go to your g.p and maybe get some pills I know I keep saying it but anything to take the edge off really helps. I have also downloaded an app on my phone called headspace itā€™s 10 minutes relaxation everyday you can do it more if itā€™s helping. I hope things brighten up for you soon xxxxxxx

Cancer takes the stuffing out of you, as does a bereavement , things you could have tolerated before / let pass seem a lot more wearing and difficult to deal with. You have had a double whammy Amanda.Most of us are used to dealing with all our familyā€™s problems keeping things together and when we are below par ourselves things go a bit array.