Just diagnosed and wanting to talk to people who understand

Hooray at last some good news, clear margins at last, third time lucky. Will have 3 weeks of rads when the wound has healed and the hard lump of fluid had dispersed. No more surgery, can’t believe it. Hopefully all will be over by end of October. Sending hugs to Amanda, going through such a difficult time and everyone going thro chemo so amazingly. Sarah, good news too, great. I actually looked after the only PET scanner in Britain at the time when I worked for the Medical Research Council in the 90s. It was based on the Hammersmith Hospital site. In White City. The maintenance contract was £250,000 a year and it was the biggest cheque I’ve ever signed!

That’s bloody brilliant news Francine, you must be so relieved !!!

Francine that’s amazing news really happy for you :slight_smile: you can now see a light at the end of the tunnel. Thank you I had to go to Cheltenham for my pet scan. I thought that was an odd place to have it but quite enjoyed the day out and loving the result. Sprouts and twiglets for you now :slight_smile: Xxxxxx

Thanks ladies, yes, I did think about seeing the GP soon, time isn’t on my side at the moment, but maybe after the funeral next Thursday, I will go along.

 

I am also the family ‘organiser’ and I guess that it’s my own fault to a certain degree for doing everything, or telling people when to do something, they just don’t seem to see things that I do! I think I need to learn to let go a bit because they are really trying to help and support me (my husband always does all the cooking!).

 

I guess I’m not as strong as I though I was, this damn disease has taken my confidence and I haven’t been through half of what lots of ladies on this forum have yet…hell aim going to have to ‘woman up’ to get through it all!

 

Amanda x

 

 

 

 

 

 

Amanda ,crap days are par for the course, they become less frequent as time goes on,don’t give yourself a hard time for feeling vulnerable.Youd be a robot if you didn’t feel like that.

Francine I am so pleased for you!! No more surgery :). Go for it Sarah while you can experiment with different wigs , I am :slight_smile: hope chemo 2 is playing ball :slight_smile: Shazza you are doing great :slight_smile: stay strong xx Amanda huge huge hugs to you xxxxx

Great news that you don’t require anymore surgery Francine. Big hugs to everyone going through and and about to go through chemo. And of course to everyone else x

Amanda, you are strong but that’s not to say you can’t have days when you feel rotten which is completely normal under the circumstances. Sending you, and everyone else here who needs it, much strength. x

Well I have just been in my surprise appointment ( didn’t know about it until I got my phone call this morning) my chemo starts on 28th. I have my little red book, I have had my tour ( it’s not as scary as you think but seems very noisy) so onwards with this fight xxx

That’s great you have a date you will feel like your moving towards an end date now. I will send you food list for you when my son lets me have laptop back. I’m on day 2 of round 2 doing very well had a my best friend this afternoon and we have been giggling like schoolgirls :slight_smile: having green and blacks ice cream xxxxxx

Sounds good to me. What days do you feel at your worse in the first week?? Sounds like you are doing fab at the mo xxx

It’s good you have a start date Ange x

I have felt at my worse on the first night and then after that ok a but weird in parts sleeping can be a bit up and down and the steroids can make you hyper and hungry but nowhere near as bad as I thought just because you feel ok be sure for the first few days you don’t over do it I’ve heard people have done it and they have not felt good because of it. It’s very doable :slight_smile: xxxxxx

Hope I am like you Sarah. Fingers crossed xxx

You will Hun. You are a strong woman. Xxxxxxx

I’ll get those tips and tricks from you too Sarah x

No problem Bazza hopefully I can copy and paste what I have sent ange so far :slight_smile:

Good you have your date Ange and can move forward. I’ve just received letter for first appointment with onc so I’ll hopefully be not too far behind you. Keen to move on and terrified in equal measure!

 

It’s good to hear your experiences so far Sarah. Have you had someone collect you after your treatments so far and would you say that’s essential? I’ll most likely be taking public transport or a taxi home afterwards which is a journey of around 20 minutes. Thanks.

Glad you are moving forward Ange, being in limbo waiting for the next step is really difficult.

Thanks sarahxx hopefully Peggycat we can share experiences ( like Sarah - who has become my knowledge rock!!! Xx) Barry the lists from Sarah are fab. They are very helpful. Xxx