Message for Sparkler & Lindiloo

HI Jill and Fiona
So glad to hear your feeling a bit better Jill , have you started Tomoxifin yet? im pleased to say at the minute still no side effects to speak of ,i was worried about it as i seemed to have every side effect going with the chemo. (am hopeing things continue this way) Start rads weds so wont be long now just want to get on with it now realy . Im impatient too ha.

Fiona,
Hope your ok and rads is going well for you , hows your skin bearing up? glad you had a nice day out its good to be able to have a few laughs sometimes it can be a real tonic ,glad you didnt have to much of a hangover too.

Take care both of you
lots of love
Lindiloo xx

Hi Lindiloo

Rads till going fine and skin still absolutely fine too - cant say I feeling anything - no tiredness - but spose its still early days - but I think to anyone thats had chemo - rads would seem like a walk in the park dont you think?

Glad the tamox going fine too - i have none of that as I’m triple negative.

Take care
Fiona
xx

Hi Girls,
Lindiloo. Have not started Tamoxifen yet, due to this week, oncologist said wait till after my Birthday on 25th, so willl do that dont really want any side effects before then, but hope to be like you and have none. I am sure your rads will be fine, Fiona is a shining example to us all after all the upset she has been through. Hopefully our skin will hold up too Lindiloo, fingers crossed.

Fiona. Glad all still well with the rads, and your skin is behaving. I have had much better day today. You are so right Fiona about the rads got to be better than the chemo, if its just the fact that you get tired which is what my BCN said then I can do tired… Have opted for afternoon appointments as I am not a morning person and the transport would be picking me up at 7.30 if I had a morning one, like my breckie and the paper for an hour!

Hope you are both ok, speak tomorow/
Love JILLX

Hi Jill

I am so glad I live near the hospital and dont have to depend on hospital transport - will probably make your rads appointments seem soooooo long. Spose you will have to take along a good book. I too am not really a morning paper - never have been - when I do get up I just like to mooch about it silence for a while - lol.

Hope your both ok today
The sun is shining here
Fiona
xx

Hi girls hope your both ok,
Well was supposed to start rads tomorrow, but got a phone call this afternoon to say machine has broken down so will now be starting Thurs appointment is for 2.30pm urghhh hope it doesnt break down too often lol.
Im not realy a morning kinda of girl either dont realy go to bed very early but have a job getting out of it in the morning , i do wake up a few times though the night though with the tropical moments .

Jill hope your feeling a lot better now and the antibiotics have kicked in.

Fiona hope rads are still going ok for you, how many more to go now?

Well take care both of you
the suns been shineing all day here too in cornwall.

Lindiloo xx

Hi Lindiloo

What a shame about your rads - god thats so frustrating. We have 2 machines here in Aberdeen so if 1 breaks down they just squeeze people into the other one - they had probs with 1 last week but there were men on site to rectify it. Hope it does not happen too often for you.

Rads is still going absolutely fine - thats 7 down and 13 to go!!

You both take care
Loadsa luv
Fiona
x

Hi Lindiloo,
What a shame about your rads, I had just logged on to wish you well for them aswelL. so frustrating when you have geared yourself up for it. Enjoy the weather instead Lindiloo, Much better than rads anyway!
Seriously I wish you well for Thursday and hope all goes ok. Be thinking of you.
Hope you are both ok,
Lots of love and hugs
Jillx

P.s Feeling much better thanks, thank goodness for antibiotics.

Hello girls

Maybe I have spoken too soon - I have a big red square with rads - you can see exactly where the treatment area is - came home, took bra off and slapped on the aqueous cream - fingers crossed this is as bad as it will get - yikes!!

Hope you both ok

Fiona
xx

Hya Fiona,
Ouch that sounds painful, probably the more you have it affects the skin more (Says she the expert!) I have heard that they recommend crop tops if your bra gets too uncomfortable.personally I have never wore one but might get one in just in case. Hope it settles a bit for you and the cream works. Big Hug, feel for you. Keep us posted…
Love Jillxx

Hi Lindiloo,
Just wanted to wish you best of luck for tomorow. Be sure to let us know how you get on, will be thinking of you. Get the cream slapped on before you go!
Love and hugs
Jillxx

Hiya girls,
Thanks for wishing me luck Jill , though i wont need it untill Friday ,Yes youve guessed it i was called again this afternoon to say machine is still broken ,something to do with the back up battery so all the data has to be fed into it again, they apoligised again and said the engineers had promished it will be fixed for Friday urghhhhhhhh they tried to reassure me it doesnt happen very often (just my luck i quess) its so very annoying though as i get all syked up for it , keep your fingers crossed that its fixed by friday so i can finally get on with it.

Fiona ,awhhh hope the skin reaction isnt too painfull for you keep slapping the cream on i quess thats all we can do to help protect us a bit, ive bought a couple of crop tops (at the ready) ive never worn them before not sure that they will give much support but they say they are more comfortable when haveing rads than bras, i wouldnt be able to go au natural me thinks as boobs went south a long time ago ha

Well take care both of you
Lots of Hugs
Lindiloo xx

Hi Lindiloo,
How annoying for you, and here is me telling you to enjoy the sunshine, its been freezing here today, how about your neck of the woods? Well dont suppose there is much you can do about it Lindiloo, modern technology eh! I will be back tomorow to wish you luck again!
Take Care
Love and Hugs
Jillx

Hi Girls,
Lindiloo: Third time lucky!!! Best of luck for tomorow hope machine is fixed and you have not had any more delays. Sure you will be fine, let us know how you get on. Be thinking of you.

Fiona: Hows the skin? Hope it is not too sore. How many have you got to go?Haveyou tried a sports bra, they are really no support but very soft, i wore them after my op and found they did help. Thinking of you too.

I am ok, but we have had some bad news a great friend of ours came round last night to tell us he had been diagnosed with prostrate cancer, no symptoms just picked up on routine blood test. Awaiting scans to see if any spread. My OH really upset as I am, it was quite a shock but will do everything we can to support him. He has been so supportive to me so a real shock that he is now going through it himself.

On a happier note, I hope you are both ok.
Love and Hugs
Jillxxx

Hiya girls,
Well no phone call today so rads going ahead tomorrow (at last) horray, third time lucky like you say Jill thanks.So sorry to hear about your friend being DX with prostrate cancer it realy is a cruel world sometimes isnt it , the waiting for the scan results must be a horrible time for him too its awfull untill you know what your dealing with. My heart gos out to him.

Fiona, hope your rads are still going ok, and that the redness isnt getting any worse for you, i expect your getting tired of going everyday already thats the bit im not looking forward too ,still has to be done and another milestone for all of us eh .

Hows the hair comeing on girls ,ive got a full covering now but only about 1cm long i cant wait to ditch the wigs /hats im realy fed up with them now .Ive always had curly hair but its comeing back straight at the min which i dont mind at all cos ive always wanted straight hair its very dark but can see the greys too so il be wanting to colour it before i can go commando (think it will be a while yet though still) ive had highlights for yrs but want to try and find something with no chemicals in now.
Well hope your both ok.
Lots of Hugs to you both
Lindiloo xx

Hi Jill and Lindiloo

What can I say - my daughter was admitted to hospital last night - wont post publicly what with but female problems (bit rare so trust her) - anyway, she was in a hell of a lot of pain yesterday, went to theatre today and got sorted (no she was not pregnant!!!) and should get home tomorrow. I stayed with her all night and did not get a wink of sleep so have come home tonight as she is much better and they will call me if she wants me.

Just another kick in the teeth for us as a family but a minor one compared to the rest.

Lucky for me she was in the kids hospital and the hospital I am being treated is just across a link corridor so just a five minute walk to go and get my rads. Skin still very red but still wearing normal bras as not sore at mo.

My hair is very short still but I have been going commando for a couple of weeks - and absolutely everybody says how much it suits me (they kind of sound astounded when they say it) - so I am being very brave and actually quite like it - but not quite this short.

Lindiloo - bugger that your rads was cancelled again - good luck for tomorrow. Tomorrow will mark my half way mark.

Jill so sorry about your friend - hopefully the news will be as ok as it can be and there will be no spread etc.

Off to bed soon - hopefully just zonk out - altho will be listening out for phone.

Speak to you tomorrow night hopefully
Take care
Fiona
xx

Fiona.
So sorry about your daughter, god you are having a rotten time Fiona, really feel for you I hope she gets well soon and is back home with you quickly. Hope you get a decent nights sleep, she is in the best place and is being looked after, but I know when my OH was in I was on edge all the time, its only natural you must be worried about her Please let us know how she is doing, and you take care too, glad your skin is a bit better. Sending you and your daughter lots of love, and thinking of you both.
Jillxxxxx

Hi Jill

Thank you. After everything else this was pretty minor but still very stressful - and when she was in agony I could do nothing to help her which is horrible.

My friends wander why I am pessimistic and waiting for the next bad thing to come along but I really cant help it. It has been 2 years this month of constant BIG worries. I dont know how to describe how I feel about it - but just a bit like - ok - whats next!! I really do need to see a counsellor and LEARN how to think different in order to get on with our lives.

Night night
Fiona
xxx

Hi Fiona,
Im so sorry to hear about your daughter, i hope shes shes feeling a bit better now after her operation ,what a horrible time youve had of it, i realy feel for you. I know what you mean about always wandering whats next, im the same , ive had a horrible last 2 yrs too, full of shocks trauma and sadness. Ive got to the point that nothing seems to shock me anymore , because i feel ive had it all thrown at me ,like you its been one thing after another.Ive become a pessimist too its hard not to sometimes isnt it .things will get better soon for all of us im sure it has to. I hope your able to get some sleep tonight although i know youll have one ear listening out for the phone. Its good that your hospital is close by and you can get to your rads ok too.
Take care of yourself pet and lots of hugs to you and your daughter
Love Lindiloo xx

Hi Lindloo - thanks for your comments - and hi Jill

Thats us home now - Suzie is doing fine now - thank goodness. Slept well last night too - but just not long enought so should sleep well tonight

As you say Lindiloo - you sort of become numb to all the traumas - thats how I have felt this time.

did you get your rads today??

Will log on later and see how your both doing

Take care for now
Fiona
xx

Hi Fiona and Lindiloo,

Lindiloo Hope your rads have gone ok, and no delays. Have been thinking of you.

Fiona So glad Suzie is back home. must be a big relief, you will sleep better tonight knowing she is ok.

Well girls have had quite a busy day, two friends came round to deliver my birthday pressies, so had a lovely long chat and catch up. My OH has confiscated all pressies and hidden them till Monday as I am like a big kid and open them if they are left within my reach!! I know what you both mean about being pessimistic, I know everyone says be positive but its bl…y hard when so much upset and stress is being heaped on you. I think you are coping so well Fiona and Lindiloo, its been a tough time for both of you, so well done.
Well girls Keep me posted and speak soon

Lots of love to you both and Suzie (Get Well Soon)
Jillxx