hi all
so glad lisa that you can go away with your family, got my op 24th and we have blackpool booked for 8th may for a long weekend, hoping i will feel up to going as i need some normality, did the kids 2 easter egg hunts so that was nice,you are all my new best friends
lonve xx julie
well everyone i get the results from the biopsy on my nodes tomorrow. this has been the worst week of my life. I am dreading them telling me it is positive, someone tell me that it isn’t the end of the world caus thats how i feel at the moment. I just want a date for the op and get on with the treatment.
Hope you are all well as can be, please talk to me, i find it is helping to talk to you all Luv pauline xxx
hello
i am in similar boat to you i had needle byopsy which they said was clear but i suppose until i have had op nxt fri it wont be dead sur, but there is alot of people on here with different types of bc and your treatment will reflect that fact, fingers crossed for you, i know exactly how you feel i will not feel any better until the b***rd is out and the waiting is horried everybody else apart from use on here are gettinf on with there normal things while we are going through hell
big hugs from me keep intouch julie x
pauline - once you know you get on with it - believe it or not , its the waiting thats the worse, a lot of people have nodes that are involved and are going strong - I had 21 out and 1 was positive, the number you have is different from person to person. Treatment has moved on well and its surprising how much positive stories there are…take care…mary x
thanks julie and mary. it really helps having you to talk to. Today is going to be the longest day ever. I will come on as soon as i can and let you know the results. Im thinking of you all. talk to you later Pauline xxxx
hi all
yes pauline it will be the longest day,when i went for my appointment for 3.50pm, i was left sitting there until 5.15pm to be told i had cancer, couldnt beleive they left us sitting there that long, hopfully they wont keep you waiting and i really hope you get a date for your op
i was doing gardening yesterday and worry will that make my cancer worse i don`y like to lay on that side so am sleeping very badly anyone got any ideas i already have some sleeping pills but only take 1 rather than 2, did anyone else feel like this thanks
julie
julie - if you need to sleep take 2 and plan a quiet day after, if poss…keeping all crossed…mary x
ps yes once it’s out you do feel different I think…
thanks kittenkat
didnt take 2 because i was worried i wouldnt get up for kids and also i didnt want to run out, suppose i could get some more, kids go back to shcool next week and i go in thur so not to long really, now it sounds silly but after surgery could you use deoderates as i don`t want a smelly armpit lol julie x
julie - nobody told me not to use deordorant etc, I used roll on as it was easierto just put on top bit of armpit on bad side…yes mine are back at school on monday too, daughter has gcse’s this year bless her, she’s dreading them and so are we!! I was the same with the tabs and the dose was 1 so I took half the first night and slept well and then a full one and felt fine, not hung over or anything, I had zopiclone 7.5mg tabs. I use them the first 4 nights after chemo too and it seems to counterbalance the steroids or at least lets me sleep…mary x
hi
i have zimovane 3.75, will try 2 tonite,
you have alot with your daugters gcse, how many is she taking
just had my letter to say that i have to go in at 10am nxt thursday and what to take in with me, it makes it all so real
when is your 3rd chemo, how is the headwear going
take care julie
3rd chemo tomorrow…zimovane is the same as zopiclone so 2 would be the same as one of mine…12 gcse’s, mt nerves will be frazzled!! I’m mainly wearing the pre-tied scarves as they’re handy and comfy but wig if I fancy…it’ll soon come round and then you’ll be able to rest and recover and it’ll get easier, it takes a while though, I felt that once the kids seemed to settle and not think of me as being ill that I felt better too…mary x
Hi there everyone just filling you in. Had to sit at home and wait for a phone call that never came. I rang them in the end and i got the all clear, thank god for that. Looks like my date is set for 30th april, im just relieved things are happening. Hope you ladies are all as good as can be expected. Thanks for listening, will talk to you all soon, off to spread the good news xxxxxx
brilliant news!! mary x
that at leased is someting positive
take care all julie
Hi too all ladies
just posting to let you know I am still alive especiall to Lisa and susaaneA.
well I went and done it. I am now offically lacking a mammary, a one tit wonder and walking lopsided. but unluckerly loads went wrong, dontt worry those awaiting ops I have been told that I have been particulary unforunate.
If you remember my op was on the 6th April, after lots of morphine, therefore sickness, I thought I was begining to recover but a couple of hours later I deteriorated, they could not get a ready on my BP and then I went into cardiac distress, I had six people working on me at one time and this went on for six hours had to have two blood transfusions as well. well I felt better the next day, and by the third day had tried to get myself moving exericeas and all, however the bain of the drains, my bloody things were full sometimes twice a day, in the end they kept me in for 11 days and although they were still draining plaenty they took them out on thursday 16th only to find a load of pus, nice eh. surgeon gave me antibiotics and sent me home, had a fairly comfortable night however next day was in a lot of pain with area very swollen, went to gp’s who sent me straight back to hospital, without going into to many details they kept me in and after various jabs and iv antibiotics an abscess burst in my drain wound covering the bed , I can not tell you of the relieve, they then went on to aspirate on three more separte occasions, they also found out my infection was not responsive to penisillin so got different antibiotics, chest area filled up again but i came home with a pressure dressing on, currently in doors with my chest sloshing about like a old water bottle but feel much better, worried with all this fliud I might be affect by the tides, any way got district nurse to look forward too on Monday. hope it is up hill from here. glad you are doing so well after chemo Lisa and hope you have sorted your head wear and enjoying your your spells away
sorry to go on , but must be feeling better had a couple of glasses of wine tonight.
Love
Sharon bas
Hi Sharon ,
so good to hear from you , I had put a post out for you hoping all was going well but as it had been such a while I had a feeling all was not well , youve really been through the mill Hope this means now your through to the othere side of it …have a glass of wine from me you deserve it …
Hows the family coping with it all ,are you in contact with your breast nurse ,make your self a newsance one thing ive learnt from all this is if you keep quite they tend to over look you so make loads of noise !!!
will post what ive been up to 2 morro been so busy felt almost normal again a few times …
hair coming out in hand fulls no wig yet !!!
next chemo Frriday !!!
started drivin again…
and just came back from Devon
tryed to stay out of the sun like they told me
but almost impossible on the beach …
Any way hope Ive made you smile
loads of love Lisa
post 2 morro …
Pauline so glad you got good news you must be so releaved
will fill you in on hol 2morro
Mary thanks tuck your advise while I was away and had great time …old
Hi Julie hope you are feeling ok just to let you know my surgon told me not to wear deodarant as it contained aluminium and this should not be used round scare area , managed to find some in boots that is alumininum free but was told not to use for about first week if at all pos it is a roll on so less likely to go by scare . Also found it imposible to wear a bra so brought lycra vests from primark found it supported me and my false… got vest in every colour now lol …
Hi sharon bas, glad your back home. What a time you’ve had. what can i say, at least your over the worst and coming out the other side babe. We go in expecting everything to be straight forward and look what can happen. I’ve been told i could be home as early as next day, don’t worry i won’t be that stupid. I intend to get all the looking after i can befor i come home. But 11 days, that is frightening. At least your story has made me realise, that i have to be realistic and expect the unexpected. Lovely to hear you home. Keep us posted on your progress (as much as your able anyway )
Make sure you look after yourself and get plenty of rest.
Lisa, your back too, glad to hear you had a good holiday, can’t wait to hear all about it
Talk to you all soon, lots off hugs Pauline xxxx
hi
all, thanks lisa for the deoderate tip, will just have to smell,sorry your hair is now coming out i am sure that was quite upsetting,
sorry sharon to here the trama you have been through
well going for my premed tomorrow and then in on thursday ready for op friday,can i ask you ladies if you all have up and down days,last friday felt like i was going to lose it,bit since have felt ok,kid supposed to go back to school tomorrow but 6 year old has chicken pox can you beleive it been off for two weeks then gets cp at the end, he is covered,
take care all julie x
Up and down days? As in one day “I am strong, I am invincible, I am woman - I can beat this paltry little disease, look at the statistics…” to “Arrrrghhhh, I have a little twinge of pain in my side, it’s liver mets, I’m going to die before the milk in my fridge reaches its sell-by date…” Actually, that’s not days, that’s half-hours.
I’m feeling up at the moment - tomorrow I have my pre-assessment for my chemo, and Tuesday I start. At last! Eight weeks since my op - it’s felt like an eternity. I’ve got my head around it - more-or-less - and kitted myself out with various emergency supplies like bonjela and tins of fruit compote. Then last Wednesday - aaaarggghhh! I started getting the cold the OH has had! NOOOOOO!!! I don’t want any delays. So Thursday I stayed in bed instead of going to work as planned, dosed myself up with Lemsip - and it’s gone! Pheeeyew! So, only two more sleeps - seems weird to be looking forward to it, but I am.