They said on the online one that you could.
I hope things settle for you before long. I hear you on the brain side. I sometimes think I’ve got Alzheimer’s setting in!
Oh my gosh !! The other day I actually did an online dementia test for heavens sake … it’s worried me that much 
Why don’t you book onto the in person one ? I always find online less personable
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Found one local to me for end of September/early October - thanks for the nudge! x
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Brilliant !! I just ended up crying like a baby on the phone to my gp … I blame the menopause !
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Very likely 
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I ended up going to the gp yesterday and lamenting how run down I feel … she said it was all normal and I pushing myself too much 
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Easily done. I feel the same - seem to have forgotten how long it takes to get over the treatment in a bid to get on with life. Be kind to yourself 
Are you going to take it a bit easier?
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Hello everyone just my 5 days of radiotherapy, had my herceptin on friday afternoon and my radiotherapy in the morning drove myself to both, both at different hospitals about 60 miles apart. Was wrecked on friday. Even stopped the car on the way home to have a cry just felt so emotional ,sometimes it all gets to much. then got my period on sunday so think that may have been partly to blame !
Im nearly on week 3 of Tamoxifen and finding it okay not sure if its the cause of my mood swings too ! Sometimes my knuckles feel a bit stiff jn the mornings. Keep thinking about going back to work after the school holidays but just hope my hands dont get any worse!
I seen my oncologist a few weeks ago and she started me on the tamoxifen. I asked her about scans and she said i wont be getting any cause of my dmx, i may have to ask them again or look at going private as i just cant think ahead not getting an annual mri, considering it was mainly dcis and it wasnt a lump to start with how do i check myself for this 
i had bleeding from thw nipple when first diagnosed now i have no nipples so it blows my mind how do i check 
hope everyone is getting on okay 
most days are better and i do feel more positive each day some days are just tough xx
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It’s a lot to go through but good you have finished your radiotherapy. I found it tougher than I expected and it also made me quite low. I don’t get any scans either, other than an annual mammogram for the remaining side, plus physical checks. They told me that was standard unless they suspect an issue - they work on the basis of everything having worked and that the risk of too many scans is higher than what they might find - or something like that! I find it all quite hard - last week was the anniversary of my diagnosis and it hit me - I’m still feeling really quite fed up at the moment. I think it’s all just normal though. I hope the Tamoxifen settles before too long. Take care. xx
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Yes i did think they dont want you to have to many scans, yes its all so tough sometimes i feel guilty for my daughter having to see me going through all this! But then i have to think that im doing it for her to get better.
Yes its good to be done the radiotherapy and now i continue the herceptin till November. Not sure how i will feel after its all done. Im looking forward to not going down every 3 weeks but at the same time its kind of a sense if security isnt it. Xx
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Hi all………. missing you all and thought I’d check in and see how everyone is getting on……. sorry I’ve not been on for ages again 
How’s everyone doing?? What’s everyone up to and how have you been feeling??
Since my surgery, I’ve been really well and healed quickly…… everything feels back to normal now with my arm function etc…… I rarely do my exercises now, oops…… but I go on loads of walks and do normal everyday things so that’s all exercise in its self really. I had my surgery results and there were still some lingering cancer cells, so I’ve been put Kadcyla for 14 cycles, which kind of bummed me out at first, as thought I was done with all chemo etc but then I thought, I shouldn’t be unhappy because they are giving me everything they can to eliminate those nasty cells so I will take anything they offer!! She told me straight away that I’d lose my hair, I think that’s when I felt emotional, as it felt such lack of empathy after just going through 6 months of harsh chemo then surgery, and my hair growing back, for her to say you’re going back on chemo and you’ll lose your hair……. oh great thanks for that!!! but I’ve read loads about Kadcyla, and losing your hair is not a common side effect so not sure why she started with that but whatever. My hair is growing well and all curly at the minute, which is new…… (il try and post a photo). Is anyone else on Kadcyla?? how are you finding it?? I’ve got my second on tomorrrow, so every 3 weeks again, but only a half hour infusion!! So far I’ve haven’t had any side effects and have felt normal.
During Kadcyla, they may pause it to give me some radiotherapy, and then put me back on it and then next year il go on some more medication, hormone related I presume.
I was thinking of going back to work possibly September time, only for one day a week, to ease me back in, as for starters I’m getting really bored, I feel completely well and of course I am running out of money slowly, as I haven’t had much at all the last two months, as my full pay has stopped and dealing with ESA has been a nightmare……. but my oncologist said she thinks it’s too early to be going back, as she said radiotherapy will make me tired. So that’s a bummer……. I was really looking forward to going back for a little bit, as it’s getting on for a year soon💔
sorry for the long long rant, hahaha.
love to you all!!! Xxxxxxxxxx
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@flojo - I actually went away for a few days after posting and just returned at the weekend from
A week in N wales staying at my mums … I’ve taken the decision that after my last booing at the end of the August , I’m not taking any more for a while … as the daily grind of taking daughter back and forth to school is going be gruelling enough (school is 12 miles away )
Sorry to see you are feeling fed up… my initial diagnosis day was last week and these anniversaries hit hard because although you feel grateful to be here … at the same time … it’s hard to feel like celebrating after your body has had the stuffing knocked out if it 
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@shannon27 - My herceptin was stopped after nine lots due to my reactions and I felt like I’d been dropped into a black hole . The worry that I’m
Not “actively” kicking cancer into touch is very real … I’ve booked onto the BCN Moving Forward course x
@stevie86 - oh that’s a pain about needing the kadcyla… there are lots of ladies on our Her2 thread who are having it and tolerating it well … but your oncologist is right … you do need to rest … is there anything you could do maybe from home ?
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I’m glad to hear you had a break and taking things a bit easier. I find I have good days and bad days at the moment when it hits me, but mostly it’s the fear of recurrence. I have been seeing a counsellor and she is helping, but ultimately, that fear sits on my shoulder and taps me awake in the morning, and waves me goodnight last thing at night.
I’m so far tolerating Letrozole and Abemaciclib although the Abem. is kicking my kidneys very slightly so I haven’t got out of the two-weekly blood tests and onc calls yet - so I haven’t escaped! I’ve also got to go back to the chemo ward for my bone infusions - still waiting for a date for the first, but likely to be the end of Aug.
On the plus side, I’ve decided to take early retirement in the next few months - have told my boss the latest I want to work is the end of March. I’m not sure what next - maybe a less stressful part-time job to tide me over. But everyone seems to have forgotten what I’ve been through and that I’m still recovering physically and mentally.
Back to the surgeon in September, so that will be a toughie for me.
Take good care. xx
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@flojo - it weighs heavily on my mind too … I worry about a new primary in my remaining boob and of course secondary spread … I’ve had some terrible migraines lately and convince myself it’s brain mets … no one gets it … they think I should be celebrating …
Good plan to go with early retirement … I’m struggling to run my business … I’m just so tired … I’m considering closing it a x retiring too … our bodies have been battered . We need to be kind to them x
I feel exactly the same, @arty1! The migraines might be your hormones - I think mine were worse during the first menopause for a while. x
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@flojo I think it probably is ! Tbh the instant menopause I got during chemo was a dream … I fail to understand why my ovaries want to work again 
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Is the moving forward course online ? Im thinking of going back to work in September i have a holiday booked so maybe after that start 1 day a week and see how i go from there x
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Hi to all of you. It’s been a long time since I’ve posted and I hope you’re all doing ok. Ive gone past my year anniversary of being diagnosed and reflecting. Such a lot has happened in a year. Flat mastectomy followed by chemotherapy docetaxel then changing to paclitaxel then finish early because of bad reactions. 5 courses of radiotherapy to chest collar bone and armpit. Our cancer centre in hull have reduced what used to be 15 into 5 super blasts. I have skin discolouration over the whole area. Looks like a dirty tan . I’ve been put on bone phosphates through drip every 6 months so had to go for full dental assessment. Fillings and the teeth that were not worth saving because would have needed root canal were pulled. To be fair my local hospital did this instead of me paying private dentist but had to be done because can’t have pulled teeth or braces after bone phosphate. I’m now 5 months into Abemaciclib. Coping well on 150mg . Diohrea minimal and bloods are coming in healthy limits every month. I’ve gone back to work part time in April and built my hours up gradually so will be full time in October. I’m generally feeling well but some days I get knocked by fatigue. The heat hasn’t helped but it’s the kind of fatigue we all know that you can’t snap out of. Needs a sleep. I’ve had to leave work on some occasions to go home and sleep. Remember though you a cancer patient while your still in treatment and your employer has to recognise you as disabled. My arm mobility on my mastectomy side is good but quick moving hurts like a pulled muscle.ive been fitted with a silicone prosthetic at the hospital which has really improved my posture and rebalance my chest so now able to wear a bra and both sides equally balanced. I’ve had a mammogram in my left breast which was clear.im waiting for a bone scan and what I’m waiting for more so is for an all clear / in remission statement from my consultant. Those are the words that will make every trauma feel as though I’ve done it , got through it and was worth it to get to be cancer free. Sending my love to you all. We have all had this journey so hope you’re all now in the other side xxx
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@shannon27 you can chose to do it online or in person x
Apologies it’s taken a few days to come back … was working that out from Friday to Monday x
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