The weekends off certainly come as a welcome break!
My boob has been permenently slathered in aqueous cream and have been ‘airing’ it when there are no teenage sons about to witness my poor mangled boob!! Very glamourous all this isn’t it!!
Have managed to change my appointments to mornings now which is much better as I’m not getting the very long delays which were dragging the whole thing out even more and making it very tiring. Had orginally asked for afternoons as I was hoping to be able to work through rads but that didn’t happen!
Hi ladies, am 7 down 13 left to go. Demerol cream new best friend! Rads team have been fab, I ended up with bonkers medical issues post chemo, so have other clinics to see at hospital, and they have moved appts around for me.
On the emotional stuff, I have actually put in for counselling. Have had horrible year and just fed up of crying on hubby/mum etc all the time. It feels odd thing to do, but I need to vent!
Hi Vicc55. How are you doing now? I re read your post and you mentioned life was tough, I can relate to that.
So ladies life can throw all sorts of obstacles in our way but the truth is we have to make our lives as positive as we can and have faith that if we follow our instincts and believe in ourselves it will be ok.
Nobody can do this journey for us, we are on our own. Others around us can support and encourage but it’s us who it’s happening to, it’s our bodies who are being mutilated. It’s our tears we cry and its our futures that are now frightening.
So sorry to hear what you’ve been through ReiKiran but well done for keeping strong and making plans for the future
My week has been a bit up & down … my rads are supposed to start on 19th & finish 16th Dec 2 days before I go on holiday !!!
But unfortunately I’ve had seroma & an infection … This started last week but wasn’t seen till Monday so on antibiotics it’s still inflamed so I’m keeping my fingers crossed
As for tamoxifen which I’ve already started the night sweats have calmed down thank god
Also feel very low even though I was lucky & only had small lump removed & then rads it still feels very unreal … One minute you’re told you’ve got be & then you haven’t … you don’t have time to get over the shock of it all !!
Hi again. I’ve woken up this morning after only 3 rads and my boob is pink! Which doesn’t sound life changing, I’m thinking ‘heck’ if it’s pink after 3 then what’s it going to be like after 15? I have plastering on the aqueous cream am and pm and straight after rads I put on the Alo Vera gel in the changing room. Any ideas? I’m thinking E45 instead or are there any other suggestions from different hospitals? Thanks x x
It will probably settle down over the weekend when you have 2 days off.Aloe Vera gel kept in the fridge seems to help some people .I had a very pink itchy boob from about day 5 and Im afraid it didn’t settle down til 2 weeks after I finished.They will give you are variety of creams/gels to help depending on how your skin is affected.
Hi Reikian
My hospital suggested Doubkebase gel which is also a water based gel have been using to prepare for next week ? Really dreading as have urticaria anyway so guessing I’ll react xxx
I had my lumpectomy at the end of September and am now half way thru radiotherapy! Tired, stressed and itchy!! Finding it difficult to sleep because of night sweats hence writing this at 4.30 am. I am coping ok most of the time but have days when I feel very scared and lonely despite having a wonderfully close and supportive husband and 2 daughters. I haven’t really been one for this forum as lots of the stuff on here is sad and worrying but recently reading it all feels comforting in a way I didn’t expect. So thanks for sharing and supporting. ? xx
Ah Dawn that’s what happens to most of us in the middle of the night you look for reassurance and for someone to say it will be ok …I also have a very supportive family but they don’t know what it is like in your head … I start my Rads tomorrow ? Finished chemo 3 1/2 weeks ago but still scared of radiotherapy… Take care and good luck with rest of your treatment xxxx
Ho Dawn I sure hope we get some sort of normality back … Some days I look at people stressing over stupid things like missing a bus and think I wish with all my being I only had that to stress about… One friend even said she was stressed over packing for a holiday!!! Can u believe it … So hope that day comes for us but do think it changes you as in u don’t worry over trivial things… This time next week you will only have two to go ? Hope next week goes well for you xxx
It’s such a good idea to start rads on a Wednesday which gives you time to heal over the weekend. Now I’m bracing myself for my first full week. My skin was so sore even after 3 but here’s hoping next week will be ok. I’ve tried to drink lots, eat well (apart from take out curry last night in front of strictly), and get fresh air by walking. I have a friend who has offered to drive me but I feel bad asking her every day so I’m going to drive myself tomorrow. It’s fine on the way there but driving home in the dark is horrible. I’ll probably cry all the way home, but heck there will be nobody in the car to hear me sobbing.
The emotional aspects of this journey are just as tough, aren’t they.
Good luck for rads this week chicks, let’s just do it Yay x x x
How is everyone? This week is supposed to be when i start my rads but i very much doubt that i will & im so pissed off over it. I’ve finshed antibiotics for an infection but still have a blister like area size of 2p , it started oozing last night so has reduced but im really not holding out much hope.that they ll start it thurs. Seeing my BCN tomorrow but they just look flabbergasted whenever i show them the blister. Already had 2 x aspirations for Seroma already!!!
As for the emotional side of things I cant believe how up & down I am and the things i think of in my head are terrible, yesterdays thought was I wish id never had the lumpectomy or had a mastectomy instead Stupid or what !!
Sorry about the moan, hope everyones Rads go ok this week and youre not too sore
I had my 4th today and after the 3 last week my boob was on fire so today i got some E45 cream to slather on. I added a couple of drops of lavender oil to help with the healing. Yes i totally understand how peed off you all feel, but i keep telling myself its not forever. Its a short blip then its over and then ‘yes’ we can get on with our lives. So many people in different stages of treatment in the waiting room today, it was horrible to see them all looking so sad.
I had this wierd thought today on my way home…i wonder whats it like when ive been completely signed off from the hospital, to essentially go off with my tamoxifen in my pocket with a ‘by by see you next year’ kind of feeling. Somehow i felt that was going to be hard, as right now if there are any concerns you can raise it straight away. being discharged is going to be just as difficult isnt it?
Been feeling very rough today, felt so unwell and sore then had a meltdown on the rads table, staff were lovely and got me to see one of the oncology team, who managed to reassure me feeling this crap is normal and that I was doing really well and to keep going. Felt better when I got home, then felt awful again later so went to bed, felt better again after a rest.
Sounds like all of us are experiencing the same problems, while I would rather none of you were having these issues it helps me to know that I am not alone in my symptoms as I was starting to think something else was going on, sounds like it’s all part of the rads journey! But resting up has really helped me today.
So rest up lovely ladies as much as you can, slap on as much cream as you can and let those emotions out when needed, and we will get to that finish line!!!
Hi Julie hope you are feeling better today. We all have down days … Only had my first blast yesterday but it was a 4 1/2 hour round trip so not looking forward to that and they have changed all my appointments ? Never mind much more to worry about … Take care xx
Good luck Sara for today hope all goes well … I to have re deferred my gym membership as just feel the 4 1/2 hour round trip everyday plus still getting over chemo a brisk walk everyday is enough shattered roll on the new year when we can all start getting back to normal xx
good luck today Sara , have they definitely said you will be starting tomorrow after planning today. I thought that at my planning session but they gave me app for 3 weeks later !!!, said they had to plan my Rads in that time. Hope you do start tomorrow though.
my blister thing looks calmer so hopefully will be given all clear to start on thurs :-)
