Thanks Mishy, will be sure t look that booklet up when I next go.
Shi, no green tea? No-one told me that, I drink it everyday!
Well I’ve been eating garlic the whole time and never knew that one my onc never mentioned it he told me to just avoid shellfish raw eggs date’s on food and cook it well he told me other than than eat what you enjoy unless it makes you sick and he also told me turmeric is good but definitely no grapefruit mind that’s the same with a few drugs related grapefruit I’m slightly paranoid red garlic now as noone told me that I couldn’t have it!
Oh and just to let you know carrots are very good when going through treatment and double checked onion and garlic good immune system boosters as well as tomatos!! Food Ed lesson over October ladies ???
I heard that turmeric and black pepper tablets are very good for you. I have been having garlic too!
SueW my treatment is at 2.50 tomorrow but as i am seeing onc at 2.20 i am expecting to be late!!
My number 4 haircut is refreshing to be honest. No hair dropping all over the place anymore and my head feels better - still tender though! Have worn my wig all day but now sitting letting the air get to my head. I have a bottle of coconut oil from yhe body shop - does anyone know it that ok to use on our scalps.
Shi, how are your levels today?
Ali my head is shaved to number 2 and I like the wash and go feel
Good luck for tomorrow
My appointments never seem to coincide I constantly go back and forth x
Mishy I was told the same as you re: diet. I’m not going to stop with the garlic, tumuric or green tea as these are all supposed to be good for you. Don’t have any of these in excess so think it’ll be ok.
Ali, I would think coconut oil would be ok as it is natural and anti-bacterial. I did read somewhere that almond oil is good.
It was my one who told me no matcha, green tea or tumeric or garlic or rosehip stuff, I’ve only followed as guided by my onc. But look at where I’ve been for 5 days now going into day bloody 6 and look where you all are … so my onc’s wrong then obviously by the look of it. Love and sparkles ??
shi xx
My onc, predictive bloody text. Shi xx
Sorry for language in there ladies, I just wish I was home now but could be looking at next week now, levels are very very slowly creating up but not quick enough. Wishing everyone well with appointments tomorrow, jencat hope you are still doing ok, chaffinch hope you ok and hubbies ok, I could do with your ? you had earlier. Love and sparkles to everyone ???shi xx
Hi all, just dropping in for the evening and saw the food convo - I have been mad on green tea since diagnosis due to the data re cancer. Just double checked and seems there are two types of chemo agents where it is proven to be bad but neither for breast cancer chemo drugs. So am going to continue drinking (in moderation)
Nutrition is a bonkers one - I am studying it at the moment (only year 1) but it gets mega complicated with cancer - there are usually as many studies that say something is good as there are say it is bad. So when it comes to food and chemo the rule of thumb seems to be the doses you can eat are likely to be ok but going above your rda through supplementation is worth checking out first. (Except grapefruit which is true with loads of medicines) If you have a nutritionist who is supplementing you because of a deficiency or issue then something to discuss with onc as they can probably say if there are any risks that they can see (but probably won’t know much about whether it is good for you).
I am having all my nutritional genetics checked out at the moment due to this TN bully that rocked up to the party - but I am a bit nuts too ?
Hair shorn - not sure how I feel… it is a good cut but not sure if it should be in me!!! Still at least it isn’t Wee Jimmy Krankie ?
Hope everyone’s nights are going ok.
Jencat sorry to hear about the sickness 
Shri hope those blood cells buck up their ideas overnight ??
Ruth XX
You follow his lead Shi to be honest they a seem to be telling us different things it may be depending on the doc and the treatment xxx
Hi Shi just read your comment - it must be so frustrating being in hospital waiting and waiting - you are doing an amazing job staying positive ??? We will celebrate your release
I think oncs are pretty nervous about foods from what I can see so reckon the advice we will get from each of ours will be as wide ranging as our constipation meds ?
Ruth thanks for post below, I’m going to ask to speak to hospital dietician about this because everyone who taking what I want to take is getting through the chemo and managing the side effects very tough but getting through and I’m stuck in casa nhs. I am sure you are more Sharon Stone when she had short hair Ruth we’ll not have any jimmy crankies hair going on, till we all start growing it back, let’s look forward to that day when we can share tuft growth and inch growth, we’ll never be so pleased to see an inch ladies ???love and sparkles shi ???xx
Ha ha Ruth you are so right! Advice differs greatly, I think I said before that most nhs doesn’t seem to know much about nutrition. I’ve also had a bit of a look into nutrition when I was diagnosed to see if I could do anything to help myself but research and advice is conflicting. Think we have to look into things ourselves, discuss with professionals and make our own decisions!
Shi, I hope things look up for you soon, you are doing so well to stay so positive, not sure if I could manage it. I’m sending you some love and sparkles ????As you dish so many out you must be getting short, hopefully they’ll increase your WBC and you can get yourself home!
Thanks Shi ? maybe I can be as kick ass as Sharon Stone when I go in tomorrow too
Thank you, think the realisation today if I dont get Home in next few days, I will be loosing and having to clipper my hair off in hospital, not the privacy of my own home where I could get used to it on my own and come to terms with loosing my hair, no if I am still here in casa nhs, it will be with no dignity and no privacy and I won’t even be able to put something nice on to make myself feel better, because I will be here in pj’s in hospital, sorry 1st time I’ve allowed things to really get to me. Sorry everyone. I love you all dearly and appreciate your kindness and support in thi journey. Love and sparkles shi ???xx
Hi, I started on Oct 2nd and seem to be an oddity in that my regime is T-FEC rather than FEC-T. I’m not sure why that is. Which is usually worse, the T or Fec? I didn’t have any sickness with my first one. I also wore a cold cap, which was hell for the first 15mins and then ok. Has anyone heard of cold anklets and wrist bands? i presume that is to help with nail and neuropathy problems. I’ve got my flu jab on Friday, before next Monday’s next chemo round. I couldn’t have it before as I was on antibiotics for a uti.
I’m really looking for advice on nail oils. I dont want to start wearing dark nail polish, as some advise. Or any polish at all, for that matter.
Oh Shi Sending you as many sparkles and positive vibes as I can. ???
I am sat watching the bake off with a scarf around my head and lipstick on to make myself feel better ?
Shi losing my hair is hospital was my dread too! Bit listen you cant change things. You are there for your own good. At least they know for next time and hopefully will take steps so this doesnt happrn again. Get your mum to bring a hat in or something just on case you start shedding. Are you on iv antibiotics? My GP told me that they do have iv nurses who can administer them at home. Thos journey is a real lesson to use Shi and not always a lesson we like! Hope your WBC’s are up tomorrow xx
Thanks Ruth Hi buddy fan if you go back on the thread a couple of days or so think we covered the nails bit and a few things, hope that helps with that for you ??love and sparkles shi xx