Thanks Nicky, that’s a very good point! Like you say we live with the uncertainty of not knowing if and when this horrible disease is going to take us!
Hugs Janette xx
Barton my Consultant filled out a DS1500 (and told me not to read it!!) I did not have to fill in or answer anything else and get the higher rate PIP. Hope that helps xx
Hi everyone,
I asked my registrar about completing a DS 1500. She referered me to my BCN who referred me to the local McMillan moneymatters advisor. I had a meeting with her basically filling in all my name,address , gp details. She got all the medical bits filled from my BCN. I didn’t see the finished article. The McMillan advisor phoned with the PIP people with all the details and I was awarded PIP in about a fortnight. Totally stress free. They were all just brilliant. I got enhanced rate and that even all though I still work. I even managed to get a bus pass but aI didn’t go as far as blue badge. I’d say your local McMillan advisers don’t seem to take the 6month thing as literallt as some doctors. Best wishes xxx
Hiya Barton .soooo glad u got pip …for once I gave good advice !!
You deserve it as u have limited mobility and that’s what its for!!
Put it this way …neither of us will be running marathons or bungee jumping off John Lewis !!!
Carolyn xxxx
So Barton after our coffee on Monday …u don’t fancy a jog along the quay afterwards then? Ha ha …
You now have options as finances will be a bit more stable with pip.
Carolyn xxx
Barton, so glad you finally did it…i’m sure you will get something…let uus know. x
Yeyyy! Brilliant news Barton, it takes sooo much pressure off when we’re going through enough living with this disease.
It allowed me to cut my hours at work to just 12 per week as like you I get very tired. My PIP is due for renewal in a few months and I’m dreading it! Just hoping my lovely doctor fills my DS 1500 in again.
Hugs Janette xxx
Hi Barton,
So glad you got awarded enhanced PIP. It takes so much pressure off. Like you I would never have applied for it had it to been for the encouragement of the ladies on this site. What a team!
Best wishes xxx
Brilliant news Barton…i couldnt live without mine. At least it eases one worry for you and gives you more time to concemtrate on yourself. x
Yikes, I’ve just received my renewal letter for my PIP! I’ve been dreading this coming. There is no form with it just a number to ring? Haven’t rang it as yet! Has anyone done a renewal claim yet?
Last time I did nothing, a lovely lady from Welfare Rights filled everything in for me and my GP did my DS1500 form!
Janette xxx
Thanks Barton, well I’m actually at my doctors Friday for my zoladex so will speak to him then, also I’ve left a message for the same lady at welfare rights to give me a call tomorrow to see if she can direct me in the right direction.
Hugs Janette xxx
Well saw my GP yesterday and he is happy to fill in a DS1500 form for me just need to collect it Tuesday and the macmillan welfare rights lady will do the rest! So hopefully everything will get sorted soon.
Janette xx
Hi ethel.
I felt the same. My insurances paid out too because i was terminal and of the possililty the cancer could spread within 12 months. Its a shock when you see what the onc has written but that was three years ago and im still going strong. i got a new car with my mobility. Have you got the disabled badge. If not apply. They are really handy for parking especially when we have so many hospital appointments.
Enjoy your new car and stop worrying xx
Barton, did you get awarded PIP at the higher rate?? If so you are automatically entitled to the blue badge it’s just a case of applying for it.
Hugs Janette xx
Barton
I have one of those loo keys …very useful but its huge and as I carry a small messenger bag most of the time …it takes up so much space …to be honest …I have had mine a year now and never used it !!
Carolyn xxx
I do think that is is really great that you are all succeeding in getting PIP.
The only reason im not applying is because I really want to travel and will need travel insurance…
the first question I always get asked is, has anyone ever told you, you are ‘terminal’…so once I ask my gp to fill in the forms…its going to be on my record as ‘terminal’ and so unfortunately, theres a conflict of interest there.
the last time I travelled to oz, I had to supply records of the previous Two years appointments with my doctors, detailling the reason.
I also have a friend who is a gp. She says that in the event of a claim, insurance companies contact the gp for a printout. So, sadly, I havent applied for PIP. ?
Moijanxx
Thank you. It cost me more than my air fare to Oz last time to get insured, tho. I might consider it after my trip…
moijan xx
I understand and accept all point of view so far, however, I do have quite a few other bits and prices, apart from chemo/bc which would need to be declared and one company knew ndly told me that no one would touch me with a barge pole! I actually know that isn’t true… it was staysure and I still get ads from them and have complained.
I just don’t want to further complicate stuff for myself just now… moijanxx
Hi the Macmillan welfare worker was looking into me applying for PIP but she rang me today to say that my Onc doesn’t think i am ready for it yet. Considering he was suggesting that i may prefer to have just palliative care rather than any chemotherapy only a month ago I’m not sure what to make of that. I applied for PiP last year, a few months before being diagnosed with SBC as I was having mobility issues but was turned dosn as they said i could walk more than 20 metres, I argued that I couldn’t walk more than 20 metres without being in pain or out of breath but they refused my appeal. I’m not sure what to do next as i had to take early retirement a few years ago and the extra money would be useful.
Sandra
Hi Sandra, yes it is harsh!
My onc said exactly the same though as did my Mac nurse, so I asked my GP who was more than happy to fill in the DS1500 form in…don’t give up you are more than intitled to it!
Hugs Janette xxx