Ps Dizzy, no problem being The youngest in the group, as the old joke goes - How to look, slim, young and beautiful? Hang out with fat, old ugly people, works for me xx
Sue, good luck today, hope it’s good news and you can relax.
Lesley, it would take a lot more than that to make me look young slim and beautiful! But I was never any of those when I was young, so it would need a miracle now…Though if I did as much walking as you do it would do me good.
Janey, Clair and Beth, thinking of you, and hope you all have a better day today, you’re heroes.
Charys, how is your training going, and when does it finish? You’re very quiet about the work front, hope you too are feeling okay.
Rubycat, hope the mother in law situation has improved, thinking of you.
Helena, hope you have a good day today, a lazy one if it’s your day off, those rads are still cooking…
Lily, take it easy on the DIY, it’s easy to do too much and then it gets you down because you’re tired. So hope you have a restful day planned.
Delly, glad you’re seeing a support worker, and hope the dosage on the medication works out okay for you. Moijan, Ann, Marydan, and anyone I’ve forgotten, have a good day all.
And Lee, I’m jealous of your summer weather, not sure if you’re on your camping trip now, but good night…!
Hi There everyone, too many to list lolxx
lots of gushng, refreshing rain here!
Wot? No Charys? Methinks shes spring cleaning her arboretum again xx
see you later, Moijanx
Aah Rubycat, this sounds like a tough time for you.xx sorry you are also in pain
Love and hugs to everyone who is going through a tough time… and this weather doesn’t help
Hugs
moijan
Delly - that sounds a good session with your support worker, at the end of the day you know your own body what it will and will not tolerate so any meds have to work with you not against as that will just be counterproductive. I so hope that you can get something sorted to help with your hands. Don’t know what your door handles are like but it might be worth asking if they can get changed as well to help xxx
Sue - sending lots of og good vibes for your appointment today.
Ruby - I am so sorry that you have so much stuff going on at the moment which really cant be helping with your back problems, it is the devil and the deep blue sea with backs you want to rest because it is sore but you know if you dont move around it will not help either, sending you a big hug. What a lovely dedication her having MIL name as part of hers
Ann - oh wow I am loving the pic, keep it up, sunshine on a very wet dull day here in Birmingham
Dizzy - work day for me today, only 4 hours though, I had a bit of a funny turn but think it was down to dehydration more than anything but I am fine now. Work again tomorrow and then off til next week, although I am going to do an extra 4 hours working on Thursday as well to see how I go. How are you mate?
Lesley - hope the “prick” has gone well today
Lily, Moijan and everyone else I might have missed hope you are all having a good day.
Helena xxx
Afternoon, yes, persisting down here too. Lucky Ann (rude jokes spring to mind every time someone says Bangkok). Oh Ruby, you are going through it, still it must have been a huge relief to get an ok bone scan result, though not much compensation when you’re in so much pain.
Pricks went ok, but as soon as she put them in the left side of my neck and head I got an instant headache, first tine that’s happened! It did ease up after about 10 mins and stopped completely shortly after and been ok since, it will be back about 8ish tonight though, only had four days this year when it hasnt paid a visit, so faithful, it rarely Let’s me down.
Was hoping for news from Sue and Janey when I got in, though don’t know what times their appointments are.
Love the fairy picture, I’ve always loved fairies, and you know I’ve got some at the Bottom of my garden, though Charys did try and pinch them once but they found their way home.
Well, I was young once, been slim _most _of my life (Have over indulged and whacked on an extra stone or so a couple of times) but never been beautiful, my sisters used up all the pretty genes before I came along so I choose funny instead, sometimes ha ha, sometimes perculiar.
Hope it’s a better day for those of you at work and you’re pacing yourselves and not overdoing it xx
Rubycat, well done for phoning for your results, and great that the bone scan is fine. But I’m miffed on your behalf that you can’t get a doctor’s appointment for four weeks when they are telling you that you need one.
Lesley, you definitely did get the family funny gene, I have never given a thought to Bangkok before! I wish I could say I’ve always been slim, I have a lifelong battle to stay at a respectable weight. I’ve occasionally dieted down to slim but never been able to stay there, I’m a comfort eater (and drinker!)
Helena, so what was your funny turn? It sounds like working through rads and going back again so quickly afterwards has been a bit much? Anyway, hope you’re better now.
Afternoon you lovely lovely friends. I hope you are still headache free Lesley. Rubycat you’ve got one good news message from me elsewhere but this message is a big hug one for you and all the family, what a tough tough time. I hope work has been ok today Helena, Beth and Clair.
Well, It was a bit of a squash but I felt I had you all there with me for both meetings. Easiest one to feed back on is the manager one. He was suitably contrite and I now have my laptop and feeling far less agitated about work, but still shattered. You would have been proud of my assertive skills - it’s Rubycat’s big pants what did it ?
The genetic counselling appointment I found riveting while there, but now I’m ruminating - oh dear! It looks like I’m going forward for testing. As I’ve had 2 primaries, Mum had two primaries, Grandmother 2 etc; and with other symptoms, the counsellor (although it wasn’t counselling as we know it!) thinks I may have something called Cowden syndrome or possibly Lynch syndrome, most likely the former. However, it will be discussed at the team meeting tomorrow and the consultant may think I’m not at risk and not to test, but she thinks that would be unlikely. If I do have it, the risks are for further BC, bladder, thyroid, skin and (if I had one still!) endometrial cancer. Obviously concerned about my daughter and broader family. It will take a few months to explore apparently. Not sure how I’m feeling - I guess if it is genetic, then I can stop beating myself up about being overweight (I will never be a skinny one either Dizzy!), eating too much dairy or whatever the papers say this week!!
Anyhow I’m now home with Netflix and a cuppa and reading through all the posts. What a fabulous bunch. Hugs to all of you. Sue, hoping you will check in soon and you’ve had a good news day. Charys hope you are ok off radar but ok somewhere and Delly you must have pins and needles after all that virtual hugging! Lily, Moijan, Marydan and Ann (Lesley only you with the Bangkok!!) - glad I have monkey arms, as stretching around you all! Xxx
Hellooo allllll,
Sorry I’ve been absent, I’m actually decorating my daughter’s bathroom and I’m only here because I’ve just had a ‘screwdriver injury’ i.e. trying to open the paint tin lid with the screwdriver I slipped and have got myself a long cut across my palm. Think I’ll stop for today, as this morning I slipped with the scraper and cut my thumb lol Anyhows…what’s been going on here then…I’ll have a quick read back…
Hi Fluffies,
apologies for not name checking you all - i just simply do not have that brain capacity yet.
Thank you for all your wonderful wishes and thoughts.
So glad to hear the bone scan came out ok for you Rubycat - and hat off for you taking the initiative! Hugs for yu having to deal with such distressing family issues. It is such a hard thing to do, when you yourself are not feeling so great.
Janey - glad to know your work issues are sorting themselves out and hope you might feel better.
It has been a most miserable day down here - dank, drizzly, foggy - simply yuck!
Had to smile broadly, when in the Holmbush shopping centre and two ladies from Cancer Research UK asked me, whether they could explain what they were all about…I put on my bestest broad smile and pointed at my head - ‘I think I might know’ I chirped, lol - their faces were rather special to see. For me - i do not look like a cancer patient anymore! Fabulous!
Oh, of course, lol - the mammogram of my remaining breast is clear - so no additional primary cancer.
So at this time I am cancerfree!
Spent about an hour with my oncologist discussing my various medications, what to watch out for-in case the devil wants to settle elsewhere and how to get my sex life back. Lol - I will not go into that - that is for the private Group and threads, lol.
So now I have found out that 50% of all secondary breast cancers tend to go to the bones, No surprise then that this is one of the first checks they run. i have also suffered from back pains, at times hardly being able to walk. However m clever oncologist says - well a bone scan may show us what it is not (Rubycat) but an MRI scan will show us what it may be. So I am now waiting for an MRI appointment, which is not being made with urgency though. I just loe his confidence.
He aslo advised me that all sorts of stuf may pop up over the next many years - afer all, one is ageing, but not to worry unless it is a constant, which does no improve - i.e. a cough which lasts 5-6 weeks, or a pain, which is increasing over time, rather than decreasing. Any pain lasting for two weeks or longer - call the BC nurse. So that is that bit sorted.
My bisphosphonate dose was adjusted to be with the latest research and calcium and Vitamin D doses decided. So I have the Letrozole and all of the above to keep the darned thing at bay and ensure my bones stay healthy.
No zimmer frame for me yet!
So now onwards to the Moving Forward course on Thursday and my surgeon on Monday.
My next oncologist appointment is at the end of July, when I shall be signed off - so great that they are making so sure all is well.
Huge hugs to all - might catch you later.
Sue xx
A woohoosue from me too - actually wwoohoosue seems quite catchy in a luscious Lesley crafty Charys kind of thread - or should that be calamity Charys?! Ouch, hope you’re ok there Missus! Xx
Oh Helena, what a purrrrrrfect smile that is!
Chariys - take your own advice - look after yourself, lol - the walls will be there for a long time to come!
And you are right - I have
Hugs
Sue x
Yay for Sue, so happy and so relieved for you yay, yay, and yay again. Hope youve got a bottle of bubbly to celebrate xx
Charys, think you’ve got a touch of the clumsy gene today, welcome to my world, Im The clumiestbperson I know, but you’re the craft queen, you must have been over tired.
Himself has just had an “episode” frightened us both! He’s fine now thankfully, but time to ring the docs to get wheels in motion for a referral at the hospital for his gullet/oesophagus stretching procedure to been done pdq. I’ll ring surgery in the morning. I’ve got an appointment with the counsellor tomorrow. Not sure about it, but as the lovely nurse that is arranging all the other stuff for me recommended it and arranged I feel Ive got to go along, plus all of you who have had it say you’ve found it helpful. Just worried that things I’ve buried from my past will rear their ugly head, think maybe I’ve read too many books lol. Xx
Sue that is totally fantastic news <3. Xxxxxxxx
Thank you all for your wishes and being so pleased for me - it is so heart warming…
It shall be a glass of red wine tonight - usually do not drink on my own, lol - but tonight will be the exception, especially as I cooked some venison ragout for tonight…which has some red wine it it, too.
Love and hugs
Sue x
Evening all
firstly…
sue and rubycat…I am so very happy for you both. The sense of relief must be tangible and the thought of having to wait for test results again would terrify me. It’s so very hard not to think that every ache or pain isn’t something sinister and I’m so glad you’ve both had these excellent results. Xxxx ???
janey. Genetic testing is something I’ve been thinking about. It’s not been mentioned to me at all during this process but as mum and I were diagnosed with cancer in the same year, granted differing types, and my sister has 6 monthly smears following issues over a decade ago, it is something I’ve thought about asking. There’s a large part of me that doesn’t want to find out but if I don’t ask, I’ll never know if it’s something we should do.
Ive had a better day today and have felt less emotional which is an improvement! My cold is still doing my head in and today if I sniffed, my nose made some wierd honking noise. Not attractive but was the source of much laughter in the office. I think my bra has been digging in today as I have a sore rib under my breast. I think it’s come from leaning over my desk for too long. I am pushing back the thoughts that it’s anything more than that. Any bloody twinge these days and I can feel the fear and panic returning. Need to get a grip. I used to get it now and then before BC, and all the scans that were done before surgery showed everything was fine. I need to remember that!!! Arghhhh I want the old pragmatic me back as I wouldn’t have given it a second thought previously!!!
there’s been so much other stuff happening on here today! There were 3 pages to catch up on from 10pm last night lol so apologies if I don’t comment on everything - my post would be massive and would give Delly a run for her money!!!
sending everyone hugs and love xxx
Rubycat
i did want to say that I’m thinking about you and sending love as you deal with things happening with your mum in law. Saying goodbye to loved ones is so very hard and I found it almost impossible with my father in law. Once his drivers were put in we knew that it wouldn’t be long but we took great comfort in knowing that the medication was keeping him comfortable in his final days.
I am so sorry if I am saying something that isn’t appropriate, but we found Macmillan’s and Marie Curie’s online guides very helpful. They detail what happens towards the end and it was exactly as it said and it was comforting to us all knowing everything was ‘normal’. Again, I am really sorry if this isn’t appropriate.
Huge hug to you xxx
Lady Helena, no wonder you got your community award, you give a comforting word to everyone, thank you xx
Clair and Beth, so glad both your working days were a bit better for you today, hoping it’s the same tomorrow. Sue, you weren’t on your own drinking your wine, we were with you xx
Hugs to everyone, too tired to mention all by name, think it’s an early night for me, pricks always make me tired, might as well try and get some sleep in before flushes kick in. Sweet dreams all xx
Janey and Beth
Great minds. Ace pics. That was the first thing I did today xxxx