My biggest fear is how on earth am I going to do without being on here with you all for 5 hours 
and then I will have to spend ages catching up with you all 
Helena xxx
Have a lovely Monday everyone whatever your doing <3 xxx
Hi all. I had a brilliant four days away after s rocky start. Claire I also felt permanently hot which is strange for me because I am usually the opposite with cold hands and feet and my hands were warm. I followed the oncologist advice and stopped the tamoxifen on Friday and had a horrible night, didn’t sleep and my mind would not stop. Saturday started getting some energy back and the headaches eased. Sunday headache didn’t come on til the evening and today I didn’t have it at all. It took a couple of days but I started feeling happier and the family noticed my eyes were sparkly again and I had stopped frowning. The headaches, fatigue and dizziness really took it out of me. Nervous about resuming it but prefer to be active in preventing a cancer recurrence. Looking forward to working on a solution with the oncologist on Thursday. Lovely to read you all xxx
Hello 
I hope everyone has had a good day and all your appointments or work days have been ok.
Today was the first day I felt like my old self for a bit I and even told someone off for doing something they shouldn’t but then went on a guilt trip wondering if I spoke to harshly, oh dear mood swings.
Lee I’m so glad you had a lovely holiday. I really hope the oncologist can help you. Xxxx
Evening all
Well an extra hour worked today felt ok, I have had a bit of a sleep this afternoon for 10 minutes and feel fine, the proof will be at the end of my stint on Thursday as I havent worked one since last November.
Hope everyone is well, I am going to spend some time catching up with all the posts today
Helena xxx
Hello! Hope your days have gone well. Lesley how did it go? A long half day for me today - after summoning up the energy for the fatigue course!!
Call from the genetics service and they want me to meet with a consultant in March. I guess if I have got this bloomin genetic flaw I will be interesting!
Going to have to renegotiate jobs at home I think - no more having supper ready for the troops, as I’ll be the one late home. Think it will be a shock to their system!!
Hugs to you all - Delly how are you Mrs?! xx
Good evening Willows,
Janey, yes, you need to stop waiting on everyone, they need to do their bit. It went fine today, but it was only dentist, two fillings done and dusted. Tomorrow is the lympthodema clinic in the morning and telephone appointment late afternoon re injection for frozen shoulder.
Glad work went ok Helena, and glad you enjoyed your break Lee. Hope everyone else is ok. Still no sign of Delly xx
Evening my lovelies
quiet again on here today. Had a really busy day in work today. Got lost trying to find a clients property this morning and ended up 30 minutes late and my day went downhill from there!! I’m really pooped to night so think I’ll be having an early night.
Lost my footing in work today and ended up colliding with a door frame. Given my upper arm on my operated side one hell of a clonk and its sore tonight. Hopefully after all our conversation on lymphodeama last week I’m not going to wake with a sausage arm in the morning!!! Driving around each day is giving me some pain underneath my breas, just above the crease. Think I might put one of those added dressings on under my bra tomorrow to see if that helps. ?
Helena I’m glad work was ok love. Make sure you get sufficient rest.
Janey - you too my lovely!! No overdoing it at home. Families can always help a bit more
clair - glad you’ve had a better day too. Hopefully it’s the start of many more to come. Rotten days in work just translate through to the rest of the day.
Lee - hopefully you are well rested after your trip and hope the onc cones up with a plan fOr your u later in the week
Lesley - first appointment of the week done!! Hopefully they can work some magic on yr shoulder tomorrow.
Have I left anyone out?? Hope not.
Have a lovely evening everyone xxx
Ouch Beth! Not good! You need to stop rushing about (says she who’s always tearing around even though I’ve got all day). Sounds like you’ve had a bad day all round. Hope tomorrow is better xx
Beth
Oh flipping heck, you need to take a page out of serene Helena’s book, I am not charging round any more after my giddy spell last week, please be careful xxx
Lesley
And you slow down as well. Oh you have a busy day tomorrow
Janey
Absolutely sounds like you need to get a rota in place for the troops to give you time and space.
Well off to watch the final part of Apple Tree Yard
Love to you all xxxx
Hiyer all, just dropping in to say ‘hiyer all’. All fine here…I see work is taking its toll a bit for a few peeps. ? Beth hope your arm isn’t sausagey? X
Thanks lovely ladies, I’ve grown very attached to my faraway friends. Yesterday I actually stood up on the paddle board, very shaky but did it! Did wonders for the confidence building but have sore shoulders today, so worth it though:). It is hard asking for help around the house, so much easier to do than discuss sometimes but it needs to be done. When I need to sit or lay my body really doesn’t like it when I kept going and I pay for it later in headaches and dizziness. I found just taking myself off to bed with a book gives them all a jolt. Back at work today and had an appraisal; seems I’m doing a good job but need to learn to say No and stop trying to please everyone haha. Okay I can try that, wish me luck xx
Good evening wonderful Willows,
Hope you’re all having a good day and those of you hard at work earning a crust that you haven’t had a too hard a day, and Beth, that you managed not to fall over today.
This morning I set off for my appointment at the lympthodema clinic. I decided to get a taxi as it’s based in one of the outlying villages and would have involved two buses and a long walk. Because of my fear of being late I arrived at 9.10am (appointment 10am). It turned out to be in a converted stable block which is rented out to artisans. No one arrived until 9.40am, so stood there in the freezing cold waiting. The appointment last one hour 25 minutes, very thorough I must say. I thought that as I only had 2 lymph nodes removed for checking I was low risk but apparently not, any snb carries the same risk. She gave me exercises to do twice a day to drain the lymph glands to try and reduce the swelling in the breast. She found the cording and was going to show me how to massage etc but as I’ve got an appointment on Friday about it she left it, but suggested any exercise I’m given, do them before I do the lymph draining ones. She also said the injection for my frozen shoulder BC side does carry risks and could not advise either way. I’m now waiting on the telephone appointment (5.10) to see what the Extended Scope Practioner has to say about whether he is happy to proceed with the injection. I’m beginning to feel a lot more positive about things, especially as she said that despite the swelling and crispy nipple and blackhead thingies my breast is in pretty good shape and the breast muscle tissue is really good… might be lopsided but that’s a small price to pay, I can alway get a chicken fillet to boost the good boob if the exercises don’t get rid of the swelling xx
Beth
How is your arm today xxx
Hurrah! Just had phone appointment and he’s happy to do injection as long as I’m aware of the risks. He then told me to phone and book an appointment. I then had to confess that I’d already booked the appointment st the same time I booked the phone appointment, naughty me! It’s on the 20th, so less than two weeks to wait. Xx
Woohoo Lesley to finally getting somewhere. A busy but productive day today but very weary now I’m home. I popped in on one of our local teams today and was overwhelmed by the welcome.
Lee I am so impressed - I have no ability to stand upright on land let alone on a board!
Hiyer back Charys!
Dizzy a good news day for you. Waiting is still the worst bit I think.
Beth did you stay upright today, or do we both need lessons from superbalanced Lee?! Helena transfer here and organise us!! Xx
That’s brilliant news about your injection Lesley, I’m like you I always arrive 1/2 hour earlier than I should
Hows your arm Beth? I hope you’ve had a better day xxxx
Helena it really does make a difference being in work longer but just go steady as the fatigue creeps up on you xxx
Dizzy that’s good news I must find out when mines due? Xxx
Sending love to.you Ruby xxx xx
Dizzy I hope all us going well with you I miss your messages xxx
Lily, Charys, Mary, Ann, Lee, Sue and everyone else I hope your all well xxxxx
Janey I’ve set up a home plan so that who ever has the day off they do.the hoovering and washing. Hubby has been fabulous and if he’s home before me he’ll start making tea or sandwiches. I really couldn’t manage without their help. Xxxxx
Work was all good again, I feel like I’ve turned a corner with my confidence but
I’ve found it a huge struggle with the tiredness thank goodness for half terms.
I finally got a drs appointment tomorrow to get this period pain stuff sorted, I’m really hoping it’s not a side effect from the tamoxifen but when I read up about it does sound like it might be! catch up later tons of love Clair xxxxxxxx
Oops that meant to say
Delly I hope all is well I miss your messages. Blooming predicted text xxxx
Good evening! ( Said in my best Allo Allo voice)
I’ve had a better day today. Haven’t collided with any walls or furniture and my arm hasn’t swollen up like a sausage with lymphodeama lol Only a short drive out today so I’m not that sore tonight. My breast certainly makes its feelings known if I’ve driven too far or done too much. Who’d have thought heh?
I’ve booked a week off in March and I’m so looking forward. Our rearranged holiday isn’t until June and there is no way I could make it to then without any time off. For my own strength and sanity I will take a week off in March.
Dizzy, I’m so glad your results came back all clear. As I’ve mentioned, I’m sure mine is due this spring. Booo
lesley, sounds like you’ve had a very productive day, if a little cold!! I’m so glad that there seems to be some progress with everything and hopefully that injection will help tremendously.
Clair - it’ll be interesting to see what they say about these period pains. Things are definitely different for me too in that department since starting tamoxifen and some days I feel like I have pains and then the next they’ve gone. Still get nightmare trapped wind on what seems like a regular basis. Boooo damn pills. Please try not to overdo it in work too ( I do know I am a right one saying that!)
Dear Rubycat, glad you are doing ok but sending a cwtch all the same as sortin out ‘arrangements’ is a mine field
Helena - how are you doing? It sounds like work is going ok which is brilliant.
Tired again tonight but think that’s the norm for a while. Looking forward to that new drama on at 9 about Shanon Matthews. If looking forward is the right term to use for such a horrible thing.
Look after yourselves lovely ladies
xxx