September 2024 chemo starters

Oh that sounds horrible not heard of that . Hope it eases soon xx

@naughty_boob hi, Iā€™m on 2nd round of EC atm Doxotaxel to follow for last 3. I was told i was ok to drive as long as i felt well, no dizziness etc, but was a bad idea as just irritated it. Wouldnt have been so bad if it had gone to plan and used the same vein, but new vein is sore. Paracetamol before bed

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My hairs falling out! In clumps! Iā€™m having it cut tomorrow.

Iā€™ve just had my 2nd chemo EC treatment washed hair when I got back totally matted and couldnā€™t get comb through have tried and now have bald patches :pensive: only 3rd week. Need to ring hairdresser tomorrow will need to come off x

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@jules8
So sorryā€¦its rubbish isnt it. Sending love x

Thank you certainly is. Hope youā€™re ok? :kissing_heart::kissing_heart:

Not thought about this as I took have had auxiliary node clearance and PICC in other arm. Due to have my flu and COVID jab next Wednesday. Will ask oncologist on Friday for advice. I am sure your breast nurse would be able to advice.

All the best for the haircut @nicnac17
I had an appointment to get mine cut (was below shoulder length) before cycle one but I chickened out. Had my first treatment on 25th and last night decided the hair was coming off so I put it in little ponytails and my husband chopped it off with the sewing scissors :see_no_evil:. Iā€™m sending it to the Little Princess Trust and he finished me off with his clippers. My head now looks a bit like a microphone but I donā€™t really mind. I was cold in bed though! Once it starts actually coming out heā€™s going to shave it to a number zero, like his own. I was surprised I didnā€™t cry or even feel like crying. We kinda had a laugh about it and my 6 year old found it all very amusing. I hope you get on ok having yours cut :blush:

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Thanks for message hope I can be as strong as you :heart:

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Hope you feel better :smiling_face_with_three_hearts:

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I think if you donā€™t laugh youā€™ll cry. It sounds like youā€™ve dealt with it well and if your kiddo found it amusing sounds like a win to me.
Lovely to send to Little Princess Trust such a brilliant charity.
How do you like your new haircut apart from being cold?

I have short hair anyway so I wasnā€™t too fussed about loosing it but now Iā€™ve got handfuls coming out Iā€™m a bit floored tbh. I was never much into my boobs either and now theyā€™re chopped up Iā€™m kinda floored by that too. :woman_shrugging:t3:

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Itā€™s so hard to know how weā€™ll react to all these things which are happening to us, isnā€™t it? Iā€™ll maybe be a snivelling mess next week when the clumps are coming out! I havenā€™t had short hair since I was about 9 and in my tomboy phase, so I donā€™t love it but itā€™s also not horrific, especially since my sister tidied it up a bit today after my poor husbandā€™s effort :joy: I actually wore my wig today to Tesco and out for lunch and didnā€™t spot anyone staring at me. If you have short hair anyway I think youā€™ll look great, and youā€™ll already be used to the draught on your neck so thatā€™s a bonus. Tbh Iā€™m more worried about losing my eyebrows as Iā€™ve always been quite pleased with how naturally good they are. I didnā€™t think I was particularly vain but it could all unravel shortly. Hopefully the silver lining will be no longer needing to pluck my chin. Iā€™ll be very annoyed if those are the hairs which decide to stay put!

:rofl::rofl::rofl::rofl: youā€™ve made me laugh. I bet youā€™re right those bloody chin hairs will be robust and not bloody budge. I also think my grey hairs will stay and my black hairs will fall out too. Umm eyebrows I think Iā€™m like you, mine are pretty good too, good shape, dark theyā€™ll probably fall away too. Hopefully legs hairs will do one forever :rofl:.
Iā€™m trying to get a full nights sleep without waking I almost succeeded last night so Iā€™m hoping tonightā€™s the night. Apart from day 1 Iā€™ve woken every night :exploding_head:.

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Hi @sharlou quickly popping over from August thread to say after my 2nd EC my liver was also aggravated. When I got to my treatment for round 3 the oncology nurses wanted the ok from onc to go ahead which they got so went ahead. I had an onc appt before my 4th and levels had reduced again (liver still annoyed by not as much) but onc wasnā€™t concerned. Just to let you know this happened to me too :smiling_face: xx

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You need to get antibiotics from your team with the cystitis, itā€™ll be a uti and need antibiotics. Thatā€™s what happened to me on first chemo and I ended up in casa nhs for 6 days on antibiotics because it was a uti not just cystitis. Please ring your rapid rest number and let your team know. Keep safe :two_hearts::two_hearts::sparkles::sparkles:Shi xx

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@Shi thank you. I did go to the unit and they did a dip test and said it was clear. Maybe I should ring them again :see_no_evil:

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Hi @sunshineandunicorns (great name!!) Iā€™m having my flu and covid jabs today, and because Iā€™ve had node removal and mastectomy on left side snd PICC on right side (like you), Iā€™ve been told Iā€™ve got to have injections in the thigh. (Apparently I can never have jabs or bp readings on my left arm either because of node removal - could cause lymphoedema). I have to have BP readings on my right wrist whilst picc is in.

At my surgery, at flu clinic, they have 2 nurses (one on the left and one on right) and each nurse gives a different jab into each arm. All done in the reception area with a production line of people queuing.

When I told them it had to be in my thigh when booking the jabs, they said theyā€™d come out to the car park and do it there for convenience. Seriously?? I booked with my local pharmacy instead who does it in a small consulting room.

Good luck with jabs! x

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@janie3 Just had mine done & it was a whole thing where the nurse didnā€™t know what to do & had to go ask the doctor so they sat me in a side room till they had decided what to do with me :rofl:. Ended up having it in my thigh. Iā€™m sure it hurts less in the thigh which is a small bonus. Hope yours goes okay today. As if they were going to do you in the car thatā€™s ridiculous.

I would if I were you. Reading the forum recently all your trusts are sounding either very competent or seriously lacking so do double check. I had no temperature but burning wee and it was a uti that required antibiotics. Are you a bit shivery and feeling fluy too? Keep safe :two_hearts::two_hearts::sparkles::sparkles:Shi xx

Thank you so much for this. I havenā€™t been particularly reassured by the nurse this morning, I said I was panicked about spread and she said ā€˜Iā€™m sure itā€™s not the case but we need to do more tests to make sureā€™. So now Iā€™m panicking :grimacing: