September 2024 chemo starters

@Shi i feel okay just burning like mad when I pee. I shall call them again x

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@nicnac17 hope you slept well :sparkling_heart:

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Wow Iā€™m not sure that was very helpful of her! Obviously I donā€™t know which of your liver results are higher I know only one of mine is, but there was no mention of this at all to me and very much like chemo is doing itā€™s job but sadly itā€™s annoying your liver too!! Fingers crossed all is well for you too, but Iā€™d be tempted to try get through to your onc for some reassurance xx

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Well I woke up twice but I do go back to sleep. But oh my how I want to sleep all the way through.
I had a shower this morning and I had huge hands full of hair. I normally have grade 2 at the back and sides and choppy on top - Iā€™ve had grade 2 all over if I get bald patches Iā€™m shaving it all off.
How you getting on with your haircut?

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Years ago they used to say slap yoghurt on :see_no_evil:

It is subsiding slowly. Donā€™t know if itā€™s the Neem soap or the antibiotics that are working their magic.

Or drink cranberry juice. That has worked for me in the past.

How many days post cycle one are you? Iā€™m wondering when mine might start coming out but I guess itā€™s different for everyone. Iā€™m getting used to the short hair. For now itā€™s a no. 6 on top and 3 at the back. I got a cap with fake hair attached online which arrived today and itā€™s not bad. Itā€™ll do for the school run!

I have cycle 2 on Monday so almost 3 weeks. I think Iā€™m just so shocked at one day alls fine the next Iā€™ve got handfuls of it coming out. My 14 yo daughters just said can she shave it off if I get bald patches Iā€™ve said yes.
Where did you get hat with hair from? Iā€™m just looking at beanies and bakers hats at the mo. Although people might think it a bit odd me coming out with a baseball cap and a 30cm ponytail :rofl::rofl::rofl:

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Iā€™m just over a week behind you then. My second cycle is on 16th. The cap was from Amazon. Itā€™s a boring black baseball cap but the hairā€™s not bad looking. I got another one from Etsy which was way more expensive but the hair colour is terrible and it looks more fake than the cheap one so Iā€™m sending it back.

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Sorry to hear more hassle with PICC, hope you get some help.

:smiling_face_with_three_hearts:

I had a clear dip test and they sent my wee off for more detailed lab tests, it was positive from this test. Mine was left for so many days that it spiked my temperature and I was hospitalised.

So please chase them back up if you donā€™t feel any better and double check your temperature.

:smiling_face_with_three_hearts:

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I spoke to the oncology nurse practitioner; she said the good news is the ALT levels are coming down on their own with no intervention but the bad news is theyā€™re still too high for treatment. She said if theyā€™re still high next week they might just do a scan to check for inflammation. She said at this stage they arenā€™t considering it being mets and they think it is the chemo causing it, which is borne out by the fact the levels are coming down on their own.

What a day though - I could sleep for a week. Thanks again for your reassurance today, was much needed and very gratefully received! Xx

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Iā€™ll have a look at Amazon maybe not Etsy then. What cycles are you doing?

@nicnac17 Iā€™ve ordered a ā€˜gym wigā€™ from headscarvesbyciara - they are a bit thinner (& cheaper!) & designed to be worn up which will suit me just fine, let you know what itā€™s like. They also do lots of hats with hair. Saw a recommendation on this site somewhere

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Iā€™m a day behind you & have cycle 2 on Tuesday - yesterday evening & today my hair seems to have really upped the ante in coming out, Iā€™ve noticed it significantly since yesterday. I am on Abraxane (a taxol) & had (stupidly) convinced myself as I am cold capping that it would be more slow & gradual decline till I got to EC which I had read is much harsher on hair. Perhaps this is slow & gradual but its made me feel pretty shite about everything.
Added to that the blood thinner injections make the filgastrim seem like a stroke with a feather! :astonished:

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Iā€™m on EC-D So 3 cycles of EC followed by 3 cycles of Docetaxel. The Etsy one was from headscarves by Ciara and I was disappointed in it tbh. Maybe I just picked the wrong colour and style but, for the price, I expected better. They do get really good reviews. I wish Iā€™d actually gone to the shop, although Iā€™m not sure if there is a physical shop, but the address is in NI about an hour away from where I live. Maybe Iā€™ll send her a message and see if I can go and browse in person. The gym one might suit me better. I hadnā€™t thought of that one @sunshineandunicorns

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@naughty_boob thank you. I am taking my temperature three times a day. It is no worse but no better either :pleading_face:

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I have started with this today! Not pleasant at all. Temperature is fine but if it carries on tomorrow Iā€™ll give the unit a call. Hope you get some relief soon :frowning:

I think we all need this week to be over with now :woman_facepalming:

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Iā€™ll have a look, thanks for that. Yes let us know how you get on with it. Are they itchy those wigs?