Sorry my last post was meant to be in reply to @galdiolus … I’m not with it tonight…
1 Like
Oh wow we are so close well as I said to @pod123 it really shocked me that one day all was OK but the next it was coming out in huge handfuls. It was quite weird but then you said EC is known for this which I didn’t know. Sorry to be so ignorant but what is Abraxane?
I’m with you though about feeling low and shit and have to confess I cried in the shower when my hands and the shower floor was covered in hair. I keep trying to be positive but all these things thrown at us is really traumatic.
1 Like
Aww maybe you should see if there is a shop, I would imagine trying them on would make it easier. I’m googling Gym wig right now.
You’re on the same as me cycle wise then. I’m starting to get jittery about Monday now especially with my hair falling out.
Sorry I should rephrase I wouldn’t say it’s officially “known” for this, more anecdotal from what I’ve read and heard (& clearly there is no difference!).
Abraxane is a different version of paclitaxel, I started my chemo on 10th September but had a severe reaction to the paclifaxel & they had to stop the treatment so put me on the abraxane a week later, it’s also known as nab-paclitaxel.
I’m also wondering about the itchiness of the wigs - not got anything yet so will let you know. Nothing can be as itchy as my head right now tho…I wondered earlier if I had nits (I don’t). It’s so itchy I feel like the cold cap will actually provide some relief! 
I’ve been on their website, which colour did you get? I’m not sure I need to do wigs but I might change my mind in a few weeks. I did like the beanies tho so thanks for that.
1 Like
I went with light chocolate…not sure if it might be a bit light for me but we’ll see
1 Like
When I got my free NHS wig the lady recommended if you couldn’t get your exact colour to go lighter rather than darker. She said darker makes you look paler, and chances are we might all be looking a bit pale from time to time during treatment, and with it coming into winter.
My wig isn’t itchy but I did find it kinda hurt my head muscles (didn’t know I had head muscles but that’s how it felt). I wore it for a few hours yesterday for the first time but I do still have all my short hair. You can get a bamboo cap thing to wear underneath. The beanie with hair I got was warm chocolate and it was far too dark. Looking at the website now perhaps light chocolate would’ve been better for me.
2 Likes
I actually think I’m going to end up not bothering with a wig, I find them super itchy. Bit sad about it really as I really love one of them.
I’ve been out today and yesterday with no head covering at all. I’ve got barely any hair on my crown now and bald patches on both sides. I just kind of thought…well if people want to stare it says more about them than it does me. So bugrit 
6 Likes
You saying about nits, for about the last 4 days my hair has been painful for want of a better word. To put my hand in my hair hurt, it was so painful then last night and today it’s decided to scarper. It’s just all odd. So you saying about head muscles hurting @pod123 on top of hurting hair I’m not sure I want to go there 
.
@sharlou I think I’m with you I’m not thinking about wigs I’m just going to see what happens. Tbh I’ve always wanted a Mohican. I wanted to do it when I was on maternity leave, I didn’t. I wanted to do it in first lock down, I didn’t so maybe now’s the time I do like hats so I think that’s my head cover of choice but not turbans and bows that’s not for me.
2 Likes
I as relived to take my last injection last night but then a few hours later l had the most horrendous back pain. It was like being in labour! Hope it’s a one off and I’ve put it down to the injection - did anyone else have this ? It was truly awful .
@epic1 is that the filgrastrim? If it is absolutely made me feel awful, back and joint pain and I dreaded taking it.
Some have said taking an antihistamine helps and paracetamol. I didn’t do this as hadn’t checked with the oncologist but I am seeing her Monday so will ask then.
Hope you start to feel better soon xx
@galdiolus yes filgatrim. I’ve been taking an anti histamine and paracetamol before each one and been fine. This was the last of 7 . I’ve hardly slept . It’s a shame as yesterday I felt really good - normal. How are you doing ?
@epic1 the day 7 one was the worse one for me and the only day I had Diarrhoea 
I was so relieved when I did the last one.
I’m doing okay I think. Ended up with oral thrush / sore mouth but other than the general aches feel like I got away quite lightly. How are you doing? Xx
@galdiolus im ok. First week was rough with sickness and feeling spaced out but felt good last couple of days. I can’t taste much but I can live with that if it’s short term! I’m day 11 . Gonna be a long haul for sure . I wonder if these single injections are any better? Pegfilstrim ? I’m gonna ask. I hate needles so doing 7 is torture
@epic1 glad to hear. My taste has been affected too but like you say we can live with that. I’m going to ask about the single injection @sharlou is having that so it is possible. Hope you carry on improving xx
1 Like
Does the antihistamine contain loratadine? I was advised to take and I find they help the pain more.
@galdiolus I’m only having 5 injections why am I 5 and you guys 7. I don’t understand why everything is so different.
@nicnac17 o thought I would ask about 5. How many cycles have you had? This was just my first one so wonder if they start higher and reduce down?
I think I could manage 5.
Maybe it’s the actual chemo as well? I am having 6 rounds of TC phesgo x