The nose bleeds must be “normal” then. I’ll ask about it on Tuesday.
I think it was bad of them not to know I was taking Letrozole. There’ve been other blips - they entered someone else’s bloods in my records, gave me someone else’s form to sign and thought I’d been hospitalised with gut problems when I hadn’t. It’s scary that their record keeping is sloppy.
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I definitely have had some hard bloody snots. A couple of days too when wiping that fresh blood was visible but not gushers or proper nosebleeds per se. I was told it was probably my nose hairs falling out. At one stage my nostrils did swell up and I went to the GP who prescribed me Naseptin and that cleared it up. I still have loads left and use it as soon as it starts building up and getting crusty.
That’s not good at all @magl! I do feel like there’s no cohesion between the breast surgery team and the oncology team though. It’s like you just get handed back and forth with no ongoing communication. So glad you told the oncologist!
I had similar but it was the previous weeks blood test. Then I nearly didn’t get a tablet she thought she had given me then was given the wrong one nearly I’m at home now so it’s much better. I have to chase people up alot though. I was told chemo would be Thursday not Friday then it changed to Friday but I wasn’t told. I just ask lots of questions/make suggestions (they don’t always happen but at least I’ve tried). Ha.
I get that impression too. I got a letter today telling me to make an appointment with GP to get a prescription for something-or-other acid to go with the Letrozole so that’s another mistake.
It doesn’t help that the chemo ward is being refurbished and treatment has been squeezed into another small space for the next six months. There’s an air of chaos about the place.
I went one morning at appointed time, 9.30am, and they told me they weren’t expecting me till 11.30am and the pharmacy couldn’t do it any sooner. Luckily I had my appointments list with me and they were very apologetic but I still had to hang about for 2 hours.
You’re lucky to be doing it all at home but in some ways I’d rather be at the hospital in case anything goes wrong.
I’ve looked it up now. Yes, platelets. Some sites suggest smearing Vaseline in your nose. I’ll try that cos my nostrils feel a bit raw.
Vaseline just made me want to wipe my nose more and I think it made it worse, constantly feeling moist made it feel like it was running.
I have nose rubbing issues anyway due to seasonal allergies (Winter is the only time my nose is fine usually) and have split my septum a few of times cos I rub too hard, my GP has told me in the past to just take my antihistamines and stop rubbing/wiping so much 
. I have no self control but loathe an itchy schnoz.
I found the Naseptin stopped the swelling, the blood AND the crustiness really quickly, without the moistness. If vaseline doesn’t work I definitely recommend talking to your GP. Was such a relief that it worked so quickly (but it is an antibiotic so bound to be more effective).
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I might ring the helpline tomorrow to see what they have to say. I’ve never rung it yet because I thought it was only for if I was at death’s door but the Onc yesterday said it’s to report ANY symptoms. No matter what.
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My eyebrows have started falling out which made me cry not the allergic reaction that has covered my face with acne like spots or having a deranged liver. But the demise of my eyebrows. I think it’s looking in the mirror and not looking like me But a sick person.
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Yeah I get lectured all the time about using the helpline for anything at all, but I don’t really like to, don’t know why!
I’ve lost most nasal hair I think but I have two nose piercings and I think they’re helping 
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Aw Zainab, it’s so understandable you feel that way, I have some
bald patches in my eyebrows and a small clump of lashes have come out on my right eye. It just feels like you are losing your identity and becoming a cancer poster girl. I try to hard to remind myself that none of this is permanent and it will pass…but it is tough. Big hugs xx
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@Zainab sending a virtual hug. It sucks doesn’t it. I think looking like someone who is having chemotherapy is something I am also struggling to get my head round. Need to have a good cry every now and then 
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Has anyone found their scalp really painful? My hair is shedding loads and my scalp feels like it’s on fire. Currently using aloe gel which is helping a bit but any tips welcome.
Maybe shaving it will help 
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Sitting here contemplating if I should just bloody shave my head already, it’s so tender 2-4 days after chemo I find, even if I only softly comb/brush it (just touching my scalp is uncomfortable). I think it’s a sign of another big shed (I’m down to about 35-45% left I reckon but it’s still chin length, very thin. Think I may invest in a hair trimmer next week and just do it. Sick of hair everywhere.
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@lizk my scalp has felt uncomfortable since the hair started coming out. It’s like when you’ve had your hair in a tight ponytail all day and then taken it down and it feels all sore. I’ve now shaved to a no.1 with the clippers and it’s no less uncomfortable. It’s now also freezing and feels really weird when I put on a hat or the wig, but also weird when it’s naked so I can’t win
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Aah Zainab. Sometimes something comes along that is just the last straw. Sending you a bucket load of sympathy.
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Did you shave it yourself?
Yeah my scalp is tender. I feel like I have phantom hair! A few times I’ve reached up to take my bobble out to relieve my scalp then I remember I don’t have long hair any more 
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Yeah I used my husband’s clippers and he helped tidy it up a bit at the back. We had already cut it and donated my ponytails last week so it was a no.6 since then. Today I’d just had enough of the shedding so we went for it. I think I’ll probably get him to do it without a guard (i.e. number zero) tomorrow. He does his own like that all the time so it should be no problem. Anyway you can’t really go wrong with clippers without the guard
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