September 2024 chemo starters

Funny the way it clings on round the edges.

3 Likes

I think I might buy some. Iā€™d been planning to ring the hairdresser when Iā€™m ready but I think Iā€™d rather do it at home without an audience.

3 Likes

Mine hair is so short Iā€™m now thinking my husbands scalped me!!! My head feels like the moon with craters, lumps and bumps everywhere. Back of my head is black hair front of my head grey hair, it is so cold out. I look awful and feel awful. Iā€™m waiting for hats to turn up & ones arrived itā€™s too big, anotherā€™s been delivered god knows where and two havenā€™t arrived yet!!!

3 Likes

Looking at this photo I think I look like my great grandad!!!

I cannot believe how tired I am on round 2 end of week 1. I really donā€™t want to do anything, and I know Iā€™ve got to but have no motivation at all. NONE! I watched the Holiday today that was nice. Canā€™t read havenā€™t got the attention span, I do like the idea of jigsaw puzzle actually, whoever said that thank you great idea. Iā€™ve got some adult Lego too that I was bought for my chemo journey I could start that. Have done quite a bit of Christmas shopping online too. TV wise canā€™t find anything really, just finished Slow Horses, but can recommend Yellowstone to anyone if you havenā€™t seen it. I may watch again it was so good.

I am going to start kicking my arse and get walking the dog and doing something outdoors I need to do some physical rush of something to boost my endorphins!!! But generally I do feel a bit like a slob, an exhausted, tired slob thatā€™s been scalped!

1 Like

Lack of energy is so hard to combat! Itā€™s such a struggle. I go to sleep every night saying Iā€™m going to do more tomorrow but then I wake up zombiefied :woman_facepalming:

1 Like

@nicnac17 when I asked my oncologist about the side effects moving forward she said the fatigue gets worse so sounds very normal. Donā€™t beat yourself up do what you can and know you are fighting this so your body will be tired. Sending hugs

1 Like

Thats sad to hear @Zainab sending a hug. What chemo are you on. Id been lead to believe to expect this bearer the end of chemo.

1 Like

Im always ringing mine, they are fab

2 Likes

Ive probably lost 50% now. Seeing a hairdresser for advice this week. Round 3, last EC a week tomorrow and im anticipating more loss. Then 3x Dox. Dont know if i should just get it tidied or cropped. I want to carry on with cold cap either way.



9 Likes

I am on weekly Paclitaxel and three weekly carboplatin. I have had to pause due to issues with my liver. Hoping to restart after 2 weeks break. All depends on LF which went to over 400 and should be no more than 40. See oncologist on Thursday.

2 Likes

https://www.amazon.co.uk/FADACHY-Headwear-Scarfs-Alopecia-Turbans/dp/B08CZDKX7J/ref=asc_df_B07WSB9GK9/?tag=googshopuk-21&linkCode=df0&hvadid=696285193871&hvpos=&hvnetw=g&hvrand=17446414231633720681&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=9190749&hvtargid=pla-2281435176938&psc=1&mcid=a8120373033e37458a39a228c1ecc65a&hvocijid=17446414231633720681-B07WSB9GK9-&hvexpln=74&gad_source=1&th=1

Bought some of these, arrived next day. They are nice and easy to use

2 Likes

Oh my gosh you look fab, your hair is doing so well it will be interesting to see what your hairdresser says. :star_struck:

2 Likes

Anyone suffering with a sore itchy scalp, Ive been using Eucerin scalp treatment balm. It has helped alot. X

3 Likes

Are you still cold capping?

My mate has suggested putting miso paste on food instead of salt. It has lots of health benefits (immune system, bc etc). Sheā€™s a vegetarian. I may get some.

3 Likes

Yeah my oncologist suggested continuing as she thought I havenā€™t lost much! Which baffled me :rofl:Iā€™ve only got one EC left and then Iā€™m moving to paclitaxel and apparently I might start to get regrowth on that, so the bald patches may start to get cover in a few weeks. Thatā€™s the hope anyway!

4 Likes

That sounds like a good idea. Anything made from soya is reputed to be good for preventing breast cancer.
An eco fanatic friend brought me a packet of dried apricot kernels that she was convinced would cure cancer. I looked them up after sheā€™d gone and theyā€™re banned in most countries because they turned into cyanide in your stomach. I junked them.

@nicnac17 Thanks, that was last night when we went out. The length is hiding the extent of the damage tbh. Its so hard to know what to do. Cutting it may expose it more but it may be more comfortable and easier to deal with and the regrowth wonā€™t have so far to go to match it and begin to re style if you know what i mean. I change my mind daily so it will be interesting to see what the hairdresser thinks. My scalp is tender and sleeping on it uncomfortable even with silk pillow/ cap. With the picc line im sleeping on the same side all the time. Grrr fed up of it.

2 Likes

Perhaps we donā€™t use the Helpline because weā€™re tough North Easterners. Youā€™re from Gateshead? Iā€™m from Sunderland.

2 Likes