September Sunbeams 2014

Whitfield will look it up and post when home again. P xx

Congratulations Lou, such lovely news! I got engaged in September and it was so nice to have something positive to focus on, and something positive for people to ask you about, rather than the usual ‘hows the chemo going?’ Talking about venues and food is much nicer than talking about side effects! Enjoy it…and all the champagne people will give you!

 

I have finally emerged from chemo zombie state after FEC4, it was prolonged by a really nasty chesty cold and I have spent the last week super paranoid about temperatures and chest infections. And because my body likes to be miserable all at once, I also had the worst period pains for several days…such joy! I am super pleased that periods are still on track, shame its an unpleasant experience though!

 

In my exciting news of the day…I have head hair regrowth! And eyebrows have started sprouting more hairs as well. I don’t think I’ve ever been so pleased to see stubble before! Is this normal to start regrowing now? I’m worried its going to fall out again, but its nice to see my body is attempting to fix itself.

 

Emma xx

HI Beamies haha to the predictive text! Congratulations on your anniversary Anna must get some tips from you! And well done on the ugly blanket hahaha! You really make me laugh. Day 10 and still couch bound with an unhealthy Deal or No Deal habit forming. Watched the whole of season 3 Breaking Bad also. Oh well could be worse…could be at work LOL !!! Seriously though the cumulative effect of tax re fatigue is ridiculous. Head feels ok but body doesn’t want to follow orders. Such a laborious effort to take daughter to school. Still waking up sweating. Washing up piled high in sink…whoops…Will do it in a minute!! Have a lot of ringing in ears!!! Mostly in bed at night xxxx

Tax 2 done yay! Last chemo on the 31st. Good bye 2014.
Now am a real water girl but the last tax I really struggled to drink it. The taste and the feeling in my mouth was horrid. Can’t touch coffee either. Any ideas on what to have instead?
Congratulations on the anniversary Sam hope ur going to mark it.
Have a good evening xx

Sorry Sam.

Meant Anna. O dear not sure what’s going on. Chemo ready has addled my brain xx

 Char…Ribena is the only thing I can stand with tax mouth!!! The blue one, not the purple :slight_smile: xxx

Evening ladies, just a quickie to say hi, been in bed all day, TAX 2 day 4 and I’m knackered!!
Lol it’s ok Char, it was my 21st anniversary yesterday, had a lovely day, got flowers and steak, that’s me happy!!

Happy Anniversaryfor the weekend Anna, sounds like a lovely marriage you have there, and your knitting sounds great ?,

Glad all timings sorted Pam and another one under your belt!! and hope you’re not too full of cold Den! Xx

I’m drinking carbonated water with PLJ in it, or lemon and green tea, but nothing really tastes wow anymore! Eating chocolate though, not the same but hey, it’s chocolate!! ?

Hope your all ok and well done on another one ticked Char!

It’s bloomin freezing here today, heating on full, much to poor hubby’s discomfort, but not much longer, we are nearly 4 months done!! That’s pretty amazing, and we are still going strong, GIRL POWER!!! Have as great a weekend as poss Sunbeams lots of love xxx Sam

Hi Girls, happy anniversarys to Sam and Anna ?. - I will raise a glass or two to you both- now I can taste it again?.

Char010 - I am a water girl too and when I was on Tax it tasted horrid, thick and nasty - I ended up drink Lemon barley or green tea. Now I’m on Fec and it doesn’t taste to bad.

I saw my onc this week and she’s given me lorazepam to take -to try an help with the sickness - she seems disappointed that everything she’s tried hasn’t worked - but only two more to go?. I’ve got to test them before next chemo as not everyone gets on with them - has anyone else had them? I don’t see her again until after my last chemo - she is away and I didn’t want to see anyone else because she is so lovely - she gave me a kiss and hug when I left. She has so much time for her patients .

Great news about your hair growth Emma?. I’ve cold capped through mine and I’ve just enough hanging on at the moment. Is anyone else cold capping? How are you doing?

Must go and sort dinner out - I’m starving - have a great weekend everyone xx

Nutty I have lorazepam for anxiety nausea to take before chemo, it does stop me freaking out and feeling sick…but it also makes me feel like I’ve had quite a few drinks! It also makes you feel pretty sleepy, which can be a good thing if you are feeling rotten. Sometime I just take half a tab instead of a whole one and I find it just takes the edge off and chills me out, rather than making me feel like I’m completely wasted! Maybe test them out when you haven’t got anywhere important to be or decisions to make! xx

Congrats to u too Sam.
Thanks for the drink advise will defiantly get something tomorrow.

Day 3 post EC chemo so on last anti sickness tab then on to horrid injections from Weds.

DN coming today to look at lady garden wound. Gosh it is taking some time to heal. Can’t wait to have bath or shower as the pic and wound have meant strip washes since October 22nd!

From reading comments Tax seems to really much up taste buds so I need to get some different drink in as I’ve mainly been doing water , read and Orange squash.

Hope everyone has a good weekend.

We will get through this.

Pam x

The heated pad is Dreamland Thermo Therapy type E0801. It is great. I have used the cold cap for four chemos and still have my hair though thinner and little bald latches on crown. Have used hair fibres and they are great for hiding the patches. I hate it but it us worth persevering as I can work and because so few people know about the cancer I can just get on with it. I wear hats outside so not caught out in wind or rain and they protect the roots.
Last day of antibiotics so hopefully my hand is ok. Skin on hand sloughing off which is weird but smothering in creams. Off out to lunch with my sisters and one has a birthday and my mouth is better so looking forward to that. Amazed thought that I am still dropping off really early in the evenings. Never slept so much!
Have a good weekend ladies and hope SEs minimal. P xx

Patches not latches! Two chemos to go.

Pam u can still shower and bath just buy a shower sleeve from boots just don’t allow the water to run too much around that area. I bath with one arm in the air and sleeve on. U might find a bit of dettol in the bath may help the garden too xx

Hello Beamshines,

Oooh isn’t getting enough fluids in a challenge?? I drink ginger cordial (Bottlegreen) and it’s lovely when water loses its thrill…  I’m cold capping, and a painful blinking business it is too. I find good old valium keeps me soft and dozy in the big chair, helps with pain and general panicking. I am very pleased to say that I have still got a pretty full head of hair, yes it’s dry and looks like a cross between Grayson Perry and a bad 1970s clown, but hey, it’s hair! I dye it with vegetable dye from a health food shop and it hasn’t gone green or anything…chemo zombie state still here day 10 of FEC 4. Will probs go to GP next week for advice. Very dizzy and disorientated. Blood pressure??

Good luck chemo queens, love to all Anna XXXXXXXXXXXXXXX

HI guys…well had one complete emotional meltdown yesterday. Combination of things…boiler broke for second time and it was freezing!!! Really had issues this time with body core temp changing. Get shivers and cold to the aching bones then really hot. Also maybe menopausal feelings and sweats. Caught daughters cold which is getting me down. Then got a letter from work saying pay cut to half from December when six month entitlement should take me to mid February. Was gobsmacked and cried eyes out for 4 hours. Was a shock but also because it was from the school Secretary and completely impersonal . What we’ve gone through and continue to go through can only be understood by us. I’ve felt really supported by medical staff you guys and my friends and family. The reality of the harsh working world kicked my butt right out of the chemo bubble. Day 12 I still am struggling round in pjs. Felt crap. But mouth better thank god and can drink tea again. Den if you’re coughing up green stuff you have to get anti biotics as that is a chest infection. I had that round 1 and it got so bad I was nearly choking. Xxxx loads of love

Afternoon Sunbeams, I agree with Rachael, Den you need to get that sorted, quick round of antibiotics to knock it on the head!

Rachael that’s so **bleep**, it’s so impersonal the work world nowadays, all about the money and no care and concern for people, I hope you tell them what for and get it sorted, not easy when you’re feeling like this though eh!! Have you got boiler fixed, another expense!!
We are all such great support for each other, I have great friends and family but I don’t always want to tell them or explain the yucky ness of all this, been up with bad chest pains, I googled it and it’s a SE of TAX, like Peegee had, sort of spasms, has worn off a bit now, temp ok and just normal aches, pains and sore nails, was supposed to be going to the Dickens Day in my village this afternoon, but still in my pit lol, think that’s where I’ll stay aswell, I’m watching Dont tell the bride on loop, I’m feeling very relaxed compared to the grooms on it, so good watching! ?,

Take care girls and big hugs to you all!! Xxx Sam

Hi Pam, yep I’ve had finger and toenails painted black since the start, I think it’s just one of those SE you either get or not, it only lasted a week on the first tax so hopefully same this time ?, the injections I’ve been lucky with I think, from the start only had achy legs with them so I know this chest spasm thing is a tax SE, I’ve been reading lots and it’s quite common, just horrid!! I can handle the pain stuff more than being absolutely shattered, that’s what frustrates me more, like a lot of you have said it just makes you feel so feeble and I’ve definitely NEVER been in that camp before lol, it’ll take a few months but we’ll get back to “normal” as soon as, and feel very proud of ourselves!!

Having beef bourgignon for dinner, then a snooze, for a change ? xxx Sam

Evening Beams,

 

Can they do that Rachael? What total feckers. What does the union say? I was royally shafted too - made redundant on the Friday and found  the breast lump on the Sunday … you couldn’t make it up, and I’m between contracts at my other job. Complete pain.  

 

Hope SEs abating a bit for all you Beams. It’s not like you Sam to be low on energy, hope you can nap, rest, eat meat, watch TV and gather your strength … and Den, that chest needs checking out. I’m off to get checked out too tomorrow; have been too long feeling dizzy. Had steak for supper last night, omg it was so good. I seem to need a lot of flesh right now, and the pinker the better. I am morphing into a sick tiger … give me meat now!

 

Off to get the pork steaks ready … ttfn, Anna