Hi all - it seems to have been very quiet on here for the last few days - hope you’re all ok.
Cress - please wave flag or something to indicate that you are alive and (as) well (as any of us can be in the circumstances) - or was this the week that you were going for a wild weekend at Watford Gap services?
I’m on day 11, I think, and am feeling much better in general.
We went out last night for dinner with a friend and it was lovely, almost like being normal again…
Going to try and make the most of this week and do stuff, before I turn into an insane screaming harpy again with the advent of FEC4 the week after.
Only 3 more FECs to go, only 3 more.
Hi Jellymould
that video made me smile all the way though, was good to see. Cybele,
So glad you are feeling well enough to dinner, these days are all to few ,when we feel normal. Like you said its gone a bit quite on here.
Hope you are all ok, and looking forward to meeting you cressida this afternoon.
lolly
I am alive. Just enjoying a few days of not feeling sh*t, being able to enjoy food (red wine still tastes of vinegar tho), being able to walk more than 20 yrds, being able to be in a place with no immediate toilet, being able to go to the toilet at all, sleeping, not bawling my eyes out all day… I think you get the idea.
Today I am looking forward to meeting Lolly. Tomorrow I am not looking forward to meeting a geneticist and starting the process of finding out if any other bits of me are trying to kill me, and on Wednesday I am not looking forward to meeting GemCarbo no 5 (or 3(a)).
Hi Crackers,
Maybe we’re all hibernating a bit.
I’ve 3 days of feeling good left until chemo on Thursday. It’s my last one (I think). I’m really reluctant to commit that to print because I know most of you have quite a few more to go. I missed 2 doses of F and E. So I really should have 3 more to go instead of 1. So have very mixed feelings. On the one hand I can’t wait to get it over but on the other I feel I’ve cheated and one of Cybele’s demons will track me down.(Don’t mind if it’s Brian though)
Still have loads of Herceptin to get through and radiotherapy starts soon. (As for Tamoxifen: fingers in ears, “la la la la”).
My chemo arm is still pretty sore. Thought that would ease off as it was probaby the Epirubicin’s fault. Still sore. Bloody chemo!.
I got my taste for wine and tea back at the weekend. Such joy. Along with that came such euphoria. I noticed this last time. When I start to feel better I start to feel like a swirling Julie Andrews. Whatever hormone is kicking in, it’s bloody brilliant. What’s the betting it’s oestregen?
No worries Maire - I am now an oficionado on Rose wine. Also a wide variety of beer has kept it’s taste this time. I am very glad you are coming to the end of the chemo nightmare. Enjoy! xxx
Hi all in December, I am from January Jems - should have been December - im not bitter. Anyway I had my second FEC today and just wanted to thank you for giving me the push to ask for Emend - which I did fingers crossed I wont have the se’s I had on 1st chemo - but i am as baldy as a coote. I also have taken antihistamines as well + the betroot juice (thanks Marie). But do not know if my red pee is the E in FEC or the beetroot juice. Im now drinking fizzy Lucozade and fresh pineapple juice.
Hi all
Like Maire, I am just enjoying a few days of feeling relatively normal before Thursday’s Tax…not sure what to expect… i have emend to the ready and some steroids too…as have to start taking them on Wednesday…
Had a good weekend…went to friends for dinner with kids on saturday and the to the pub for lunch with friends. I have this urge to whip Max off (name for wig which makes me look like Max Wall!!! not a good look, especially on leggings days!!)
Am so much more comfortable with no hair but it is a bit chilly!!
Had reflexology today,very relaxing and had a chat with therapist (a bit one way to tell the truth…she doesnt really say much, just nods and says it’s normal to fell like that…???)
Cress - let me know how you get on with the genetisist…Bupa wont cover gene testing, so i have to go through the NHS, BUT there is no history of BC in family so they suspect that it is not gene related… think i am going to have to push,i have a really small female gene pool and i guess it has to start somewhere.
Jelly - loved the video link,., thank you so much!!!
Lots of love all.
Stay strong,
xxx
Hi all in December I’ve popped across from the November Sparklers thread and am interested in the beetroot juice you mention, which I presume is for constipation - or have I got that wrong and it’s for just the opposite? If it’s for constipation can you tell me where you get it or do you literally boil up fresh beetroot. Would be interested in a fairly natural remedy for constipation. Nothing seems to work on me, barring gunpowder!!!
Hi Border Collies,
You can buy beetroot juice from Tesco either on its own (which is vile) or premixed with apple juice. I did try it for constipation but it didnt really work for me. I am using Ortisan cubes which you can buy from Holland and Barratt. It is a natural remedy of fig, clementines and senna leaves. It looks a bit like an oxo cube. I just take half a cube a night and it works really well. I use a whole cube sometimes (when I need the gunpowder ). Hope this helps.
Lee X (January Jems)
Border C-Someone suggested beetroot juice to me as an all round miracle juice. I googled it and there seems to be some evidence that it boosts the immune system. Unfortunately I found it so minging that I gave up drinking it.
Mandy P-Would love to se you a la Max Wall. That must be some wig. I’m thinking of going along to the ‘talking heads’ session at my local Maggie’s centre to get some head wear advice as I can’t be bothered with my wig. I get sore ears when I wear it. Think I might end up with an assortment of hats instead. Good luck with Tax on Thursday.
Morning girls
Cybele - so sorry.
I watched my next door neighbour being put in an ambulance yesterday. He has bladder cancer but by the colour of him I reckon its gone to his liver. In a strange way its given me more fight because i looked at him and though “oh no that aint gonna b my fate!”
I had my third tax on Friday. To be honest I didnt feel ready - either mentally of physically for this one. I had an allergic reaction to cycle 2 and was still shedding skin when I saw my onc so he reduced the dose. Thank god he did . I feel ok ish today but have lost the skin off my fingertips (cant grip anything or sew) and my joints ache. Tax also affects the blood and my biopsy site hasnt properly healed yet - so im petrified of an infection. on Monday I find out if its in my other breast. WHY?WHY?WHY? What have I ever done to deserve this?
However onwards and upwards. Im now half way through this chemo nightmare. Im done with tax _ just have the joys of FEC to look forward to.
Hi Ladies, I hope you’re all as well as can be expected.
QD, that’s awful about your fingers and joints, hopefully FEC will be a little less unkind.
Cybele, I’m so sorry, big hug.
I was going to return to work because I want to be a bit more normal, so orgainised with my HR Dept that I’d come in for 2 weeks in every 3 (1 week for chemo which I’d take as A/L). I went to the doctor feeling the first little bit in control since being dx and he said why chance it when my prognosis is good but if I get an infection at work I could die. I now have another sick certificate. This is going to go on until at least the end of chemo and I feel like my brain is now mush and I’ve given up thinking that I have any control over my life; it’s made me feel exhausted.
Sorry to have a moan to you, I feel that you are the only ones who will understand, some others think that I’m lucky to get some time off work!
Hi Hamley,
This is the right place to have a moan (())
Will your work allow you to go in on your third week just for a couple of hours a day, i do that as long as i am feeling well enough and there is no one at work with colds or sniffles, i have only managed that once but at least i feel in control as to when i am well enought to go in, even if it is only for the company, i might not do much when i am there but like you said it makes you feel “normal” for a little while.
Why not ask HR you never know this might make you feel a bit in control as to when you go in or not.
Lolly
x
). Hope this helps.