Hi Em
I am in north Bristol
Squeakymouse
Hi Em, I am in Portsmouth right on the bottom of England, before you fall in the sea x
Hi Rattles. Hope your little girL is ok. Could it ve glandular fever?
X
I hope you have some news regarding your daughter Rattle. Won’t beanything sinister I’m sure. Hope she starts to feel better soon.
How are you feeling Alix?
Ive had a busy weekend with the birthday boy.Double figures achieved. It was lovely, if not busy! He said thE “best birthday EVER”. When asked what was the best he said “just seeingeveryone”. Which is lovely as was his cousins/aunties and uncles. Easily pleased my lad.
The tiredness ibeginning to settle in for me. Didn’t feelthis tired during chemo. Not sure how rads are going to be. Dark thoughts have slowed down and have been pushed to the back of my mind. Was really sad to hear about SCACO though. Seems so quIck. is that the best? I donT know and will try not to dwell. Love to her family x
We are picking up a new (10 years old!) car today. Buying off friends who have given us a fantastic deal. Just thought to look at insurance quotes. Should have looked before we agreed to buy it… North of £800??? Haven’t even added OH yet which is sure to push it up (claims!). Cannot back out as they would have part ex it and deal done. Ouch!!
Right I’d better g,et off the iPad. Have to clean up quickly, get to work, and get home for lunch with brand new SIL.
Im right by Stonehenge in terms of location, about 10 miles north of Salisbury. Would love to meet. I think!!!
Not sure how much more spread out we could be?!
I am in LONDON!!! But, will travel!
I am calmer this morning. Had one of those ‘mad moments’ yesteday after which I realised I am more fragile than I realise. As long asno-one rocks my boat, I am fine. Josie, my sister suggested glandular fever, and I sighed in relief. How mad is that- to see this as a relief!! That’s what cancer does to you. Hopefully just a virus.Thanks for your support.
Lovely to hear abut your son’s birthday. 10 years old Doggirl. My daughter 6 in Novemeber. Like you, banishing dark thoughts. It is sad about scaco. So very sad.
Em- how did your meeting go?
I am feeling very proud of myself. I am wearing new mastectomy bra and prosthetic (needs a name??!!) Not only that but went to clothing sale in town hall (very well known clothing brand having a cut-price warehouse sale) and I was brave enough to try on potential purchases in a make-shift communal changing room.
Had no idea car insurance was so much - really that much?
I go back to surgeon next week for wound inspection and to discuss rads.
Love to all and sorry if I have forgotten anyone.
Rattles xx
That car insurance quote sounds scarey - would get a few more quotes if I were you - go on Go compare and it will do it all for you. I am in Edinburgh but tied up with Rads until the end of October.
Rattles - hope you get good news about your wee girl soon.
K M x
Hi Rattles, glad you are feeling a bit more relaxed about your daughter. Glandular fever would be rotten but way better than any alternative. It’s understandable to worry. My cousins wife had to go for a scan today after finding a lump which turned out to be a cyst! Thank goodness. As she is younger tha me thought it would be very bad luck if both of us had it but I did worry. I am so thrilled for her, but couldn’t help thinking, why wasn’t mine a damn cyst?
A week on from my last chemo, I still don’t feel great, I am still very tired and very constipated which I am sure isn’t helping with my energy and I feel I’ve I’ve been in bed for ages.
My mum was going to travel to see me at the weekend to take me for a celebratory champagne lunch, but I’ve cancelled as I don’t feel like celebrating yet. Im really peed off as I thought I’d be feeling better and happy that the chemo is over, but I can’t seem to snap out of the blues. Pfft. Think it may be time to book in for that counselling.
Sorry for the mini moan, just feeling low and bored of it all now.
Hope everyone is doing ok. Sending bug hugs xxx
Sending bug hugs your way JOsiejo. You’ll feel like that champagne lunch one day soon xx good news for yourcousins wife. Would be bad luck, but then it was for us 
I am sooooo over having canceR too. It’s a bit all consuming. You should speak to someone about it. They are there to help x
Thanks kitten-mad but that was on Go Compare!! Stupid car is sat outside the house without insurance at the moment. Couldn’t be bothered doing anymore insurance sites. Too depressing. Will be visiting a certain meerkat endorsed one tomorrow. Good job we bought it for such a bargain!! Actually I am paying ‘in kind’ but nothint dodgy I promise 
Well done Rattles on your outing with your new (nameless) friend. Very brave. Glad it behaved in the communal changing rooms. Could have been interesting!
Rads for me next Thursday. Doesn’t seem to be much of a let up in between chemo. But have end date of 24th October so don’t mind the fast pace. How are people doing with their rads? Gillian?
Well good night to all. Xxx
Bug hugs?!? iPad ism
Xx
Hey josie, I felt just the same after my last chemo, really low when everyone else is expecting you to be celebrating! Im three weeks on and feel a bit better now but have to prepare for surgery next week and dont feel at all ready for that. Sending big hugs your way and hope you feel better soon, X Visit to work today was good - felt like first day at school!! Once I got through the door it was ok though and really nice to have that sense of normality back. Had to negotiate my return to work which involved me trying to persuade occupational health that I could come back next month- they thought it would be too soon! Doggirl - I still feel really tired, worse than ever- thought I’d be able to bounce back quickly after chemo was finished but alas twas not to be…wot sort of car have you bought to incur that sort of insurance quote.!!! I guess its not a family hatchback!! So with kittenmad in Edinburgh and Josie in Portsmouth we might as well all fly to Spaln for a meet up…Or Blackpool…never been there!!!
I’m glad the meeting with work went well. Take it easy though. Don’t rush in and do too much. Listen to squeaky! When is your op?
The car is nothing too exciting. It’s a Toyota Landcruiser. It s had a LPG convertion, but even when I pretended it didn’t the cheapest was 600? Will be playing on insurance comparison sites tomorrow. Dreading putting in OH details that will send the premiums rocketing! To add insult to injury I’m too short to drive the flipping thing. Couldn’t get the seat forward anymore so had an interesting drive around offload tonight using my tippy toes. I think the seat has come off the runners. :-/ still the boys in the household like it!
Really am going to bed now. Cannot think why I am so tired…
Morning ladies
Hope you are feeling well. I’m two weeks post chemo,physically I’m starting to feel better but mentally I’m still feeling low. I’m fed up of being bald, fat and feeling ugly. My periods stopped half way through chemo not sure if thet will return. I’m going to see ONC next week hoping to be told no more medication is needed. Last time I went I saw his understudy and he mentioned maybe having Heceptin but said that would be discussed at next appointment so I left confused. I know I will need to have my implant changed, it has changed shape while having chemo. I had a mx and ld flap recon, but the recon failed and I had to have it removed and an implant put in.
Doggirl hope you get your insurance sorted.
Good luck to everyone having treatment this week
Take care xxx
Hello everyone,
I’ve been reading your posts and understand the apprehension at coming to the end of chemo and what the future holds. I do have secondaries and although horrible and frightening to be told at first (at time of diagnosis of BC) I’ve managed to get to a place where I’m feeling ok. I worry to at coming to the end of chemo, I’ve got Anastrozole to take next week, have scan today and see my ONC next week for results. I was reassured slightly that my ONC was happy with my half way scan. I’ve been lucky with SE through chemo and know I could go through it again if needs be. How I cope is to think that no one knows when their time is up so there is no point dwelling on it, of course sometimes it gets me down but I try and kick myself out of it by telling myself I’m wasting my life worrying and just to enjoy the day. My OH and myself are fine again now. I think I underestimated the strain and fear he is under because of my illness. I feel very well actually, only slight fatigue if I over do things, otherwise no different than before I had BC.
Much love to you all.
Claire x
Doggirl - we have a big 4 by 4 and it is insured with Tesco - they are not on any other comparision sites so worth a try - we started to use them when our kids started driving - also Direct Line are sometimes a bit cheaper as well.
I used to have a Freelander and I couldn’t really reach the clutch properly as the seat would not go forward enough. Makes you feel as if you are “perched” up there and not good on roundabouts! So I know what you mean about being too short to drive it! I remember being parked next to another once and a woman my size got out - she was exactly the same position as me - I don’t know what it is about manufacturers of 4 by 4’s! We are just as capable of driving them as a man - what about some built up shoes? Ha ha.
Yes - seems we are all in the same boat about finishing and everyone expecting us to be so happy, how long do you think all these drugs stay in our system for? I think we should be given adrenalin injections!
K M
x
Hi all
Haven’t posted for a while as I got admitted on Monday with the infection in my reconstructed boob, and can’t post from my phone (OH has fancier phone which i’m using). Had op yesterday to try and save recon, if it fails they’ll have to take implant out. Feeling knackered as we have a 92 year old on the ward who spends all night shouting at the lovely nurses, then sleeps all day!
Was due last Chemo today, seeing onc next Weds so don’t know what will happen. Feel a bit peed off as I suspect my return to work will be delayed, but have taken a leaf out of Doggirl’s book and finished a paperback.
Claire - good to hear you’re feeling upbeat, sounds like you have a great attitude.
I’d be up for meeting, I’m in South Cumbria.
Love and hugs, Alix xx
Hi ladies, haven’t posted for a while, have been getting used to having no more chemo, it’s been an emotional roller coaster, but feeling a lot more positive now, I start rads tomorrow, will be having 15 sessions, also I have good news, my middle daughter had a baby boy just over a week ago, he’s beautiful and called Damian, well I want to wish everyone still having chemo, all the best, and that you can do this, I know it’s a long road, but you will get to the end. 
I will pop on here every now and then to see how everyone is. Hugs to all of you and lots of love Toni xxx
Special hugs for Alix, you poor thing- fingers crossed that the op you had today will sort out the problems with the reconstruction. I think where you are at, you have to cope one day at a time. Try and focus on getting well, staying sane and the rest will follow. Reading, relaxing (ha!!). Eating well, drinking. Resting! Oooh, listen to me- so good at giving advice, pity I dont follow it!
Claire, good to hear from you and you and your hubby are in a better place. You both have alot to cope with. Agree it is about coping one day at a time. It is the only way.
Doggirl- you need some heals, some wedge ones. They are really ‘in’ atm. I should know. Spent enough time in waiting rooms reading grazia! Vehicle sounds very exciting.
Josie, big hug. Dont epxect too much too soon. Also, Kitten mad. Think you start to feel better mentally, when you feel a bit better physically. Esp. the sheer joy of having no chemo for the forseeable future.
Gillian-like you, fed up of being bald. No sign of any re-growth for me yet. I hate not having eyelashes most, then eyebrows, then head hair.
Em, glad your meeting went well. Is your work very physical? Interested to know how your phased return will work?
Daughter’s blood tests came back showing very high antibodies. She is being referred to a paediatrician. Had another mini meltdown. Not helped by looking online and that hospital is where I was diagnosed, and where I spent 6 hours with nil by mouth with a raging fever. Cant help feeling very anxious about her.
We really are all over the place (I mean in terms of geography).
Big hugs and love to all, Rattles
Me again,
the lovely Pixie gave me the following help. What do people think?
xx
I organised the meet up for the april thread. I negotiated a really good deal with the hilton hotel in birmingham,centre of the country and fantastic transport links as it is very near nec.
We are having a lovely private room, a buffet lunch and afternoon cream tea. Costing £54 each based on 16 of us.i also negotiated a significat discount on room for over night stays.
Explained who we were,what we were doing and asked if the hotel would support us and they said yes.
Happy to sendyou more details if you like.
Love
Pixie xx
Just had a quick read of the new posts - big hugs to everyone needing them.
Today would have been my 12th rad appt - I obviously jinxed things by saying 'half way though today’as I climbed onto the bed! I was on a different machine today - the one I’m normally on was being serviced. Anyway after three attempts to get me in the right position they gave up. My boob has swollen with the rads and moved the tattoos slightly - they’ve been imaging me every day this week on the other machine and todays machine doesn’t have the imaging bit so they couldn’t go ahead.
Seeing the doctor tomorrow - so will see what she says!
Julie
hi all had my pre rads apt this week, having 25 sessions starting on 8 October. Like a lot f you my
Last chemo really whacked me out.
Started back at work last week on a phased return, first week 4 hours which wasn’t too bad.
oh I’m in Nottingham.
Its understandable your worried about your daughter Rattles, I hope you get some answers soon.
alix ASo understandable that your peed off, I think any of us would be