Rattles - hope you don’t have to wait too long for your daughter’s appointment and that she is better soon, must be the last thing you want at the moment after all you have been through.
Alix - sorry to hear about your infection and hope your unplanned extra op goes OK.
Julie - bummer about your rads, hope your swelling goes down over the weekend so that your tattoos return to the right place.
Myfanwy / Claire - good to see you posting again, I like your attitude re secondaries and am pleased you have been able to move forward with your OH.
I saw breast nurse today and am all set for op on 27th - Mx + ANC so from (.){#} to (.)_ ! Should be able to have reconstruction in about a year’s time if any rads skin damage heals up OK and no recurrence - but not the tissue expander one (rads will leave skin no longer stretchy enough), thank goodness, the description of this sounded to me like some medieval torture technique!
Hi Squeaky mouse,
Glad you have a plan re your surgery. Hope you are feeling okay about it. Physically, without the reconstruction, think you will find it a breeze after chemo. I like your (.) (.). I am (.) -. !!! On the positive, I am getting used to wearing the prosthesis and really it would be tricky to notice in clothes. So, feeling alot more confident on that front (!!!) Meercat - hope you are having a gentle phased return to work. At least you have a bit of a break between chemo and rads. I am very interested to hear expereinces of phased return.
I phoned GP re daughter. Apparently she is a bit anaemic, with high inflammation levels and high neutrophils. The one thing that is keeping me going is that she seems well enough, if tired. On the way to school she asked me if the lump in her neck was like mine. Cant tell you how it broke my heart Kiiten mad- been meaning to ask how your arm is doing? Julie - hope your moving tattoo is sorted.
Love to everyone.
xx
Hey all those May Buddies out there…
I am about and and have been looking in from time to time on the mobile - posting from it seems a little too difficult with pins & needles in my fingers.
Loving the idea of a meet up - have been toying with the idea with a few of the local ladies here from the March thread (I think), about a spa weekend after we are all finished…
Ive had yet more delays for one reason or another so my last Tax was delivered on Thursday and am now starting to come down off the steroids. Am feeling pretty rubbish overall, and pretty nervous about the future - but I guess we all are in the same boat. Still no dates for the rads, but for some reason it appears they have refused me transport on the intersite bus too (different hospital and not a nice drive) - am going to have to get to the bottom of that one!
Thinking of you all - need to crash, so be back later… Merc
xxxx
Good luck to everyone with their forthcoming operations.
Saw my consultant yesterday (for the last time apparently - have only seen her 3 times), I am to go on Oestrogen tablets for the next 5 years apparently - this was news to me! Rattles - she said my arm was the worst case she had ever seen! Didn’t know whether to feel proud or annoyed really! She also gave me some False tears for my sore eyes - my eyes have been running for days and I look a real mess as if I have been crying for hours!
My last chemo was 2 weeks ago yesterday - I actually think I am having COLD TURKEY - anyone else with this problem! She said my body is expecting its next dose and that my cells all need to regenerate which is why I am feeling so rubbish and emotional. I really am a wreck at the moment and feeling so down and moody and bolshie etc… Please please tell me it is not only me who is feeling this, it is as if some mad woman has taken over my mind and body - I can’t believe it as I have been so strong throughout the whole diagnosis and operation and treatment.
I really hope that the rest of you are not going through this as it is awful.
Rads start on Tuesday for 25 sessions - can’t wait!!
K M x
Hi all
Rattles - hope you get some good news about your daughter’s illness soon, not what you need after all you’ve been through.
Kitten-mad - sorry to hear you’re having an emotional time of it, hope you feel brighter soon.
Merc - nice to hear from you, hope you get the transport sorted with the hospital.
Thanks to everyone for their kind words - I finally got out of hospital last night. Last 3 nights I had my own room which was a relief after being on a noisy ward - feels soooooo good to be home though. Having had mx in April and seemingly healing ok, it felt like a real step backwards to be back in hospital having another op. Due to see surgeon tomorrow - I get the impression that he’s not all that confident that the reconstruction can be saved. Last chemo was due last Weds, seeing onc this Weds but I fear it’ll be delayed a few weeks at least (and longer if the infection returns and the implant has to be removed). Just when the finishing post was in sight! My hair seems to be making an effort to regrow, which is sort of annoying when it’ll all come out again with the final chemo! Ho hum.
Alix x
Thanks Alixj - feel a lot brighter today - the eye ointment has helped. I bet you were glad to get a room of your own so you could get some sleep. Your hair might not fall out again - mine started growing again during the tax and hopefully is staying put! Hopefully your last session might not be too far away.
I read on the April thread that PTSD - Post Traumatic Stress Disorder - is linked to people who have gone through Cancer treatment, so I felt a bit better after that!
Hi kitten-mad
i totally understand how you are feeling. Like you I had my last chemo two weeks ago and by the sounds of things I have been feeling the same way as you have been. Hope you are feeling abit better.
take care
xx
Evening buddies, I’ve been busy making the most of no more chemo by going out and meeting friends, drinking too much vino and eating lovely food now I have my tastebuds back. Don’t really feel as if I’m having my op in 4 days - think I’m in denial !! I’m over 3 weeks past last TAX and my muscles still really hurt sometimes, especially in my legs. X
Hi alix. So glad you are home and on the mend. I stopped shaving my hair a couple of months ago and it doesn’t seem have fallen out again. I have some dark fluff which now seems to be getting slightly more like a proper growth.
I hope everyone else is doing ok. It’s been rather quiet on here of late.
I’m starting to come out of the last fog. Been back to work for a few hours a day and making the most of the break before rads.
Rattles, did the doc have any thoughts on what it might be? And when she may be seem by the paediatric doctors?
Hi all
Just wanted to wish Em and Squeaky all the best for their ops - not sure when yours is Squeaky? I have to say I found the op much easier than chemo - partly because you don’t have to go through it all again just when you’re starting to feel better! Remember to take tops/PJs that button up the front, as you’re not supposed to raise your arm above your shoulder on the affected side for a couple of weeks, making t-shirts a challenge…
Not sure if anyone else is due their op soon?
Rattles - thinking about you and your daughter, hope you get some good news from the paediatrician.
Saw my surgeon today, he seems happy with how things are healing since my op last week to try and save the reconstruction. It’s early days, so am keeping fingers crossed and trying not to stress about it. At the moment I feel more bothered by the thought of having to go back into hospital and have numerous attempts at putting a cannula into my rubbish veins than I do by the prospect of losing the implant! I’m so much worse a patient than I was before all this started.
Hope everyone having rads is doing ok.
Love to all, Alix
Hello buddies,
Alix - good news about your progress. One step at a time. Fingers crossed for you.
Kitten-mad, glad you are feeling better. Think you are quite right to make a link with PTSD.
Em, a woman after my own heart. Good for you.
Merc- I havent seen your post, but glad you have posted and good to hear from you.
I am writing to ask for your prayers/spiritual energy, positivity- whatever you want to call it- for my little girl. She was admitted to hospital on Sunday. Dont think anyone knows what the matter is - although she is in iv antibiotics, they dont think its an infection and she is having a biopsy of her neck tomorrow. I stayed last night but had to come home to have a good cry. When they put the iv antibiotics into the cannula, she asked if the medicine would make her hair fall out!! I was heartbroken, but kept up a brave face. The doctors seem really concerned and that is making me really scared for her.
Wont get chance to come on again, so good luck to Em and Squeaky mouse for your ops.
Love to all, Rattles x
Hi everyone , not been on for a while , but still been reading all the posts, Rattles sending prayers and love to both you and your daughter . Got clinic tomorrow so hopefully last Tax on wednesday , had a reaction to last one and ended up competing with the elephant man , hands and face swollen and skin peeled off, on steroids every day now to try to counteract it , not a pretty sight trust me , have frightened the post man and a couple of delivery men , hope veryone is coping ok .
love and hugs to all of you xxx
Rattles - sending positive vibes to you and your daughter, really hope you get good news soon.
Ginger - fingers crossed you get your last Tax, without the elephant man side effects…
Meerkat - hope the tiredness starts to lift for you soon.
Love to everyone,
Alix xx
Rattles- sending you and your little girl lots of hugs and good wishes. I really hope they find out what is making her poorly and that she will soon be on the mend, xxx. Got my pre-op appointment this afternoon so reality will be returning to my world!! Op day is Thursday and I have to be there at 7.30 in the morning which will be a challenge in itself…Squeaky - how are your nerves holding up? Alex - I’m glad your healing ok after op, fingers crossed it has saved your recon, x hope all you Buddies just finishing chemo are ok and not suffering too many SEs. Lots of love to you all, Em xxx
Rattles, I was very saddened to read your post, sending loads of positive vibes for your daughter and big cyber hugs. Do let us all know how she is getting on. Big hugs to you to, what a terribly worrying thing for you to cope with along with everything else.
Ginger, good luck with the next Tax, hope the last one goes to plan and you never have to experience it again.
Meerkat, hope you get your energy back soon. This is something I suffer with, used to walk miles but seem to have lost my confidence and find a walk into town like a mountain. Going to Cornwall for a long weekend on Friday with OH and brother and his OH so might try and push myself to walk further, think it can only do me good and I’ll have sea air to breath!
Hope everyone on rads is doing ok. When I had rads I made sure I slapped plenty of the cream on and didn’t have any problems at all.
Good luck to those having operations, I know it’s scary but you are a resiliant lot and full of positivity.
Love Claire
