Hi Girlies,
Well I think you are all absolutely wonderful and I really admire the way you are all dealing with this…I hope all who are having a rough day have a better day tomorrow and all who are having a good day also have an even better one tomorrow.
I also admire Kate, I am having my hair cut shorter day before my chemo starts and hope to get a wig later in the same day. I actually bought a turban (think thats what its called!) today just in case!!
Curly - so sorry you had such a disastrous day, but will PM you.
Simone - yes, just got in by the skin of our teeth for September so will be interesting to see how our days compare…nice to have someone starting at the same time.
Will try to keep up with you all but am a bit of a technophobe so don’t expect too much!!!
Keep Smiling and Hugs to all XX
Morning all,
SGL, have they given you something to boost your white blood cells as this can bring on flu like symptoms. They advised me to take paracetamol, maybe this might help if you still feel like it this morning? Although you must be careful to check your temperature still just in case.
Fi, good luck with your hair today, I hope you feel as liberated as I did once it is done. You are 1 day behind me on your 2nd chemo and I think it was day 18 that my hair started to fall out too.
After having a good day yesterday it all came crashing down when I got a call from my dad to tell me that my 88 year old grandad has been rushed into hospital with chest pains. My nan is very worried, obviously, and I feel helpless as I can’t even visit him there until I get my white blood count up. Needless to say I have been lying awake tonight worrying about him. It never rains but it pours!
I hope everyone had a good Friday night (and those feeling well enough made it out). Anyone got any exciting plans for the weekend?
Kate xx
Morning girls…
Kate, I’m sorry to hear about your grandad, your emotions must be all over the place at the moment, I’ll be thinking about you today, and hope he gets better soon. Take care…
I have a friend coming up today, shes taking me out for somewhere, the weather is looking good for the weekend, and getting warmer next week, so thats good…
Fi, Hope you are feeling better today, when does this horrible taste go? I wish you lots of luck with your hair today…
Have a good weekend All…
Love Jay X
Hi Gorgeous Gals,
Just love weekends. Hope you all have a good one.
Kate…, so very sorry to hear about your Grandad, hope all ok.
Fi…good luck for the shave. Would be great if you sent us pics as well.
Treen…I think you will get as addicted to this site as I am, so the technophobe thing will go out the window. Already I can type much faster than I could a week ago.
Going to sit in a corner and do tapestry all weekend…must be getting old!!
Bug hugs to all
Lil xx
Hi everyone
Feeling a bit down today and have been tearful. All down to reading copy of letter sent from onc to gp. Nothing in it that i didn’t already know, but seeing things in black and white brings back all the doubts and fears, and whether i’ve made the right decision to go for chemo as a mop up. I’m a borderline case for chemo as nodes and margins clear, but with it being a grade 3 the letter states that i’m at high risk of recurrence and death (yes it actually said that!) from potential metastatic cells. This was followed by re-iterating that i was aware of the risks of chemo, cardiomyopathy, neuropathy, and leukemia - which i am but find them equally scary. I believe i’ve made the right decision to go for chemo(6 x FEC) which is due to start next Thursday, as the risk of recurrence looks to be greater than the risks of having chemo. But the whole thing is scaring me silly. I basically feel damned if i do and damned if i don’t.
Sorry to be moaning on what is essentially a very positive thread. I’m working on pulling myself together and getting those positive vibes back. I WILL GET THROUGH THIS!!!
Ali
I everyone,
I havent been on for a few days cos I think that I just wanted to feel NORMAL!!
Also been feeling really emotional and sick. But I think that this was down to all the meds that I have been taking, feel so much better now I am off them.
Alibaba.
My chemo is a mop up as well and my oncologist showed me stats that showed that even without it in 10 years neary 82% of woman would still be alive. With the chemo that goes up to nearly 89%. That to me doesnt indicate that just cos you have grade 3 it is likely to return!
My god, what a letter to receive!.
But I do think that you are right to have the chemo.
Kate
What happened?Did the cold cap not work?
I wonder why it works for some but not for others.
Do you think that it depends on how much hair you have in the first place?
I do agree with the other girls that you look great and well done for taking control.
x
Sozza, glad your feeling better today, those meds can really muck things up can’t they.
Alibaba,i can’t actually believe that someone could send a letter out saying that, how insensitive especially as you’ve obviously asked for a copy. I think you’ve made the right decision as well. Im a grade 3 & my surgeon said i may be offered chemo but i’d already decided that if the choice was left to me then i would have it. I know that i’d always regret it if i didnt as i wanted to throw everything i could at it & do my best to prevent any recurrence. As it was, the onc recommended it. I think u should be proud that you’ve made this very difficult decision & look to the next step now. I started chemo last week & was petrified but haven’t found it nearly as bad as i thought. And btw your not moaning, your just getting it off your chest & that’s what we’re here for, take care & yes, u will get through it x
Sozza and Hjv123 - thanks for your responses. These decisions are so hard, and its all so scary. But i’m feeling a bit more positive now, and going to take a walk in the nice sunshine.
Ali x
Is in hospital on a drip:-( really fed up.
Oh Stargazilly
you poor thing whats up big hugs to you
Sue
Chin up, SGL. Thinking of you, and all you other lovely ladies. xxx
Hi Girls…
So glad you are feeling a bit better now Ali, there is so much going on in our heads, I too had to decide, but started on Tuesday, I knew deep down I had to give it everything on offer…
We have made the right decision i’m sure…
SGL, you poor thing, you arent having it easy right now are you! I do hope you are out of there soon, I’m thinking about you…
Sue, how are you feeling?..
Look after yourselves girls…
Love Jay X
Hi girls
Well our little group is growing so fast i can’t keep up with everyone. We really should have a BIG get together at some stage in the future.
Well I also have taken the plunge and had my head shaved today. I didn’t plan it - I thought I’d have a nice pixie cut but washed my hair and wham!!! What a mat of hair. My lovely wig ladey Angie fitted me in and and one snip later it was off and shaved. I have to say I do wish I had taken the advice to have it cut short before the Chemo and cold cap but hey we all have if only’s don’t we. At least I don’t have to sit with that cold cap on again. Gave it a go but hey sometime these things arn’t mean’t to be. However I would encourage anyone to try it out as it works for some people.
Got my 1st wig - feels very strange but just got to get used to it.
So sorry to hear SGL in hospital - hope you recover soon
Ali - Def made the right decision - throw everything you can at the bugger and give it the big right elbow
Kate - You do look great - You have the perfect features
Jay - hope you enjoyed your day out in the Sun
All starting Chemo this week good luck - the 1st step to the road of recovery
Well having home burgers, chips and salad and an evening in with X Factor
Hope all have a great weekend
Love to all
Ginge xx
Hi Jay
Hope You are ok. Yesterday I felt a bit fuzzy headed for most of the day and today I’ve got no energy I just hope tomorrow I feel more human. I also have what I can only describe as a coating in my mouth it feels really thick have you had this?
I hope you and all the other ladies on here are having a reasonable day.
Hugs to all Sue
Hi Ya Gorgeous Gals
Hope all ok.
SGL…what a bummer. So sorry, but hope you feeling better soon.
Ginge…Bet you look as good as Kate does with the new hairdo
Ali…It wont be nearly as scarey once you start, lets all go kick some butt!
Take care,
hugs to ya all
Lil xxx
Hi Ladies,
I’m back from hols with a bump … FEC 1 on Monday! The sun was great but a little emotional due to a text from work on the Monday and another today! Not happy … so my head is in the sand and ignoring them! I wish others could go through this cancer-head-mess thing just for one day for them to try to understand how it changes your world! I know it might seem a little crazy but I’ve missed you lot so thanks for putting up with me xx
Welcome to the many new ladies that have joined us over the past week - big hugs to you xx
SGL - I hope you are feeling better soon! xx
I hope that you all have a good weekend
Ax
Hi Sue…
Yep, my mouth is exactly the same, horrible isnt it…
I hope it dosnt last for the duration each time!..
I dont fancy eating anything, still have the nausea with me too…
As for energy, forget it…
I keep thinking its only the first week, it can only get better…
Hopefully we will both have a better day tomorrow…
Love Jay X
Bless you Annie…
Welcome back, we missed you too…
I really hope you sort things out with work soon…
Maybe get Monday out of the way first if possible, I wish you luck, you will be fine…
Take care…
Love Jay X
Thank you ladies I was admitted with a fever. Have had a chest xray and will be in for the night for observation. Doctor thinks I have had a reaction to the chemo but in all honesty I don’t think they know and are keeping me in to be on safe side. I do feel yukky and my mouth is full of ulcers 
thanks for all your kind wishes.
Thanks Jay,
It will be what it will be, when the time comes!
As for your question did you feel different before being diagnosed … I was incredibly tired and my tonsils were gritty all the time …I’ve only just realised that it’s stopped :))
Thanks again
Axx