So sorry SGL, hope you better soon.
Welcome back Annie glad you had a good time in the sun and good luck for monday, which hospital do you go to?
Jay and anyone else, the nasty tatse got a bit better by mid week 2 or I just got used to it.
Sorry girls still not shaved head as have only gone thin on top, still got short back and sides.
Trying to hold on till mon when I have to pick up my 1 year old grandaughter from nursery in Derby, don’t want her to refuse to come with me as I don’t look like her granny.
How embarrassing would that be!!
Look after yourself girls
Hugs
Fi XXX
SGL do hope you feel better soon …
Thoughts go out to all of you having treatment right now…I shall be joining you next week and am getting soooo nervous - today felt sick to the stomach and quite weak headed at times, so scared about how I will feel once on chemo…am grade 3 stage 3c…3 x fec 3 x tax and having hormone treatment, oncologist says giving me the aggressive treatment?..Should I expect bad SE’s? Sorry to sound so pathetic - its late and I am having trouble getting to sleep for worrying…Am due to start on Weds…
Hugs
Treen X
Morning ladies,
Sorry to hear you are in hospital SGL, I hope they let you home soon. Hug!
Sarah, the cold cap seems to have worked but in patches. I always said that I would rather be bald than patchy (i am not very patient with my hair at the best of times!) I have mainly lost it on top and that was where the cold cap didn’t seem to be as tight. Maybe I just have the wrong shaped head!
Fi, don’t apologise for not shaving your head! If it has just thinned then keep it and enjoy it. As I said before, only do it when you feel ready to, not when other people tell you to.
Well done ginge, hope you have got used to your new hair and the headaches are not as bad.
Annie, hope you had a lovely holiday and good luck with your treatment.
Sorry to anyone else I gave forgotten, I have really noticed my chemobrain after this session, maybe I will have to start writing lists of everyone’s names to keep up.
I managed nearly a whole nights sleep last night but am expecting to feel tired today as it is the first day without steroids. My grandad looks like he is on the mend too which is good, just wish I could visit him but he won’t let me go in case I pick up anything!
Kate xx
Hi Gals
SGL…hope you feeling a bit better today???
Fi…I keep picking up the razor and then thinking of a million reasons why NOT to go for it…MAJOR DENIAL…think my hair is not really gonna fall out, that just happens to everyone else. hehehe. I am quite envious of the brave gals that JUST DO IT. Maybe I will go do it now…gulp…or maybe tomorrow…eeeeeekkkkk. KATE…I NEED MORE INSPIRATION…or maybe more vodka
Have a great Sunday all
big hugs
Lil xx
Kate…FAB news about your Grandad. You must be SO relieved.
Hugs
Lil xx
Hi luckyl
Don’t shave it! Go for a no 3 or 4, you must know someone with one of the barber things men have their no 1, 2, 3 or 4 we have one as I do hubby’s hair on a no 3 it’s no way as drastic
Jo
Morning Ladies…
SGL, really hope you are feeling better this morning, and will be allowed home today…
Fi, thank you for that, did you also get indigestion quite a bit, or is it just me, I thought it was the anti sickness tablets that caused it as i was given tablets to take for it while I was on them, but its still quite bad, just like when I was pregnant…
Kate, so pleased to hear your grandad is on the mend, that is great news…
Lil, You may be one of the lucky ones with your hair, got to do what feels right for you, no pressure, might join you in that vodka, not sure how it would taste at the moment though!!..
Have a good Sunday All…
Looks like another lovely day here…
Love Jay X
Lil, I would avoid using a razor in case you cut yourself and cause an infection. There is also no need to shave until you start losing your hair, some people are lucky and don’t lose it all. Maybe have it cut shorter first to get used to it?
Jay, I had really bad indigestion offer my 1st Fec that would not go away with any over the counter medicine. I told my onc and the 2nd round he gas given me lansoprazole. I take 1 each morning an hour before eating and so far so good, no indigestion. Still got the bad taste though, not found a cure for that yet, any suggestions anyone?
I found out last night that I have inspired 3 of my closest friends to give up smoking. They have not touched a cigarette since my dx on 17th August (ironically I gave up the week before I found the lump!) At least there are some good things to come from this horrible situation.
Looks like a lovely day here too, going to try and get out in the sunshine today.
Kate xx
Hi Girls
Kate great news about your Grandad, one less worry.
Did you have the paxman cold cap? This is what they have ay my hospital and it has a very good right up . The nurse actually told me not to cut my hair.
It sounds as if yours wasn’t fitted properly.
Ali Forgot to say my oncologist said that grade 3 cancers are very receptive to chemo so you are defo doing the right thing.
I am confused about the different types of medicine that they give you. I’m having 6 Fec but I see that some of you are having a mixture . I guess this depends on our circumstances.
My emotions have been a bit all over the place . I am going on anti depressants on Mon to steady me out a bit.
Mind you with what we go through I’m not surprised. I’ve had 2 ops and one min I didn’t need treatment and now I do .
I know that I will be ok but the trauma of it all is sometimes over whelming. I am hoping that once I start chemo I will feel more settled and there won’t be anymore unknowns.
My oncologist did say that many people say that it really isn’t as bad as the fear of it, hope this is right.
It would be lovely to meet up, where do you all live?
I am on Bexleyheath in Kent.
Happy Sunday everyone.
xxxx
Kate
I gave up smoking as well, my husband is still puffing away tho!
Apparantly breast cancer has nothing to do with smoking but lots of others do so it would be stupid to carry on.
Do any of you believe in eating the right foods?
My oncologist said that in Japan the incidence of BC is quite rae and they eat a lot of fish and of course no processed food.
I’m defo going to try and eat more organic and fresh foods.
x
Morning Girlies,
Am feeling alot brighter this morning…wow its a roller coaster of emotions for me right now but guess that is par for the course!! My daughter and I are off to Ikea today, am looking forward to taking my mind off impending start of chemo!! I think I am weakest at night when I cannot sleep so guess may be entering a few ‘pathetic’ entries then!!
Curly do hope you are ok and not having a rough period? Thinking of you.X
Could do with the sun putting his hat on cos it always makes me feel better!!
I shall have to make a list of all your names - my brain is mush before I even start!!
Have a lovely Sunday girlies with lots of laughter and smiles if possible…
Hugs Treen X
Hi Sarah, ginge and I are in Surrey so we could meet up quite easily, there are also a few ladies from Brighton. I agree it would be great to chat to you all face to face. Well done for giving up smoking, it can only help.
I don’t know what type of cold cap I used, it was they one they take out of the freezer and have to change every half an hour, not the one they keep cold on your head without the need to change it. I hope the paxman works for you.
There is a great thread on here under the ‘complimentary therapies’ heading. It has loads of good recipes and suggestions. You have to be careful not to believe everything you read about diets or you will end up not eating anything! I have gone organic, I don’t eat much red meat anyway but am avoiding it more than usual, I have also bought some rice milk but not tried it yet. The week after chemo I just listen to my body and eat whatever I fancy, or can face. This tends to be carbs and bland food also crave salty food which is odd as I don’t usually add salt!
Kate xx
Morning Girls
Beautiful day here, what a difference it makes.
Hope you’re home and feeling much better today SGL. Did they give you any anti-biotics?
Kate, glad your grandad is ok. What a relief!
Treen, I start on Wednesday too. I’ve been delayed 3 times so just want to get on with it now. Keep telling myself the sooner it starts, the sooner it’ll be over.
I gave up smoking last year, found it easyish, but really been fancying a fag for the last couple of months. Not had one though.
Hope everyone has a good day.
Nicola X
Morning girls
What a night!! I can’t seem to shift this headache. Taking 3 nurofen but not budging. Trying paracetomol now. My head also getting cold so wearing a fetching nice little bed cap!! I look like convict wih my head shaved. Feeling sorry for myself at the mo which I shouldn’t as poor SGL in hospital and others having worst side affects than me.
Kate - I’m so glad your Grandad on the road to recovery
I had the cold cap that was constantly plugged in. I know we all do things in our own time but I would suggest fom experience of not cutting my hair to have it cut short before. It was a nightmare yesterday when it all tangled and just fell off. If you don’t have to shave it yet Lil then don’t. just cut it short. I keep looking in the mirror and seeing someone else!!
Treen everyones side affects are different - just make sure you take your sicky drugs and eat when what you want initially as it does help with the sickness. i’m just munching into a toasted bacon sandwiche with ketchup yum yum
lovely weather today - 26 on thurs and 27 on friday!!
love to all
ginge xx
Hi Girls…
Kate, Lansoprazole is what I was given, do you still take them after you stop the anti sickness then, I did take one this morning, I wish I could help on the bad taste, but I am in the same boat, looking for answers!..
Great news on the no smoking front, wish my older kids would give up!!..
Treen, so glad you are feeling better today, rollercoaster aint the word! I cant keep up with myself! have a great spending spree at Ikea…
Good to hear from you Nicola, how are you doing?..
Ginge, really hope that headache clears soon…
Curly, are you ok?..
Take care All…
Love Jay X
Afternoon everyone,
Feeling a bit better today after being so emotional yesterday, although very nervous that the chemo is about to become a reality. Sozza you’re right about it being the decision to make, but it’s so hard when I feel like surgery has removed it and physically feeling ok even if I’m an emotional wreck. Anyway, now on the road to making sure the darn thing doesn’t come back. Been out to buy some treats and meds as per the recommended list, and most importantly got my thermometer. Not sure how long the treats are going to last though as my son has already started tucking in to the ginger biscuits! Good job I bought a double pack lol 
SGL - sorry to hear about your stay in hospital. Take care and hope you’re feeling better soon x
Looks like there’s a few of us starting this week so we’ll all be able to compare notes. I’m having bloods done on Wednesday and first fec on Thursday (just typing it gives me the wobbles!). Hope they sort out my ECG before then as haven’t had that yet. Did tell the nurse last week.
Wishing good luck and minimal se’s to everyone on this thread.
Ali x
Ps I’m from Bournemouth so still on the south coast but a little bit further from Kent.
Thank you so much everyone for your kind words.
Feeling a bit weary and my mouth is agony with ulcers, but will catch up with everyones news in a day or too but in the meantime.
I am home now thank goodness. Do you know a and e tried to make me wait in the main waiting area even though the doctor had faxed through to say I was coming and was on chemo and needed to be seen quickly and away fron everyone else!! There answer was to leave me running a temp in the car for 25 mins until Hubby made a scene. I was in tears but after that I got taken to a room and was admitted after various tests. My neutrophils were lower at 2 but they have to be under one so I believe to be dangerous.
Because I was running a temp and dehydrated (no wonder being left in a hot car) I was admitted for fluids and observations. They think it was probably the chemo that made me have a fever as today I had normal temp so I am guessing the drips flushed toxins through?? Still feel fluey and have horrendous ulcers in mouth but glad to be home.
They admitted this lady for two hours this morning in bed opposite me with sickness and diarhear bug!! They sent her home after two hours after sticking her in a bed with other sick people! The Marsden put anyone with a suspected sickness etc drug in a room on their own to stop it spreading. No wonder my local hospital always has norovirus etc!!
How is everyone coping with the ulcers, I am struggling big time as there AGONY and about four times the size of normal ones. 
Hugs to you all. xxxxxxxxxxxxxxxxxxx
Hi everyone,
Well on Friday night our team won the village quiz but by Sat morning on ward with high temp and low white cell count. So IV fluids and antibiotics and GCSF now home again but feeling a bit ropey.
We are lucky in that we contact the ward and can go straight there so no waiting about in general area. Plus the doctor was exquisite and good. Felt a bit like Mrs. Bennett, Pride and Prejudice and offer him one of my daughters.
Hoping everyone is recovering and feeling ok. I am reading everyones experience of the hair loss and dreading it actually falling out although have good wig and caps. What a bleeping horrid experience this all is.
Big hugs to all xxxx
Good Morning Ladies,
My first FEC-ing day is here …eeeck!!
It’s all starting to feel real now …going to have a warm bath, my last decent cup of coffee and I have a hot water bottle and ice pops at the ready!!
Fi - I’m at the Royal Derby which is a fifteen minute walk from our door to the chemo suite (but OH is driving today!).
I hope all those with bad SEs are feeling better soon
Love to you all
Axx
Morning Ladies…
Annie, I wish you lots of luck for today, you will be fine, its not as bad as we all imagine it is…
Lucy, well done on winning, but sorry you ended up in hospital, how things can change so fast with this treatment! How are you feeling today?..
SGL, so sorry you are suffering at the moment, I cant help with the ulcers, but ring them, they must be able to give you something…
Ali, glad you are feeling a bit better…
Ginge, how are you, have you managed to shift that headache? I hope so…
Take care All…
Love Jay X