Morning ladies
I’m not feeling to bad at the moment fingers crossed it will stay like that, I felt a bit wobbly when I got home from my 3rd fec.
Jay Glad to hear your not feeling to bad today how is your indigestion, they gave me some medication to take if it starts again
Lil I hope you can reach a decision soon as to where you are going to stay, I would not like to be in your position but we are all here for you should you need us.
Love and Hugs to all
Sue xx
Hi Sue…
No indigestion at the moment, which is great, it didnt start until the Saturday after FEC 2 so we will see, they lowered my steroids in my iv to see if that helps, please god it does…
Glad you arent feeling too bad, I always feel a bit wobbly after treatment, its hardly surprising with all this poison they pump int us!!!..
Take it easy…
Love Jay X
Good Evening Ladies
Please may I join the forum. I started chemo on 5 September and having FEC x 3 and T x 3. Am now half-way through and am getting worried about my first T next Thursday 10 November. However reading through the posts on this great forum is really helping me feel more positive and not as alone. I was diagnosed in August and it has been like a very bad dream since then. I too hate the feeling of not being in control of this b… awful disease. I am having chemo first to shrink my lump, then an op and radiotherapy. My last chem is on 22 December - so not sure what I will feel like over xmas but at least I will have finished! I have lost my hair (didn’t use the cold cap), and I got a wig, but tbh I prefer to wear scarves. The wig doesn’t look right - too thick and bouncy! Anyway you will hear more from me now I have found you all !
Hi Girls
Lil - just read one of your posts - snakes and spiders uggggggghh. Not good
Don’t you want to come home my love for a while - safe and cold England to finsh your Chemo. You can come and stay with me. The Marsden is not far or if you’ve got private (and I’'m not boasting) your can come with me to Parkside. I’m having 4 x Tax as well
Your poor doggies - I would be heart broken if that happend to my Barney - he is so lovely - a choc lab - thick but lovely!!
Annie - sorry your in hospital - I do think myself lucky with very few side affects
Jay - hope your indigestion doesn’t show it ugly head again
Nicola - Vertigo sounds horrid - hope your medication helps
Low blood counts - I have them all the time but they zap me with another injection a week later and they always come back the next day
I’ve also had 5 mini injections daily that worked better and bloods were fine - Maybe anyone with low blood might want to ask the question about injections
Well off to bed
Love to all
Ginge xx
Hi everyone and welcome Daisy.
Still in the fog of the 3rd EC. Had emend this time which stopped the sickness but now going through the miserable, tired and fuzzy week with no taste buds. White cell count seems to be staying up with the injections. I hate chemo.
Hope you manage to sort something out Lil, Ginge’s idea sounds good. I have to say I only manage to muck out my pony in the third week, the rest of the time it’s long suffering OH getting his wellies on when he gets in from work.
Lolling in bed catching up on Downton Abbey and trying to keep SE at bay.
I have three girls Ginge, it has seemed at points that they are always arguing with someone, be it me, friends or sisters. Arrrggg
Lots of love to all Julia xxxx
Evening girls…
Hope you are all ok…
Welcome Daisy, sorry you find yourself here, but there is plenty of support thats for sure, I too prefer scarves and hats, my wig is still in its box!!..
Annie, are you home yet?..
Ginge, asking about injections is the last thing I want to do, needle phobia and all that, its the only thing they cant put through the picc line!! so fingers crossed I wont need them…
Julia, So glad the Emend is working for you, we have to plod on I guess…
How old are your girls? not 3 teenagers surely, it was hard enough with two!!..
I hope everyone has a good nights sleep…
Love Jay X
Hi Girls,
I’m still in here … Newts up to 0.2 today, I saw my Onc and she said if I get to 0.4 I can go home tomorrow! Trying not to get my hopes up too much!
All in all I feel ok in myself but not pushing to leave too soon!
Have taken a sleeping pill in the hope another goodnight’s sleep will do the job!!
I’m missing my furry boys!!
Hope everyone’s se’s are tiny ones!
Big Huggs
Axxx
HELLLLLOOOOOO!!!
I’ve been laptopless but I’m back!
Well I had second fec last tuesday and stayed in.
I was sick at 1 am but since then NO SIDE AFFECTS AT ALL NOT EVEN NAUSEA!
How mad is this???
Mind you I am craving crap foods especially fizzy drinks so got to do something about this (elasticated trousers maybe!)
Wore cold cap again and hair is shedding badly, parting is bald now. I phoned up Paxman and they said to perservere. Hubby keeps saying to shave it off but I dont want to as I still have hair.
Oh another SE is a bit of dizziness at times when I get up from sitting, does anyone else get this?
I saw my plastic sugeon today and boob has healed and the other one will be hoisted up in March.So I will have boobs of a 20 year old!!
Emotionally I feel great!!
I decided to come off the jolly pills as I’m sick of pills and don’t like the SE.Also I WANT CONTROL NOW!!
When my hair started to come out I had a little cry but now I just think , yeah whatever.
If we think about this disease logically, whay do they do so many lumpectomies? To me this indicates that for most women it doesn’t return.
As my cancer physcologist said most people are in the categorie that they are treated and carry on with life.
My chemo nurses say the same.
Keep these thoughts when you have a wobble.
I spoke to my second cousin the other day. She had it 35 years ago and is now 79 and in her words CHIN UP BABE!!
Love and good vibes.
xxxxx
Hello my lovelies
S**t night - all the b****y steroids! Took temazipan at 2am but still only managed around 3 hours. Will prob be knackered later but doing my Dads’s study up as a surprise fo his 80th! Might have to supervise from the couch!!
Welcome daisy to our group - You’ll find lots of support and a few giggles I hope here.
Annie hope you get out of hospital soon - did they give you another injection to gert your counts up everytime mine are down they just jab me again and they are up the next day
Julia - I know it drives you mad doesn’t it - just puts extra stress on and it pains me when they are feeling low and unhappy. I rang one of the Mum’s so hopefully will be sorted out when they go back to school. I hate those side affects when you feel fuzzy and a bit icky - not toally ill but just under the weather. Hopefully it will pass in a couple of days.
i too don’t like my wig much - its too big and just wear wolly hats most of the time. I am mean’t to be getting a real hair one soon so maybe that will be better and fit OK.
Talking about nail varnish - Kate - did you do gel nails and is the UV light OK to use? seem to be getting mixed messages - I’ve just painted mine dark but I’m not the best nail painter and it doesn’t last long before chipping.
Love to all
Ginge xx
Morning Girls…
Miserable rainy day here…
Annie, My fingers are crossed for you, hope you got a good nights sleep…
Sozza, good to have you back, No SEs thats brilliant, they say no two cycles are they same, and they arent wrong are they…
Have you not even got the yucky taste?..
I do get a bit dizzy, also blurred vision for quite a while…
I’m sure you will know what to do about your hair when it feels right for you, its a very personnel thing, thats if that time comes…
So good to hear you are feeling better emotionally, I’m so pleased, you souns so much upbeat, Take care…
Ginge, Thats exactly how I feel this time, fuzzy and sicky but seem more alert not spending so much time on the sofa, long may it continue!..
Good luck with the decorating, I would definately stick with supervising from the sofa!!..
Have a good day All…
Love Jay X
Morning
I’m supposed to be having my flu jab today but have had a cold so not sure if they will do it.
Yes Jay I have been very lucky this time. No haven’t had yucky taste either .
I’m sure the next one will be different again. I do feel light headed.
Hope that all you who felt crap yesterday are feeling better today.
xxxxxxxxxxxx
Afternoon all,
Sozza, you seem to be in much better spirits now which is brilliant, I really hope you continue to feel good.
Ginge, I had the gel nails done before I started tax. My onc said it is ok to do but not necessary as it is winter and not much natural uv light around anyway, better to wear gloves when you go out instead.
Annie, I too hope you get out of hospital soon and your bloods come up.
Welcome to all new comers, this forum has been a huge help to me, I hope you find the same comfort from it that I have found.
Lil, have you made a decision yet about staying closer to a hospital?
Sorry if I have missed anyone but as always I hope you are all getting on well.
I am now the day after my 1st of 3 tax and feel normal due to the 8 steroids a day. I too only got a few hours sleep last night so am getting a bit tired now. My onc told me to expect to crash tomorrow when I come off the steroids! I have to give myself the neulasta injection later today which should keep my blood count up. It hiked up from 1.07 on Monday to 10.55 on Wednesday! My onc said this was due to the steroids.
Have a good day everyone.
Kate Xx
Hi Girls,
Just a very quick one!!
I’m home…yay!!!
Bloods went up to 0.47 so they let me home this afternoon. Back in tomorrow for my pre-chemo check, but will still need another blood test on Monday to see if my bloods are up enough!
Can’t believe what happened after a simple sore gum - big lessons learned!!
Love to you all & thanks for the best wishes!
Axx
Hi Gorgeous Gals
We had HIPPOS in our garden last night. SCAREY…they are nasty horrible aggressive things that kill anything in their path, and they TERRIFY the horses. Sometimes I REALLY REALLY miss Brighton!
Kate…glad to hear that your 1st Tax is not as bad as you thought. Hope it stays that way.
Sue and TeeCass….Halfway already?? That is FAB. I still have such a long way to go…last Tax in Feb.
Jay…are you also halfway??
Ginge…thanks so much for your kind offer, if I could, I would SOO love to take you up on it, but impossible. BUT….can take you up on the DVD offer if you were serious??? …have emailed you. So sorry the gig was cancelled. Sods Law !!
Sue…thanks…doesnt seem so scarey when you know that you can have a chat to mates.
Daisy……HI and a huge big WELCOME. You are definitely at the right place to have the odd moan and the odd giggle. These lovely ladies have made the journey bearable. I am having the treatment in the same order as you, but having 4 FSC and 4 Tax, so will only finish Chemo mid Feb.
Julia…the way you and Ginge talk about girls, makes me happy that I had boys. I thought girls would be so much easier…think of boys and smelly socks, and frogs and nasty magazines hidden under mattresses….have been through all of that. Thank God they are both in their thirties now.
Annie….YEAH….so glad you are out. Arent you gonna miss the food though …? hehe
Hey Sarah…FAB news about your lack of SEs. Great that you are sounding so cheerful…your good energy has really made me smile !
Have a super weekend everybody
Big Big hugs to you all
Lil xxx
Evening Girls…
Lil, You really wouldnt want the Brighton weather right now!! but I can understand why you miss it, life is so different for you now…
Have you been back to England since you left?..
Hippos sound very scarey…
I am half way through chemo, then got Rads and Tamoxifen to come…
Annie, Great news you are home, How are you feeling?..
Kate, Hope you will be ok tomorrow when you stop the steroids, God this is some journey isnt it!!..
Take care all…
Love Jay X
Lil so glad that I made you smile.I really do feel ok. Bored with it all but not depressed anymore.
My son Joel really lifts me .He said the other day that he would still love me if I was bald! Also asked how my treatment went and he is only 7! He has such love and caring in him and maturity beyond his years.
My husband is also great and this really helps. I know how much he loves me and am not actually that bothered with him seeing me not looking my best.
I think I am getting my period.I thought they stopped durting chemo in most cases or maybe this is further down the line?
Wow Lil hippos in your garden!! Sounds amazing.
Love to you all.
xxxx
Hi Sozza…
How lovely your son sounds, bless him, My son is 12 and coping well with it all, there is just me and him at home so I try to keep life as normal as possible, and I think in a way that helps me too…
Having a hubby who you know loves you whatever is lovely to hear too…
I thought periods stopped too, but I have just had 3rd FEC and getting them as usual sadly!!..
Have a nice evening…
Love Jay X
Hi Gals
Yep its 4.00 am - bloody steroids keeping me awake. Will be knackered later.
Glad to hear most of us in good spirits. Side affects from Tax so far better than AC. Not feeling sick at the moment just a little light headed and dizzy when I bend down. I know your all shouting “don’t bend down then”!!
My periods stopped after fist AC when is quite nice but now getting hot sweats at night and during the day. Maybe they will stop when the Chemo does and periods come back. Who knows.
Sozza - You sound so much better and up beat - long may it last
Annie - yipee out of hospital - keep well - you don’t want to miss yor next sessionLil - How long have you been in Mozambique and can I ask why you chose there? Sounds all a bit scary to me - not sure I could cope with angry hippo’s spiders and snakes. I’d be a wreck - a bit screamish am I!! Def serious about DVD’s will look at inbox and sort something out for you. I assume engish DVD’s work in Mozambique
Has anyone had the reconstrution yet with LD flap - My back is killing me - I think it might be the Chemo affecting the healing
My OH is also lovely and your Son sounds wicked Sozza - Boys are sometimes so affectionate. - Is your hair long - I know I’ve said it befoe but wished I’d had it cut short into a pixie cut before it clumped and fell out. Its now growing!!
Well mght try to sleep now - but fully awake aghhhhhhhhhh - know I will be knackered later
Love to all
Ginge xx
Hi all,
I have had no sleep at all last night and still feel wide awake. At least I don’t have to take any steroids today so might get some sleep tonight. I sympathise with you ginge! I have not had any Tax SEs yet either but am waiting for them to hit over the weekend. I am taking paracetamol and ibroprofin to try to stop any bone pain starting as recommend by my onc.
Lil, I don’t like the sound of hippos in your back garden. You have got so many added things to contend with compared to all of us in blighty! I cannot believe you have got sons in their 30s, you look fabulous! X
I think it is amazing how well kids cope with these things. I am glad I don’t have to contend with teenage battles at the moment although I am getting increasingly worried that I might not ever get the chance to have a baby of my own. When I was little and they asked what I wanted to be when I grow up I always used to say ‘a mummy’ and it is still true today. All I can do is cross my figures now. Sorry, I think the lack of sleep has given me a lot of time to run it over and over in my head!
Sozza, I have to agree with ginge about cutting your hair although it does depend on how much you have managed to keep. You will look beautiful (and much younger than your years) with or without hair. X
I hope everyone is feeling good today, and the rain stops soon.
Kate xx
hi girls, had fec 4 yesterday and felt awful very tearful and miserable but also had flu jab the day before so that may not have helped. Annie glad that you are home.
We don,t get many hippos here in derbyshire Lil just cows and sheep can’t imagine what it must be like.
I have had my gel nails all the way through and on my toes as well and not had any problems.
Has any one else got sore eyes?
My question today is where does body hair go? I am losing it but have not seen any !! Still got the eyebrows but they are going a bit thin.
So glad everyone seems to be doing ok, I get so much support and comfort from this forum thank you girls . It is quite odd that we have become so close but have never met or talked.
Raining here today but I don’t care as I feel an afternoon on the settee coming on watching rubbish on the tv. Whilst trawling through the lower reaches of sky I found the most ridiculous american programme called extreme couponing how sad are some people!
My 31 year old son is also great and rings me everyday.
And the OH is a star.
Look after yourself everyone.
Love and Hugs
Fi XXX