Twinky - hope youāre feeling betterer now? I love the idea of bunnies in your bedroom!! Please donāt mention *shudder* those things wot have 8 hairy legs *bigger shudder*, Iām a wimp I know!
Sarah - wot a pain :(, I wouldnāt give up yet though as one of my patients was declined Herceptin initially and was given it on appeal? Will keep my fingers crossed for you x
I am pleased to say I am sitting on the happy bench today with a stupidly big smile on my face! I saw my consultant last night and she is very happy with the results of my op send says the information I was given last week was not only inaccurate but was given by an inexperienced nurse who should not have spoken out of turn!
In celebration, I have made double chocolate chip muffins :-D, they are completely calorie free and taste damned good (even if I do say so myself!). Please help yourselves, there are more than enough to go around!!
Not a hope in getting herceptin so thatās ungood. Seeing onc in a few weeks time and itās back on navelbine for me. Trying to decide whether to have iv, 15 min infusion, one blood test but tricky on veins, or capsules- 2 capsules day one, and 2 capsules day 8 with two blood tests and feeling a bit yuk fir a couple of days each time. Any ideas?
X Sarah
Iām normally upbeat but I feel really low today so I guess Iām on the sobbing gently bench. Iāve only seen a couple of family members since my op. Friends appear to have done a runner again. Same happened last time I was diagnosed so I shouldnāt really be surprised. Theyāre ok with me until I have the surgery then they all disappear. Iām in bed with a temp & nasty cough. Oh for a friend who would drop off a nice meal at a time like this. Makes me feel bad about myself and there have been a few tears today. Looking forward to hubby coming back tomorrow night to look after me again.
Sarah - What a bummer they wont give you herceptin, if I was you I would appeal against the decision, why wont they give you the herceptin??? I donāt understand!
Twinky68 - Really sympathize with you on the friends not being around front, some of mine have done the same thing to me, disappeared have not heard from a lot of them, only my OH and best friend even family seem to of gone off the radar recently, I feel like Iāve been abandoned a clear case of avoiding me, why is that??? do they think they can catch cancer??? or is it they are just fearful, again I donāt understand! Itās bad enough dealing with all this cancer c**p without feeling lost and tearful. Hope you are feeling better soon Twinks. I am just getting over my nasty cough/cold thing, lasted 4 days and has worn me out.
Really hope you get some much needed attention soon infact sending you both massive huge BIG hugs
Love and light from
sarah xxx
Thank you much for the hugs. Much needed! Feel better now Iāve dragged myself out of bed for food. Watched Masterchef but now back up in bed. Funny thing is when hubby said he wanted a big flat screen tv in the bedroom I was against it but have to say itās great to lie on a comfortable bed & still be watching.
Yes private insurance can be a nightmare. When I rang to get authorisation for tests after my biopsy came back positive they bluntly told me that I wouldnāt be covered if I had secondaries. Iāve been with the same team & hospital for over 6 years so being threatened with having it all taken away was traumatic to say the least. Luckily itās just a recurrence so they are still covering me.
Twinks, havenāt you trained your bunnies to chase spiders yet? How remiss of you!
There are so many people who suffer from ādisappearing friends syndromeā, someone should write a book! I think it happens when anything out of the ordinary happens in your life. I had it a few years ago when my then partner died suddenly, and I warned my kids that theyād find they had caught āthree heads syndromeā where everybody looked at them like they had three heads. āDisappearing friends syndromeā is similar, with the cause being āsomething that makes the other person feel uncomfortable and they donāt know how to deal with itā.
Iām in the soggy puddle beside the crazy sobbing lady bench again. At least Iām not completely on that bench, but feel like Iāve been hit by a bus. Something to do with teenagers. Nuff said, for any of you who have or have had teens. Suffice to say, I feel like a piece of something I would normally wipe off the sole of my own shoe. Iāve tried the āitāll be better in the morningā bench for the last few nights, but have found myself on the sobbing gently bench in the morning.
Oh well, Iāll try the IBBITM bench again tonight and hope that itās not fibbing again.
Sarah you are very much a candidate for the Unfare Bench. I feel strongly re an oncologist not being able to prescribe something that is in a patientās best interest. I too would appeal. As for your private insurer not paying up urggg!!! They should stop accepting such inflated rates from Doctors and hospital groups. Then they could cover you for drugs. The fees they charge are high enough. You really do have to look at the small print.
Twinky I am sorry you are not near Oxford or I would drop in a Dine in for Two. There are few things that cause depression more than a combination of your recent surgery and a cold. RevCat has some lovely lace hankies she hands out for tears but I am not sure about snotty noses!!!
I think I am going on the comfy bench tonight because I need some sleep.
Cackles
Thanks CM & Cackles. Sometimes it helps just confessing how you are feeling! Just makes me mad that people think once I have cancer and treatment Iām not āMeā anymore which couldnāt be further than the truth. Itās a shame that life today is so busy that people have stopped being thoughtful or making time to see those who might be in need! I find it pretty lonely at times with hubby working away. Luckily for me he does come back on a Thursday so it could be worse.
Lolā¦on a total change of topic have de-bugged the two bunnies that are in the house tonight. This involves squirting stuff on the back of their necks. Neither were impressed, in fact bunny no.3 Pebbles took off like a demented thing & keeps shaking herself. Sheās now gone back downstairs so itās peaceful again for a while!
Snuggled up in bed & hoping to feel less ill & a little more smiley again tomorrow.
Donāt know what Iād do without all the ladies here. Thank you much
I am camped out on the happy comfy sofa bed, room for more on here if anyone wants to join me. I have had zapping number two and it was good. I went for a walk using my strange Nordic walking poles and that too was good. I feel happy, positive and sleepy. Catch up with you all when I wake up.
Bu99er. Somebody kindly gave me a hoosh and Iām firmly back on the crazy sobbing lady bench. Accompanied by a sore head where I headbutted the wall. Didnāt solve anything, just made a mess.
Somebody put flares up to the āitāll be better in the morningā bench.
Oh CM ( rubs sore place on head & promises it will be better in the morning). What are we going to do with you ( passes extra large, extra absorbent Revcat hankie).
(whistles tune to self whilst mopping up tear puddles with uber-absorbent mop>
I am slightly concenred that all these tears will lead to a flood in Benchland, so I hope youāll allow me to mop them up with mega-mop? I have restocked all the lacy hanky supplies and the ultra-balm tissues for the snotty noses. New spoons are in the shed, box and dispensers; I put in an order for some extra thwacking ladles as it seems they are very much in demand just now.
I am worried that this desire to chase away spiders means that if it is Charlotte who is visiting (please donāt tell me you donāt know that book/film) means that lovely messages of encouragement and hope are being missed. Seeā¦ she visited and left this message on the tree over there ---->
Comfy bench worked so well I didnāt hear you joining me Supertrouper . I awoke with wet feet, what are you playing at CM? Come and join us here and settle down and I will fetch RevCatās mop. (I know my place in life) I am oozing empathy today.
Twinky you shouldnāt object to Charlotte she would like those little intruders!!!
As the Yanks would say
Have a good day
Cackles
āCharlotteā is now directly above my pillow busy spinning a web on the ceiling. I will leave her be as sheās not that big anyway. Have finally managed to get bunny no. 2 from out under the bed where it sounded like he was doing big renovations moving stuff around. Bunnies 2 & 3 are now out in the garden & no.1 is happily eating breakfast in the hutch. Peace reigns so I will now try & get some sleep again. Moving onto the comfy bench with one of those heated fleecesā¦
Bunnies and spiders, whatās going on in BENCHLAND???
Bunnies cute, hopping around, spiders NOOOOOOOOOOOOOOOOOO!
I moved from country into town a short time ago and I have NEVER in my life seen the size of the spiders here.
My daughter saw one in her bedroom, she was petrified curled up on her bed quaking and shaking shouting āhelp Mumā.
She pointed to the floor and this monster spider was just sitting there, I thought there is no way that I could pick that up even with a brush and shovel. We have a spider catcher gadget and it was too big to go in there, so out came the trusty hoover. After a very unpleasant rush around the room trying to get it, I eventually caught the monster!
So here I now sit on the āvery,very scared of huge spidersā bench.
Iām still haunted by the size of that one.
Hope you are now off the ācrazy sobbing ladyā bench chocciemuffin such a rotten place to be. xx
Oh dear, oh dear, oh dearā¦ I see that SuperTrouper and I will have to march boldly around Benchland to collect Charlotte and Horace and all their friends and politley ask them to remain in a designated area, far away from people they scare. Hereās the cunning planā¦ I will build a special spider sanctuary where they can live and spin encouraging messages to their heartās content. Fortunately, Charlotte being a VERY WISE and GENTLE spider* will understandā¦
=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=/
>===== PLEASE DONT BE SCARED OF ME ====<<br /> >= I PROMISE TO STAY IN THE SPIDER HOUSE =<<br /> >=== LOTS OF LOVE CHARLOTTE SPIDER =====<<br /> /=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=|=
On the āTake a back seat, why should i botherā bench.
Here I am being poisoned against my will, whilst OH is continuing to down gutfuls of poisonous ethanol like thereās no tomorrow, his touch of manflu is an excuse to get through a bottle of whisky in 2 days as an extra to his usual bottle of wine and trips to the pub.
Nope, he doesnt listen, its been going on for years, well before my diagnosis and all the ranting in Benchland wont sort him out.
Twinky, send that spider over here, is it a black widow???
On the āTake a back seat, why should i botherā bench.