Hugs to you both, Katy & nannabee, and all digits crossed for fast, effective treatment.
Glad you had yummy lunches and delicious chocolate cake.
OH was slightly improved, for a while: no āaccidentsā overnight on Monday or during the day yesterday but then horribly shaky again in the evening. Last night was horrific. He called me, several times before finally settling at about 12:30am. I didnāt get to sleep until after 3. Panicked shout woke me at 4:25am because he got stuck trying to crawl back into bed after using the commode. Eventually got him safely into the middle of the bed but he just had to stay there (lucky itās a king size). He didnāt manage to move the next twice he needed to pee.
He had a full on panic attack that lasted over 2 hours. He wanted me to ring 999 but I knew if I did, heād be calm by the time anyone came. It happened before. Finally rang 111. Loads of irrelevant questions that they insisted he answer (I know they were checking for confusion, but so annoying and his detailed answers - when he finally heard the questions - dragged up stuff from months ago, not what was happening now! At 5am! ) Then clinical Dr rang. Repeated all the same qs. She said sheād send an emergency ambulance. I got dressed, put lights on and unlocked the front door. 10 minutes later, Dr from mental health rang. Asked most of the same qs all over again and said no ambulance but sheād get a GP from our surgery to ring āthis morningā. Itās 5pm now so thatās not happening today!!
He finally settled at about 7 but I didnāt bother going back to bed: awaiting GP call and needing to cancel piano tuner, due at 12:30, as soon as it was a respectable time. Dentist on Friday also cancelled as was meds review on Tuesday, with practice nurse.
I was worried the antibiotics were interfering with his PD and/or anxiety meds so I emailed PD nurse. Sheās away, but an angel from the team rang me, just now, to reassure me that the PD symptom deterioration is due to the UTI not the meds, so he must continue taking them, drink as much fluid as he can and things should improve in a day or so. Phew! I was so stressed and asleep-deprived and she was so sympathetic and reassuring
Messaged YD, this morning, and their visit has been cancelled too. Even if heās vastly improved, the upheaval and change to routine will be too much.
Iāll try and meet them in Ely, for the day, one weekend. Sheās promised to try to do a video call during half term and theyāll all be over for Christmas. Yay! GD will be disappointed so Iām going to post her the two picture books I bought in a charity shop and the knitted Christmas Cracker Bear as a consolation.
Yesterday āperfect timing, as usual - I also had to organise the collection of late ESās van from the police storage facility. His friends were going to get it - and store it until after the inquest (thank goodness!) but the compound wonāt release it to anyone but next of kin, so I shall have to go with them. We canāt have his pride and joy auctioned off for a pittance, or worse, scrapped!!
My neck is giving me hell: too much tension and too long hunched over my media pad screen, I expect. Hot wheat bag and physio exercises.
To think, it was only this time last week I was getting home. Feels like a lifetime. Iām using the memories of it as a calming strategy.
Please cross everything for a quieter night tonight.