well meaning (but annoying!) things people say!!

This is quite a long posting, one that I added back in 2008 but thought worth adding for others who didn’t see it then.

I Could Get Hit by a Bus Too
by Susan Frisius

“You never know when you’re going to die, after all, I could get hit by a bus."
Since I’ve never known anyone who has been hit by a bus, I don’t understand why friends and acquaintances often say this when I first tell them I have breast cancer. Do they think the possibility of their being hit by a bus equals the possibility of my dying from cancer? Besides, I could get hit by a bus too.

“You’re lucky you have a treatable disease.”
Don’t get me wrong. I’m thankful I wasn’t told, “There’s nothing we can do,” but losing pieces of my body, having a radiation machine set off a nuclear war in my breast and getting my veins filled with toxic chemicals doesn’t exactly make me feel lucky.

“You’ll be fine because you have a great attitude.”
If attitude really matters, why did I get cancer in the first place? Or does attitude only matter after you get cancer? Right now my attitude about cancer is lousy. So what does that mean?

“Don’t worry, if your time’s not up, it’s not up.”
If that’s true, why did I bother with the surgery? Should I cancel the rest of my treatments? Do doctors perform surgery and give chemo and radiation for no good reason? After all, “if my time’s up,” treatments won’t help.

“I’ve read that anger and stress lead to cancer.”
Great! Now I caused my own cancer.

“You should simplify your life.”
It’s pretty simple now, all I seem to do is go to medical appointments.

“I’ve read that people can keep cancer from coming back by changing their diet. Maybe you should try to improve yours since it didn’t keep you from getting cancer. That’s why I watch everything I eat.”
The person who tells me this knows I only eat natural foods, cook everything from scratch, don’t eat junk foods and rarely eat meat. “You eat white pasta,” she says when she sees my puzzled look. Of course, she eats white pasta too, but calls the flour “semolina.” Does she really think if I had eaten pasta with “semolina” on the label I wouldn’t now have cancer?

One person says, “If you really want to live, you will. Just never give up. When people give up, they die.”
If I were hit and killed by a bus would she think I died because I gave up?

Another person tells me to visualize the cancer shrinking. She says, “If you really work at it, you can eliminate it.”

Most conversations end with “call if you need anything.” I don’t have the energy to call anyone - I can hardly feed myself and get to my medical appointments.
Why do intelligent and sensitive people who care about me say such things? Can they really believe I’m responsible both for my cancer and the outcome of my treatments?
I think these people want to believe cancers are caused by a person’s poor emotional state or diet. This lets them think they won’t get cancer because they think they eat properly and handle their lives and emotions well. Unfortunately, it also makes them feel uncomfortable around me because they’re afraid they’ll find out their attitudes and diets are no better than mine. So I hear, “How can you be so cheerful?” and “All that yogurt can’t be good for you,” and “Put your daughters in foster care, they’re too stressful for you.”
I have no doubt that everyone I talked to about my cancer was concerned about me and wanted to help me keep a positive outlook. I’m sure they were sincere when they said, “I’d like to have you over for dinner sometime, but I know everything makes you sick,” or “It’s good to see you out grocery shopping, I was worried because I hadn’t seen you for a while.”
I’m sure friends would have been happy to help if I had called them and asked for assistance. Most likely they thought they were being considerate when they didn’t visit or call “so I could rest.” I think they just didn’t know what to do or say.

So what would help me while I’m being treated for cancer?

Drop in or call. The only way you’ll know what I need is if you keep in touch. Remember, if I’m out in the community, I’m well enough to be out. It’s when you don’t see me that I need your support.

Don’t wait for me or my immediate family to ask you for help. It takes too much energy and I don’t like admitting I can no longer cope with everyday living. When you want to help, don’t ask what I need, just do it. Bring me a meal (white pasta is fine), wash my floors while I sleep, take my children to a movie, get the oil changed in my car, pick up a few vegetables for me at a farm stand, change a burned out light bulb, take my empty yogurt container off the coffee table and throw it out.

Don’t minimize the illness that scrambles my life by telling me about simple causes and self cures. Everything I’ve held important has been touched by it - my ability to raise my children, my work, my independence, my social life.

Don’t let your fear of hearing about cancer keep you away. While cancer has become a big part of my life, it’s not my whole existence and I am able to converse on other subjects.

Remember my immediate family. My cancer affects them emotionally as much as it does me. My kids and parents need their friends’ support now more than they ever did.

If I let you know your company is too much for me at the time, come back. If I don’t answer the phone, call again. I need to know I can count on you because I’m temporarily unable to count on myself.

If you’re feeling helpless because someone you know has cancer, don’t. Take them a meal and eat it with them. Talk to them as you wash their dishes. Play a game with their kids so they can hear laughter. Pet their cat until it purrs. Bring over a book and read it to them. Both of you will feel better when you take action.

Well said Susan!

Julie
x

Oh Julie thanks for posting that, it really does sum up how I and I suspect many others feel about our illness.

Big ((((Hugs))) for all of us.

Eunice xxx

Very eloquently put xxxx

Hi Susan,

That was a fab posting. It made me chuckle - so so true.

a colleague rang to ask how i am-which was very nice of her-then she asked me if the consultant thought that my weight had any bearing on my getting cancer ??? she is thin and i am pleasantly plump-i should have said no but thank god i’m not as tall as you (new study published-taller people more at risk !! )

Thank you Susan and Julie for posting that. Moved me so much.

Having cancer or rather the treatment for it is one of the hardest and loneliest things I’ve had to face in my life so far.

Reading through this thread has been amazing. We understand each others experience and that is a good feeling, knowing there is somewhere, for a few moments each day when I loggin and read through the forum, I know and feel that bit less alone. Thank you all.

Night, nigt. Deryn

Just as a sad footnote to my above post, Susan Frisius died on 4th Nov 2010, aged 63.

Julie
X

I really wish I’d read Susan’s plea when I was struggling from 2009 to 2010.I was so upset with my friends and everyone here seemed to have the most amazing friends and family that I felt such an ‘ugly’ person. An ‘ugly’ person with no true friends because no one ever read my mind and acted…
Like Puff said, it was THE most lonely journey I’ve ever made and it’s changed me for ever…

I’ve become even more separated from my friends now but in this way I’m more intact.
Thank you to Susan and Julie for helping me feel less alone.
I’m so glad I read this tonight.
I’m just at the second anniversary of my dx and I have learnt so much about myself, my world and my place in society BUT this wisdom has come at such a heavy price.

Thank you to all of you out there who understand. It’s great to feel that connection.
This forum has been my lifeline.

Julie-thanks for posting, really sums it all up xx

ditto from me sums it all up thanks Julie for posting

Hi Julie

Cannot believe I have just read your posting today as it was only yesterday when I was feeling so lousy due to radiotherapy reactions that I had to have another day off work AND feeling so low that I had to ring the helpline who listened to me off-load for 45 mins about exactly ALL the same issues that you mentioned. I thought that it was only me being unreasonable and ultra-sensitive!!! I even found myself making all sorts of excuses for my friends and family’s “inadequacies” only subsequently to get incredibly angry that no-one outside of this forum really understands what I am going through.

I spoke to 2 friends yesterday one of whom cancelled an arrangement to come and see me today because her bike club had extended their ride so she would be too tired to come over! TIRED !!! I had already just explained that I barely had the energy to cook myself a meal and she knows that I live on my own. Then she said “Oh well, I suppose you’ve just got to get on with it haven’t you”!!!

I cancelled coffee with friend number 2 as feeling so rough and I could almost physically feel her backing away from the phone as she said" Well let’s meet up when you’re feeling better". I was flabberghasted (?spelling)! What about “No problem I’ll come over with a meal for you” !

Love to all and thanks for continued support of this forum. It has been a real godsend
Lynn xxx

Thanks to everyone for their responses to Susan Frisius’ fantastic words - they moved me very much when I first read them nearly three years ago. I have had on the face of it a very bad week - I went for my second round of my third course of chemo on Wednesday, hobbling due to ongoing weaknesss in my right leg (I have bone mets). The oncologist spoke to my orthopaedic surgeon and came through to say they were cancelling the chemo so that I could have surgery in the next 24-48 hours, but too late as the Abraxane had already been started! I’m now on crutches/wheelchair for 2 weeks until my blood count recovers to enable either a hip fix or a hip replacement to go ahead.

The point I want to add here though is that my wonderful friend who lives a good 4 hours drive away came over on Wednesday and has stayed until today, and been absolutely fantastic - cooked my meals, organised my three children helping around the house, done a basket of ironing and most importantly organised hiring a wheelchair and getting a blue badge for me in record time. I was very sorry to see her leave this morning, but eternally grateful. If only everyone could be so understanding.

And to get back to the original thread, the most annoying comments for me are definitely the “oh yes, my friend/sister/girl I met on holiday had breast cancer and she’s fine now, so you will be too” - amazing how many cancer experts there are walking the streets.

Julie x

Hi geewhiz

Quite agree with your last comment Julie. So sorry that you are obviously having a very rough time to say the least. Your friend sounds as if she has been fantastic - just the kind of practical help you needed. Are you struggling on your own or have you anyone living with you?

love Lynn x

Susan’s words are so true, thank you Julie for posting them again.

I had an odd one yesterday evening. I popped into the curry house for a treat, and after I ordered my meal the blokey said “I like your haircut”. How weird. My response was “well try a dose or two of chemotherapy and you too can have hair just like mine.” He said he thought I’d just cut it short for the summer! Hello?! In no way could anyone say that 1.5cm of sticky-up, thin, patchy, falling out (still) fuzz is a look anyone would aspire to! He then went on to tell me about his brother who had had lymphoma, but all in all it was just a really odd thing for him to say. Clearly he didn’t mean to cause any offense, but it was just weirdness central.

I wasn’t annoyed by this one, just a bit taken aback. This morning OH was making overtures for ‘bedroom activity’ to which I agreed. His comment as he left the bedroom to wash first was “well as long as you’re alright. I think of you as a delicate little flower”.

Completely unrealistically I wanted to be a sex kitten, not a delicate flower.

Oh Nottsgal, that really really made me laugh!! I was feeling a bit stressed this morning, but that did make me smile so thank you lol

xx

Delicate flower??? More like a prickly cactus eh? :wink:

I myself was planning on an attempt at sleepy bedtime activity this morning when refreshed from sleep, however, I woke up with something up with my right eye, went in bathroom and the lower lid is swollen up and eye v sore, pink rim, feels like something in it but there isn’t. Rang doctors, had to go for emergency appt at hospital. So that KILLED that idea :frowning: I tell you, my hoo-hoo is going to heal up.

Can’t attempt tomorrow, have to be up early, mate is running race for life in my name nearby and I told her to come over for a brew and a piece of birthday cake after.

Is your hoo-hoo like my haa-haa Elkatrano?

It is but it’s not as funny as your haa-haa :wink:

lmao! :smiley: