July 2024 chemo starters

How big is your scar for the node removal?

Mine is about 8cm. Itā€™s quite big. I have all nodes removed to ensure it was all removed. Iā€™m waiting to hear back and crossing my fingers I donā€™t get lymphoedema but there is a 30% chance of getting it.
Iā€™m doing my exercises religiously but itā€™s painful!!

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Hi

Mine is similar to @bex1 about 7-8cm scar under the armpit. I am not sure how many nodes they took out yet. Surgeon said around 4 and depending on what they find they might need to go back and remove more/all. Also started the exercises.

So just level 1 nodes?

Yes I think so but will know more when pathology results are ready

Hey July starters. I just finished my chemotherapy this week I was a September starter. Anyway being a bit cheeky, already thinking about hair regrowth. How long did it start for you to really start noticing your hair to grow back. I have very sparse but hair nonetheless and already getting excited about hair growth. Wondered how quickly hair started coming back for people that didnā€™t cold cap. I had TC Phesgo

My chemo finished at end of October and the is my hair now. I wasnā€™t this dark before lol x

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I have finished most of my treatment except my phesgo injections. Currently my mind is doing overtime regarding what I want out of life. Iā€™ve worked my whole adult life and have always loved work, I canā€™t afford to give up work but my mindset is such that I am questioning if Iā€™m just working myself into an early grave and not really living my life. Is it just me or do other people feel the same?

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@louc Not youā€™re not the only one and my breast care nurse said many ladies who have had bc think the same.

Iā€™m 55 and had 16 months of treatment with Herceptin and now Letrozole and Zoledronic acid. I had been teaching in a primary school covering classes and I just couldnā€™t do the job anymore. The hot flushes, aches and pains, fatigue, lack of sleep not to mention brain fog. I couldnā€™t give it my all, there is nothing less than 100% when you have 30 little people for 6.5 hours. I took redundancy and using the money to do what I want when I want. I will decide a some point what I want to do for the rest of my time and will probably work but unsure doing what. Stress is not good for us and Iā€™d had a couple of family deaths and stressful job with other health issues and I needed time for myself.

Not everyone can choose to not work. I do volunteer on here several hours a week as well as local foodbank.

Is there an option of a short career break or be signed off to take some time mentally and physically for yourself? Employment and Support Allowance is an option if you are signed off and not receiving statutory sick pay. It is means tested but there is a contribution based option as well.

I notice you are on Phesgo which can last another 7/8 months after chemo and can weaken your immune system (not as much as chemo). I was signed off for all my Herceptin plus a couple of months to build up my immune system as working in school was not good for infections and bugs. There is a thread of HER2+ buddies that you may like to join for your ongoing treatment. Many in this thread continue work but it depends on where you work and the type of role. Link below

:smiling_face_with_three_hearts:

@louc oh wow, amazing thank you for sharing. Your hair is looking great :smiling_face:

After 2 false starts resulting in 2 extra planning scans and delays, I finally had my last radiotherapy treatment today - 24 days later than expected!! Itā€™s been incredibly stressful and upsetting at times with all the issues. But for now Iā€™m just incredibly relieved itā€™s done. Onto the next treatments now!

@louc I feel exactly the same as you about work.

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@ldm congrats! How are you celebrating?
I think you have done tremendously! It is so unnerving lying there arms up boobs out for all that time. I found it more difficult when it was two male radiographers. Just think you have done it!!!

Have you had 15 sessions? How are you feeling? Iā€™m currently on 12/15 after the machine broke down and had to go to another site on Friday and today . :see_no_evil: roll on. Friday for me xx

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@Kerrylou Im not sure yet how Iā€™m going to celebrate. I think Iā€™ve been that stressed about something else going wrong that I hadnā€™t thought about that bit! I think I might go out for a meal with the hubby and kids at some point this week.

Yes I had 15 sessions and an integrated boost. At the moment Iā€™m feeling very tired, I think itā€™s a combination of a number of things. Iā€™ve also a skin reaction/ kind of burn that I need to keep an eye on to ensure the skin doesnā€™t break.

Lots of luck for your final ones - very nearly there xx

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Same !

Iā€™ve been working throughout (of course off for surgery / flexi during chemo) but god what I would do for a sabbatical

Have a daughter starting uni in Sep (and youngest 2 yrs later ) plus my eldest (19) still at home

I just want a few months to reset (esp in my new menopausal state) x

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@kerrylou1 @ldm
Glad radio is nearly done / done

Going in daily is a slog !

I had 19 sessions& by the end was looking forward to the break

I kept my gown as a keepsake though :laughing:

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@ldm hope your reaction calms down soon with the moisturiser. Thanks for the reply.

After 12 my boob is starting to look a tiny bit pink! Iā€™m just wondering if they boost every day or these come at the end?? Will have to ask! Am Slapping on the moisturiser! X
Xx

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My original site (before the machines broke down again) was quite easy to get too and ran on time although the site in the city centre was busy and always late! Glad to be going back to original site tomorrow (doorstep parking and only two machines so much less busy!)

Never though of the gown as a keepsake - maybe we should have them made into cushions :rofl::rofl::rofl::rofl::rofl:

Been on my tamoxifen for 4 weeks now and feeling fine (for now). Third zoladex on Thursday. Donā€™t really want to change to an AI at next onco appointment whilst also starting abemciclibab! Will discuss at next appointment ,

Are you feeling any better on the AI @idcand49 :crossed_fingers:t2:

Canā€™t wait to get radio over and plan to go back to work - been off since May! Xx

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@kerrylou1 my boost was integrated, I think it was prob a bit every day as the patterns of the treatment never seemed to change.

I think some people have extra sessions at the end just for the boosts. I believe itā€™s dependent on the machines your hospital has xx

Honestly if youā€™re feeling ok with tamoxifen maybe ask to stay on it?

Iā€™m not the best poster child for Letrozole but just started my 7th week so maybe I will turn a corner

I did change brand and it helped a bit
Whoop

Not sure what I will do with the gown but a cushion sounds cute lol x

I only worked part time. But it was getting too much for me before my cancer diagnosis. Ive rhumatiod and osteoarthritis ive decided not to go back. Can just manage financially. But yes it does make you think about whats important. Look after yourself love. X

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